Your Guide - CancerCare Manitoba

Your Guide
To CancerCare Manitoba
Cancer Patient Information
and Resources:
Your Guide to CancerCare Manitoba is Part 1
of a cancer information and resource series
for cancer patients and their families.
Part 1: Your Guide to CancerCare Manitoba
This brochure can help you to prepare and plan for
your first appointment, and has basic information
and contact numbers.
Part 2: My Cancer Notebook
A notebook where you can record and organize
your cancer treatment and care.
Part 3: My Cancer Handbook
A large handbook, which is a combination of Part 1
and Part 2 and more. Copies or topics from the
handbook can be printed from the CCMB website
at www.cancercare.mb.ca
For a copy of any of these resources you can:
Go to the CancerCare Manitoba website at:
www.cancercare.mb.ca under the Patient
and Family section.
Call or visit the Patient and Family Resource
Centre located at:
CancerCare Manitoba
Room 1016 - 675 McDermot Avenue, Winnipeg, MB
Phone: 204-787-4357 or Toll-free 1-866-561-1026.
What Language Do You Speak
at Home?
It is important that you and your family can
ask questions and have answers in your
own language.
Please ask for an interpreter for you or your
family when your appointments are made.
This service is free.
Welcome to
CancerCare Manitoba
CancerCare Manitoba (CCMB) is here to provide
excellent cancer services and support to you
and your family. We understand that your first
appointment is often a time of many questions.
Your Guide to CancerCare Manitoba will assist in
preparing you for your first appointment at CCMB.
The CCMB health care team and volunteers
are here to help you. We encourage you to ask
questions of any member of our team, at any time.
On behalf of the CCMB
Health Care Team,
Dr. Sri Navaratnam
president and ceo
cancercare manitoba
Table of Contents
3 Preparing for
My Appointments
14 Winnipeg & Rural
Cancer Care
6 Preparing for
Appointments
and Treatment
16 Navigation Services
10 Getting to
CancerCare
Manitoba
20 Helpful Support
Services
22 Acknowledgments
1
Hours of Operation
Regular Business Hours for
the Main Sites:
MacCharles
CancerCare Manitoba at 675 McDermot Avenue,
Winnipeg, MB (next to Health Sciences Centre)
204-787-2197 Toll-free 1-866-561-1026
8:00 a.m. to 4:00 p.m. Monday to Friday
St. Boniface
CancerCare Manitoba at the
St. Boniface Hospital in Winnipeg, MB
204-237-2033 Toll-free 1-866-561-1026
8:00 a.m. to 4:00 p.m. Monday to Friday
Western Manitoba Cancer Centre
300 McTavish Avenue East, Brandon, MB
204-578-2222
8:00 a.m. to 4:00 p.m. Monday to Friday
Cancer Helpline at CancerCare Manitoba
204-787-8900 Toll-free 1-866-561-1026
and ask for the Cancer Helpline
8:00 a.m. to 6:00 p.m. Monday to Friday
A registered nurse can give you advise on
how to take care of symptoms at home,
or advise if you should go to the Urgent Cancer
Care clinic or to an Emergency Department.
After Hours:
If you have an emergency after regular
business hours or it is a holiday, please contact:
Health Sciences Centre paging at
204-787-2071
Ask for Medical Oncology,
Radiation Oncology or Hematology.
St. Boniface Paging at 204-237-2053
Ask for the oncologist on call.
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Preparing
for My Appointments
Table
of Contents
Before your appointment:
::Make a list of all medicines you
take (or bring the bottles of medicine
with you). Tell us about any herbs,
traditional medicine, vitamins and
supplements you take, including any
medicated drops or creams you use.
::Tell us about any complementary
therapies you use, like massage
and naturopathy.
::Bring your Manitoba Health Card
(purple and white card).
Don’t have a Manitoba Health Card?
Call 204-786-7101 or
Toll-free 1-800-392-1207
::Bring any forms you need to be
filled out by the doctor or nurse.
::Make a list of all your past surgeries,
allergies and illnesses.
::Bring a family member or friend
to your appointment.
::Bring something to do while you wait.
Feeling Anxious?
You can talk to a counsellor at
Patient and Family Support Services
at CancerCare Manitoba.
Phone 204-787-2109
Toll-free 1-866-561-1026
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Preparing for My Appointments
Questions that you may want to ask about
your diagnosis:
• What does my diagnosis mean?
• What test and test results confirmed this?
• What choices will I have about my treatment?
• Can my treatment affect my ability to have
children? Do I have any fertility options?
• What will happen to me?
Can I take part in current research (clinical trials)?
Clinical trials test new medicine, new ways to do
surgery or radiation therapy. When you enroll in a
clinical trial, you help researchers find better ways
to treat, prevent, diagnose and understand cancer.
Not all cancers have a clinical trial available, so ask
your doctor if you are eligible for one.
What will happen at my appointment?
• Find the clinic where your appointment
is and tell the clerk that you are there.
• A unit assistant or nurse will measure
your height and weight, and take you to
an exam room.
• You may be asked to change into a gown.
• You will be asked questions by more than
one member of the health care team.
A Question for You:
What does the team at CancerCare Manitoba
need to know about you, as a person, to give
you the best care possible?
Take the time to tell us.
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The health care team:
• May ask to look at the area of your body
where your tumour (lump) or illness is located.
• Will talk to you about a plan for your care
and what you will do next.
Your health care team will also answer
your questions.
Make sure the health care team has:
• Your phone number and mailing address.
• Up-to-date information about your regular
health care provider (family doctor, walk-in
clinic, or nursing station) Updates about
your cancer care are sent to your regular
health care provider.
• Information on how to contact you if you
are staying in Winnipeg for appointments
or treatments. Leave the address and a
telephone number.
Before you leave, ask the nurse or clerk about
your next appointment.
Accommodation and Financial Assistance
If you need information on where to stay in Winnipeg
or Financial Assistance call or visit:
CancerCare Manitoba
Patient and Family Resource Centre
Room 1016 – 675 McDermot Avenue, Winnipeg, MB
Ph: 204-787- 4375 or Toll-free 1-866-561-1026
Patient and Family Support Services
Room 1018 – 675 McDermot Avenue, Winnipeg, MB
Ph: 204-787-2109 or Toll-free 1-866-561-1026
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Preparing for Appointments and Treatment
How can I be ready for my appointments?
At each appointment, you will have a chance
to talk about your concerns and ask questions.
Here are a few tips to help:
• Plan the questions you want to
ask and write them down.
• Don’t feel rushed and ask if you don’t
understand something.
• Take someone with you who can help
take notes and ask questions.
Ask questions about treatment and after
treatment is finished
• How long will the treatment take?
• What are the usual side effects of treatment?
• What do I do if I have side effects?
• What tests will be done to monitor my condition?
How often?
• How successful will the treatment be?
• What will happen if I don’t have this treatment?
Patient Consultation Recording –
recording your appointment.
You will be asked if you would like to record
the meeting with your cancer doctor and
health care team.
You will be given a memory stick with
the recording of the appointment that you
can listen to on a computer. You can also
have recordings of other appointments at
CancerCare Manitoba.
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Can I get treatment at other times?
• Some treatments are available after 4 p.m. or
on a weekend, which may better fit your schedule.
• Ask your nurse or doctor if this is possible for
your treatment.
After hours treatment is only offered at CancerCare
Manitoba, 675 McDermot Avenue in Winnipeg.
Chemotherapy treatment is available:
Monday-Friday 8:00 a.m. to 10:00 p.m.
Saturday and Sunday 8:00 a.m. to 4:00 p.m.
Radiation therapy is available
Monday-Friday 8:00 a.m. to 5:00 p.m.
COMPASS stands for Comprehensive
Problem and Symptom Screening.
Your health care team wants to hear about
any concerns or problems you are having.
At your appointments in CancerCare
Manitoba, you may be asked to complete
a short form with questions called COMPASS.
After you complete the COMPASS form,
your nurse will talk to you about it. We will
connect you with the information, care and
support you may need.
Ask Us!
If you don’t understand a word that has been used,
ask your health care provider.
You can ask for a copy of your test results.
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Getting to CancerCare Manitoba
CancerCare Manitoba
675 McDermot Avenue
(Beside the Health
Sciences Centre)
P
Comm
Servic
William Avenue Parkade
Bus Stop
Health
Sciences
Centre
General Parking
CancerCare
Manitoba Parking
CancerCare
Manitoba
Main Entrance
CancerCare
Manitoba
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Women’s
Hospital
Pearl Street
Emily Street
Lennox
Bell
Lodge
For bus routes visit the Winnipeg Transit
website at www.winnipegtransit.com.
munity
ces
New Women’s Hospital
Rehab/
Respiratory
Hospital
e
Sherbrook Street
William Avenue
Bannatyne Ave.
( Below )
McDermot Avenue
Manitoba Clinic
Manitoba
Clinic
Parkade
Olivia Street
Sherbrook
Dialysis
Centre
Notre Dame Avenue
Check street signs for parking information.
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Getting to CancerCare Manitoba
CancerCare Manitoba
St. Boniface Hospital Site
409 Taché Avenue
1
MRI
Marion Street
Research
Centre
(south)
Goulet Street
Taché Avenue
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For bus routes visit the Winnipeg Transit
website at www.winnipegtransit.com.
Bus Stop
Metered Parking
Red River
Metered Parking
Disabled Permit Only
South Entrance
(enter here)
Emergency Entrance
Main Entrance
Public Parking
St. Boniface Hospital
South Entrance
Emergency
Entrance
400 Taché
La Verendrye Park
Check street signs for parking information.
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Getting to CancerCare Manitoba
Parking
• All parking in front of CancerCare Manitoba at
675 McDermot Ave. is pre-pay handicapped parking.
• There is a drop-off and pick-up zone at the main
entrance (675 McDermot Ave.).
Parking Tips:
Parking at CancerCare Manitoba can
be a challenge.
•Give yourself extra time to get to
your appointment.
•Bring money for the parking meter
or pay station.
Tell us if you have to leave the clinic area
to pay for more parking so we can keep
your appointment for you.
Handicap Parking (limited space)
• 675 McDermot Avenue: on the street at
the main entrance to CCMB.
• Underground parking at Health Sciences
Hospital entrance on Sherbrook Street.
• St. Boniface Unit: near the CancerCare
Manitoba entrance.
Street Parking
• Metered parking for four hours is available around
675 McDermot Avenue.
• Metered parking is available around the St.Boniface unit.
Parkades
• The Manitoba Clinic Parkade at 790 Sherbrook Street.
• Underground parking at Health Sciences
Hospital entrance on Sherbrook Street.
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• Across Taché Avenue, on the south side of St. Boniface
Hospital. CancerCare Manitoba’s entrance
is located in the southwest wing of the hospital.
For more information regarding parkades and weekly
passes, please call during regular working hours:
Health Sciences Centre: 204-787-2715
St. Boniface General Hospital: 204-237-2319
Transportation Services
Canadian Cancer Society – Transportation Service
The Canadian Cancer Society (CCS) provides safe,
reliable, and subsidized transportation services for
cancer patients. A volunteer driver can pick you up and
take you to your appointments and take you back home.
Who can use the service?
• Living within one of the Canadian Cancer Society
service areas.
• Receiving cancer related treatment.
• Able to walk to and from an automobile.
• Able to travel without supplementary oxygen
(not using oxygen).
You must register and give a minimum of three working
days’ notice. You will be charged a daily user fee.
Register by phone:
Winnipeg and surrounding area: 204-789-0883
Toll-free 1-888-532-6982 ext. 239
Northern Patient Transportation Program
1-800-290-1098
Provides reimbursement for transportation costs
to patients who live: North of 53 degrees on the
west side of Lake Winnipeg or North of 51 degrees
on the east side of Lake Winnipeg. You may need
to get a doctor’s note.
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Winnipeg & Rural Cancer Care
Winnipeg Regional Health Authority
Oncology Program
You may be offered the option of having
your chemotherapy and clinical care at one
of the four WRHA Community Hospitals:
Concordia Oncology Clinic
1095 Concordia Avenue – Main Level
Winnipeg, MB
Main Reception Phone: 204-661-7228
Grace Hospital
300 Booth Drive, Winnipeg, MB
Main Reception Phone: 204-837-0246
Seven Oaks General Hosptial
2300 McPhillips Street, Winnipeg, MB
Main Reception Phone: 204-632-3677
Victoria General Hospital – Oncology
Buhler Cancer Centre
2340 Pembina Highway, Winnipeg, MB
Main Reception Phone: 204-477-3328
Information for the Rural Patient
Community Cancer Programs Network (CCPN) Sites
You may be able to have care for your cancer closer
to home. The Community Cancer Programs Network
(CCPN) is a CancerCare Manitoba program for
patients living outside of Winnipeg. The CCPN works
with the Health Regions in Manitoba to provide care
closer to home.
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The CCPN is made up of:
• 15 cancer programs.
• The Western Manitoba Cancer Centre in Brandon.
• The Community Cancer Program & Support Centre
in Eriksdale.
For more information visit
www.cancercare.mb.ca/ccpn or call 204-787-5159
Community
Cancer Programs
Phone
Boundary Trails
(Morden/Winkler)
1-204-331-8850
Brandon WMCC
(Western Manitoba
Cancer Centre)
1-204-578-2222
Dauphin
1-204-638-2182
Deloraine
1-204-747-1836
Flin Flon
1-204-687-9626
Gimli
1-204-642-4520
Hamiota
1-204-764-4203
Neepawa
1-204-476-7822
Pinawa
1-204-753-3153
Portage
1-204-239-2276
Russell
1-204-773-7550
Selkirk
1-204-785-7400
Steinbach
1-204-346-5160
Swan River
1-204-734-6671
The Pas
1-204-623-9241
Thompson
1-204-677-5397
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Navigation Services
Navigation Services are available in all regions
of Manitoba.
Navigation Services:
• Helps you meet your needs and make
informed decisions.
• Provides support to you and your family
in your cancer journey.
• Works closely with your family doctor and health
care team to manage your care.
If you have a suspicion of cancer or have a diagnosis
of cancer, you may be referred to Navigation Services
within your health region.
Manitoba Telehealth
•You may be able to have your
appointment by telehealth from a health
centre closer to your home.
•Telehealth will allow you to see and talk
with your health care team or cancer
doctor by video conference on a
television screen.
•Ask if you can use telehealth.
Cancer Helpline and Urgent Cancer Care
When should I call the Cancer Helpline?
Call the Cancer Helpline if you have symptoms from
your cancer or blood disorder, or your treatments.
• You can talk to a registered nurse and ask
questions about your health condition.
• The nurse can give you advice on how to take care
of your symptoms at home, or advise whether you
should go to the Urgent Cancer Care Clinic or to
an Emergency Department.
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Cancer Helpline
Phone: 204-787-8900
Call Toll-free at 1-866-561-1026 and
ask for the Cancer Helpline
Hours Open: Monday to Friday
from 8:00 a.m. to 6:00 p.m.
When should I go to the Urgent Cancer Care Clinic?
The Urgent Cancer Care Clinic is there to help your
regular health care team in your on-going care.
• You may go to the Urgent Cancer Care Clinic if you
are a CancerCare Manitoba patient experiencing
new symptoms that may be related to your cancer
or blood disorder, or for side effects from your
treatment for your cancer or blood disorder.
• Call the Cancer Helpline if you are not sure if
you should go to the Urgent Cancer Care Clinic.
Urgent Cancer Care Clinic at CancerCare Manitoba
675 McDermot Ave., 1st Floor
Hours Open: Monday to Friday
from 8:00 a.m. to 4:00 p.m.
Your Safety and Taking Cancer
Medications at Home
Attend an Education Class
You and your family can attend an education
class to learn more about safety when taking
cancer medications at home. Classes are
held at CancerCare Manitoba and taught
by nurses or pharmacists.
Ask your clinic staff for more information.
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Manitoba Home Cancer Drug Program
Is there help to pay for my medication?
The Manitoba Home Cancer Drug Program is for
Manitobans with cancer. The program pays the cost
of approved oral cancer medications (those in pill
form) and some specific support drugs (like medicines
to help with nausea).
For information on the Manitoba Home Cancer
Drug Program call:
CancerCare Manitoba Pharmacy at 204-787-4591
Monday to Friday – 8:30 a.m. to 4:30 p.m.
Registration Information – to find out if you are
registered in the Manitoba Home Cancer Drug
Program and/or the Manitoba Pharmacare Program
Phone: 204-786-7141 or Toll-free at 1-800-297-8099
Monday to Friday – 8:30 a.m. to 4:30 p.m.
Patient Safety
Working Together to Keep You Safe
We want you to feel safe and be safe at all times.
Learn more about staying safe at www.mips.ca.
Your Identification –The right patient every time
• You will be asked for your name and birth date at
every appointment or treatment. You will be asked
to show your Manitoba Health card at every visit,
so keep it with you at all times. We use this
information to make sure you are the right person.
• Please check your name, birth date and all personal
information on your appointment letter. Tell your
nurse or a clerk if it is not correct.
• Tell your nurse or clerk if your address, telephone
or contact numbers change.
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Prevent Infection – Protecting you and preventing
the spread of infection
• Wash your hands to prevent infection.
Use hand cleanser if you are not near
soap and water.
• Always wash your hands before eating,
after using the bathroom, or contact with pets.
• Ask your family and visitors to wash their hands.
• It is okay to ask staff if they have cleaned
their hands.
• Use a tissue when you cough or sneeze,
then clean your hands. If you don’t have
a tissue, use your upper sleeve.
• If you have a cold, cough, flu, rash or fever,
please call your nurse. You may need to wear
a mask for your next appointment.
• Tell your family and visitors not to come to the
cancer centre if they are sick. If they must come,
they will have to wear a mask.
Prevent Falls – Most falls can be prevented
• Be aware of wet floors, spills, furniture and
equipment that may cause a slip or fall.
• Wear non-slip well-fitting shoes.
• Move slowly when you get up. Tell your nurse
if you feel sleepy or dizzy.
• During future visits, bring someone with you,
use a cane or walker, or use a wheel chair.
• Tell your cancer doctor and your family doctor
if you have had a fall.
• If you fall in a clinic area, please let staff know.
• If you fall in the bathroom or change area,
pull the emergency cord and staff will come
to help you.
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Table
Helpful
ofSupport
Contents
Services
Patient Representative at
CancerCare Manitoba
Talk to the Patient Representative if you
have questions, complaints, concerns or
compliments about your care.
Ph: 204-787-2065 or 204-235-3445
Toll-free 1-866-561-1026
Nurse Navigator
A Nurse Navigator is a nurse who has extra
training in cancer and works at one of the
Community Cancer Hubs. A Community Cancer
Hub is a group of cancer experts that diagnose,
treat, and care for cancer patients. They help
patients and caregivers connect to the next step
in the cancer patient journey.
Patient Access Coordinator (First
Nations, Metis & Inuit Cancer Control)
Call if you have concerns about your treatment
plan or delays, problem-solving with FNIHB,
questions about your care and what will
happen next.
Ph: 204-787-4986 or
Toll-free 1-855-881-4395
Patient Assistance Coordinator
Call ahead for any special needs.
You can arrange a wheelchair to meet you
at the door or a guide to take you to any
appointment (including tests in the hospital).
Ph: 204-787-4767
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Patient and Family Support Services
Skilled professionals can help and support
you or your family if you have cancer.
• Counselling for patients and their families.
• Spiritual health services.
• Support groups and programs.
• Nutrition Services.
• Speech Language Pathology.
• Patient and Family Resource Centre.
• Breast and Gyne Cancer Centre of Hope.
• Guardian Angel Caring Room
(wigs and headwear, Look Good Feel
Better programs).
For more information about these programs
and services call:
Ph: 204-787-2109 or
Toll-free 1-866-561-1026
The Navigator Newsletter
See a copy of the Navigator Newsletter
for a monthly calendar of cancer-related
support groups, information sessions
and other programs. This newsletter can
be found in waiting rooms or online at
www.cancercare.mb.ca, click on Patient
and Family tab and go to Support Services.
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Acknowledgments
Table of Contents
CancerCare Manitoba Foundation is honoured
to support the production of the Cancer Patient
Information and Resource materials.
It is our donors’ gift to you.
Music To My Ears Program
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Table of Contents
Guardian Angel Caring Room
Breakthrough Research
Pediatric Play Room
Future Scientists
and Oncologists
23
Notes
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se ptemb er 2015