West Sussex Carers Information Pack Adur, East Arun, Worthing

Transcription

West Sussex
Carers Information Pack
Information and support for people who help or care for a
relative, friend or neighbour who cannot manage at home
because of a physical, mental health or learning difficulty, or is
elderly frail.
Adur, East Arun, Worthing &
Chanctonbury
Compiled by Carers Support Service,
Worthing and District
Carers Support Service
Worthing & District
Tel: 01903 536378
www.carerswsx.org.uk
August 2012
1
Introduction
INTRODUCTION
These factsheets are for carers – people looking after friends, relatives or neighbours who
are frail, have a disability or illness, and for professionals who work with carers - please
use and pass on the information to carers you meet in the course of your work.
If you are caring for someone, you may need help, information and advice so that you can
carry out your caring role and look after your own health and wellbeing as well. Many
people don’t see themselves as ‘carers’ but caring is a demanding job and the factsheets
contain details of many different services that can support you in this role.
The factsheets were compiled by Carers Service Worthing and District, (CSS, Worthing &
District), and aim to help you to find your way around the many forms of support, advice
and information available in this area. If you have difficulty in finding what you are looking
for, please ring us on 01903 536378 as we have access to more information than we could
put in the factsheets.
The areas we refer to in the factsheets are as follows:
Adur
Fishersgate, Southwick, Shoreham,
Lancing and Sompting
East Arun*
Findon Village, Ferring, Angmering, East
Preston, Rustington and Littlehampton
Chanctonbury**
Henfield, Steyning, Storrington,
Pulborough and surrounding villages
Worthing including Goring, Broadwater,
Durrington and Findon Valley
Worthing
* Western Arun is covered by Carers Support Service, Regis Chichester and Rural, 60a
North Street, Chichester PO19 1NB, tel: 01243 537011.
** Horsham is covered by Carers Support Service North & Mid Sussex, The Orchard, 1-2
Gleneagles Court, Brighton Road, Crawley, RH10 6AD, tel: 01293 657040.
Where an entry does not apply to the whole area we cover, we have tried to show the area
that the entry does cover.
If you want to talk through your own situation in confidence, or get some more details
about the services listed in a factsheet, then please contact us at:
Carers Support Service, Worthing & District
Methold House, North Street, Worthing BN11 1DU
Phone: 01903 536378 (information and support)
01903 528600 (admin)
Fax: 01903 528611
Email: information@carerswsx.org.uk
This Introduction factsheet is the property of the Carers Support Service, Worthing & District, and may
be copied in its entirety only, for personal or non-income-generating professional use.
Information was last checked in August 2012, no responsibility or inferences can be assumed for any
inaccuracies, inclusions or omissions.
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Introduction
Other “starting points” for information and services are:
•
Your local West Sussex County Council (Social Care) office from 9am – 5pm
•
Southern offices - Glebelands, Middle Road, Shoreham by Sea, tel 01273 268800
- Centenary House, Durrington Lane, Worthing, tel 01903 839100
Covers Adur, Worthing & East Arun
•
Northern office - County Hall North, Chart Way, Horsham, tel 01243 642555
Covers Chanctonbury
•
ICIS (Information 4 Life) - Freephone 0800 859929
•
Your own doctor
Please note that the inclusion or not of any organisation in a factsheet cannot be taken to
be a comment or recommendation about it.
Every caring situation is different and each of us deals with things in our own way. We
each need to make sense of our experiences in a way that is right for us. Some people do
have profound feelings such as anger, guilt and depression, and there may be days when
you feel like this. Below are some of the tips and ideas that carers said have helped them
feel much more in control when things have been difficult.
‘A carers group or meeting can be a good place to share your feelings with other carers
who know what it’s like’
‘Apply for benefits as soon as you can. Many can’t be backdated so timing is important’
‘Ask for help and take time off when you can’
‘Ask Adult or Childrens Services for a Carers Assessment. Talking through my situation
with a social worker identified that we needed more help and this was arranged for us’
‘Don’t feel guilty if you feel angry and frustrated, but try and find a way of letting your anger
out that doesn’t involve the person you care for’
‘Don’t shut people out or pretend you can cope on your own. People won’t know you need
help unless you say so’
‘Don’t take no for an answer – ask and keep on asking if necessary’
‘Family often don’t realise just how much you are doing – try and get them to share the
load’
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Introduction
‘Find a way of dealing with stress that works for you – perhaps having a
massage, going for a walk, finding the time for a hobby’
‘If you feel stressed, don’t bottle it up – talk to someone’
‘If you go on the Carers Register at your GP practice, they should know you are likely to be
under pressure at times and can tell you about the advice and support that is available’
‘If you hesitate to leave the person you care for, think about whether they might need time
to themselves too’
‘If you need to talk to someone, or have a good cry, then do it. There are so many
organisations willing to listen’
‘‘Try and do at least one thing you enjoy, for an hour each week’
‘Try and get enough sleep, it’s much easier to manage when you’re not feeling tired all the
time’
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CARERS SUPPORT SERVICE (CSS) WORTHING & DISTRICT
Our service was established in 1991, and we provide a free confidential information and
support service to unpaid carers in the area from Fishersgate along the coast to
Littlehampton and north to Henfield, Steyning, Storrington and Pulborough, and
surrounding villages. We are hosted by local charity Guild Care, whose Registered
Charity Number is 1044658. We can make information available to carers in the most
convenient format for them – by phone, in writing (including in large print), E mail, or in
person. The services we provide include the following, and we can tell you more about
them if you ask us:
ACCESS TO LOW COST COMPLEMENTARY THERAPIES
We have set up an arrangement with several local complementary therapists, who have
agreed to offer reduced cost complementary therapies to carers on our mailing list. If you
would like to take advantage of this, please contact us for a Carers Registration Card and
list of therapists taking part.
ACCESS TO THE HEALTHY LIVING CENTRE
As a carer, you are welcome to access any of the activities at the Healthy Living Centre for
Older People and Carers at Methold House, including low cost and free activities such as
hairdressing, healthy walks and crafts.
ASSISTANCE THROUGH CARERS TRUST
As a network member of Carers Trust, we can make an application for funds to pay
towards:
• A break in the UK for the carer
• Equipment to make the carer’s life easier
• Educational bursaries to pay for a course
• Transport for carers
• Structured activities for young people with caring responsibilities
Please note that depending on availability of monies, not all funds may be open for
applications at all times.
CARERS ACTIVITIES AND GROUPS
We regularly arrange activities for carers at the Healthy Living Centre and elsewhere such
as Carers Days, drop-in information and advice surgeries, workshops (on such subjects as
dealing with life and how to manage your mobile phone), and social events. All activities
are free, and we arrange either lunch or some other light refreshment, for which there may
be a small charge. If asked, we try to help with the cost of transport and alternative care.
Regular groups and drop-ins are shown below. There is no need to book for these, just
come along:
•
Activities Group for carers of people aged 14+ with Learning Difficulties. Regular
meetings are held at Buddy's, South Farm Road, Worthing and there are also informal
sessions, drop-ins, events and activities. Dates and times vary.
This Carers Support Service factsheet is the property of the Carers Support Service, Worthing & District,
and may be copied in its entirety only, for personal or non-income-generating professional use.
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•
Drop-in and Peer Support in Chanctonbury on the third Monday of each
month between 2pm and 4pm at Little Footsteps Children and Family Centre, 24-26
West Street, Storrington RH20 4EE.
•
Drop-in Surgery and Support for Younger Carers (18-45) of people with working
age mental health issues on the last Tuesday of every month between 10am—12
noon at the Wickbourne Centre, Littlehampton.
•
Generic Arun Health & Wellbeing Drop-in Surgery, held at Arun Civic Centre,
Maltravers Road, Littlehampton. Dates for this vary.
•
Generic Drop-in and Peer Support on the last Wednesday of each month between
5pm—7pm at Methold House, North Street, Worthing BN11 1DU.
•
Generic Drop-in and Peer Support on the 3rd Wednesday of each month between
1pm - 2.30pm at Southwick Community Church, 1-5 Roman Crescent, Southwick.
•
Male Carers Group - this group specifically run for male carers, was set up as male
carers can feel that there aren’t many opportunities for them to talk in a male
environment about their caring situation. Alternate outings and peer support meetings
are arranged. Dates and times vary.
•
Mental Health Carers Support Group – Information, support and social contact for
carers of people with mental health difficulties. This group meets on the 2nd Monday of
each month from 6pm – 8pm at Meadowfield, Swandean Hospital, Arundel Road,
Worthing.
CARERS INFORMATION PACK FACTSHEETS
Our factsheets contain a great deal of local and national information on services available
for carers and the people they care for. The factsheets are available free of charge to
carers and workers, are updated regularly and are readily available from a wide range of
sources e.g. from doctors, West Sussex County Council offices, and of course from CSS,
Worthing & District itself. Selected information from the factsheets can also be read on our
website www.carerswsx.org.uk .
CARERS NEWS
This free newsletter is sent out regularly to all carers and workers on our mailing list. It is a
useful way of keeping in touch with what is going on for carers, both locally and nationally.
Please contact us if you would like to go on or off the mailing list. Carers News can be
made available by post, or email, and in large print if requested.
CHANCE TO HAVE YOUR SAY
It is very important that the people who plan and deliver services for carers are aware of
what is actually needed, and we provide a number of different types of opportunity for
carers to make their voice heard. These include:
• Being on our ‘consultation database’ so that we can ask you for your views when a
particular issue of interest to you comes up
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•
•
•
Being a member of one of the carers policy and planning groups that exist,
such as the Advisory and Review Group
Getting involved in the training of social care staff
Attending the carers conferences and specific events that we organise from time to
time
DETAILS OF CARERS GROUPS
We maintain an updated list of carers groups in the local area.
INDIVIDUAL INFORMATION AND SUPPORT
Many people contact us looking for specific information on their caring situation. We keep
a large library of leaflets and contacts which we can use to suggest help for your individual
circumstances. You are welcome to contact us by phone, in writing, email or in person - if
you wish to come into the office it is best to phone us first to avoid a wasted journey if we
are out. We can also visit you at home to provide information if you are unable to come to
our office.
SHORT BREAK FUNDING
We currently have access to a limited amount of funding for short breaks for carers.
Please contact us to find out more.
SOMEONE TO TALK TO
Sometimes carers just need to talk to someone about how they are feeling, and family may
not understand or be too close to the situation. Any of our staff are happy to lend a
'listening ear', and can also refer you to Phone Support for Carers or Counselling for
Carers for ongoing emotional support if you would like. Please see our factsheet on
Emotional Support for more information.
SPECIALIST CARERS SUPPORT WORKERS
Whilst all of our Carers Support Workers can provide support for the majority of carers’
issues, there are times when specialisms are required, in say dementia, Working Age
Mental Health, Learning Difficulties etc. Our staff can provide this specialist support when
it is needed.
WEBSITE, BLOG and TWITTER
We maintain our own website, where carers and workers can access relevant information
24 hours a day, 7 days a week. The website is regularly updated, and you can also email
us from there. Our emails are checked several times a day, so you won't have to wait long
for a reply.
For more information, contact us Monday to Friday 9am – 5pm at:
Methold House, North Street, Worthing BN11 1DU
Phone: 01903 536378 (information and support)
01903 528600 (admin)
Website: www.carerswsx.org.uk
Email: information@carerswsx.org.uk
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Advice & Information
ADVICE AND INFORMATION
This section lists organisations which can provide general advice and/or information.
AGE UK
Information 0800 0191310
General enquiries 01903 731800
www.ageuk.org.uk/westsussex/
Aims to improve the quality of life of older people and campaigns on issues affecting older
people, their carers and families, to improve services and facilities. Information and advice
service for the county on a wide range of issues. Can provide help to fill in forms, a free
Will Writing service in Bognor Regis, Littlehampton and Mid Sussex, hospital visiting in
Bognor and Worthing and a countywide money advice service. No longer provides an
advocacy service.
BME COMMUNITY SERVICES
01903 211033
www.bme-cs.org.uk
Work to address the needs of groups, families and individuals from black and minority
ethnic communities. Support families and individuals with access to appropriate social and
health care services, advocacy, family crisis intervention, drop-in for victims of abuse,
befriending, mentoring, life skills training, CV writing support, employment advice,
volunteering opportunities, signposting and social activities.
CARERS DIRECT
0808 802 0202
www.nhs.uk/CarersDirect/guide/Pages/Guidetocaring
home.aspx
Part of the ’NHS Choices website’, Carers Direct offers free, confidential information and
advice for carers, including details of local carers support. Lines are open 9am to 8pm
Monday to Friday (except bank holidays), 11am to 4pm at weekends.
CARERS UK
CarersLine 0808 808 7777
(Weds and Thurs 10am – 12 noon and 2pm – 4pm)
www.carersuk.org
Carers UK is a campaigning organisation providing information and advice on all aspects
of caring to both carers and professionals. Has a UK-wide network of offices, branches
and individuals to offer support to carers and provide vital feedback on local practices and
policies towards carers. Carers Rights information packs are available.
CARING FOR SOMEONE WEBSITE
www.direct.gov.uk/en/CaringForSomeo
ne/index.htm
Government website for carers, providing a single point of access to government
information and services. Topics include caring and support services, money matters
including Carer's Allowance, caring for a disabled child, care homes, carers and
employment, health and taking a break and what to do if a care home closes.
This Advice and Information factsheet is the property of the Carers Support Service, Worthing & District,
Information was last checked in April 2012, no responsibility or inferences can be assumed for any
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CITIZENS ADVICE BUREAU (CAB)
08444 771 171
www.citizensadvice.org.uk
Provides general help with community care, consumer and general contracts, debt,
education, employment, housing, actions against the Police, public law and welfare
benefits. The service is confidential, impartial and independent.
• Horsham, Lower Tanbridge Way, Horsham (outreach appointments offered once a
month in Henfield, Steyning, Storrington and Pulborough)
• Lancing & Sompting, Parish Hall, 96 South Street
• Littlehampton, 14-16 Anchor Springs
• Shoreham & Southwick, Pond Road, Shoreham by Sea
• Worthing, 11North Street
DIRECTGOV WEBSITE
www.direct.gov.uk/DisabledPeople
Aims to provide a single point of access to government services and information. The
section for disabled people and unpaid carers covers topics such as independent living,
benefits, health, employment and education. There is also information on charitable
support and links to charities and organisations.
DISABILITY LAW SERVICE (DLS)
020 7791 9800
www.dls.org.uk
Offers confidential, free legal advice to disabled people, their families and carers on
matters such as employment, disability discrimination, community care and welfare
benefits.
ETHNIC MINORITY HELPLINE
0845 758 1649
www.westsussex.gov.uk/your_council
/get_in_touch/contact_us/contact_us_
by_phone.aspx
The service offers help and support to individuals and groups in ethnic minority
communities. Can liaise, give advice and write to relevant authorities on behalf of clients,
putting people in touch with the right contact. Provides information on West Sussex
County Council services in Gujarati, Hindi, Punjabi, Urdu.
HELP POINTS
0845 758 1232 (24 hour)
www.westsussex.gov.uk
A single point of contact for any enquiry by the public about any local government or health
authority service in West Sussex.
• Lancing – Lancing Parish Hall, South Street and Lancing Library, Penstone Park
• Littlehampton - Arun District Council, Maltravers Road
• Shoreham by Sea - Adur District Council, Ham Road
• Storrington – Storrington Library, Ryecroft Lane
• Worthing - Borough Council, Chapel Road and Worthing Library, Richmond Road
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ICIS:(INFORMATION FOR LIFE)
0800 859929
www.icis-info4life.org.uk
www.westsussexcarers.org.uk
Confidential and impartial information service for people of all ages in West Sussex with a
difficulty, disability or illness. Helps people find services offering help on all aspects of
daily living via a freephone Enquiry Line and online databases. ICIS maintains the West
Sussex Carers Online website.
INDEPENDENT LIVING ASSOCIATION (ILA)
0845 601 2399
www.ilawestsussex.org
Aims to support local people with a disability, impairment or caring responsibility by
providing a Direct Payments support service to assist people arrange the care and support
required. Direct Payments allow people to take control of how they use the care money
provided by WSCC. Additional services include assisting people to recruit personal
assistants, independent payroll service to help with tax, national insurance and payslip
paperwork, banking administration and CRB checks.
INFORMATION SHOP FOR YOUNG PEOPLE
www.informationshop.org.uk/
Centres for young people aged 13-25 to obtain information, advice and support on a wide
range of topics, from employment and education to health, housing and leisure. Free
counselling service, sexual health advice, Chlamydia testing, pregnancy tests etc. Also
offers basic careers advice and internet access. Run in conjunction with WSCC Youth
Service.
• Adur - Lancing Youth Centre, Penhill Road, BN15 8HA, also at Shoreham Civic
Centre, and Stepping Stones Children & Family Centre, Fishersgate
• Worthing, Colonnade House, 47 Warwick Street, BN11 3DH
LIBRARY SERVICES IN WEST SUSSEX
There are 36 libraries and 3 mobile libraries in West Sussex, offering a variety of services
including books DVD and audiobook loans, computer access and courses, photocopying
and fax facilities, amongst others. The Housebound Library Service operates out of
Worthing library, for people who are unable to reach their nearest library due to age,
illness or disability.
M-CAS (MACMILLAN AND CITIZENS ADVICE SERVICE FOR
THE WEST SUSSEX COASTAL AREA)
01903 768476
Based at Lancing & Sompting CAB office, this is an impartial and confidential advisory
service providing home visits for people with cancer, their families, carers and others who
may be affected. Catering for individual needs the service can help with debt, money
advice, benefit entitlements, personal problems, housing, employment and many other
issues.
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WEST SUSSEX COUNTY COUNCIL
Help Desks are the initial point of contact in respect of social care. Trained advisers will
tell you what is available through West Sussex County Council and will also give you
information about other care services in your area. The Help Desks are open 9am – 5pm.
• Southern offices - Glebelands, Middle Road, Shoreham by Sea, tel 01273 268800
- Centenary House, Durrington Lane, Worthing, tel 01903 839100
Covers Adur, Worthing & East Arun
• Northern office - County Hall North, Chart Way, Horsham, tel 01243 642555
Covers Chanctonbury
• Out of hours service 01903 694422
WEST SUSSEX CARERS ONLINE WEBSITE
Website maintained by ICIS, providing information and help for carers and ex-carers in
West Sussex. Offers information about caring and caring concerns, searchable database
of local support and services, links to national services, young carers section, news pages,
books and other resources, carers stories and more.
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Benefits and Money Matters
BENEFITS AND MONEY MATTERS
People who have an illness or disability, carers and/or people on a low
income may be entitled to a range of benefits. The regulations on benefits
are complex and change regularly so it is best to seek advice. Your local
Citizens Advice Bureau can give confidential, free, independent, impartial
advice on benefits, entitlements, money problems and debt counselling.
If you are over 60 you can contact your Local Pension Service.
AGE UK MONEY ADVICE SERVICE
01903 731800
www.ageukwestsussex.org.uk
Money advice service that is unbiased, non judgemental and completely confidential.
Aims to assist people over 50 to make informed decisions about the future of their money.
Covers budgeting, pensions, savings and investments, benefits, mortgages and borrowing.
BENEFITS
Benefit Enquiry Line 0800 882200
Carers Allowance Unit 0845 608 4321
Disability Benefits helpline 08457 123456
Pension Service 0845 606 0265
www.direct.gov.uk
Entitlement to benefit is based on various criteria eg National Insurance contribution
record, current income, savings, age, how a disability affects you or the person you care
for, and your individual personal circumstances.
• Attendance Allowance (AA) – you may be able to get Attendance Allowance if you
are aged 65 or over and need help with personal care or supervision to avoid putting
yourself or others in substantial danger. Special rules exist if you are terminally ill - If
you have a progressive disease and are not reasonably expected to live for more than
another six months, there are special rules to help you get Attendance Allowance more
quickly and easily.
• Carers Allowance – if you are caring for someone at least 35 hrs a week, are aged 16
or over, are not earning more than a certain amount per week, and are not in full time
education you may be entitled to this allowance. The person you are caring for must
be receiving AA or, highest or middle rate personal care component of DLA.
• Disability Living Allowance (DLA) – you may get Disability Living Allowance if you
have a physical or mental disability or both, and your disability is severe enough for you
to need help caring for yourself or you have walking difficulties or both, and you are
under 65 when you claim. Special rules exist if you are terminally ill - If you have a
progressive disease and are not reasonably expected to live for more than another six
months, there are special rules to help you get Disability Living Allowance more quickly
and easily. From April 2013 a new benefit, Personal Independence Payment, will
replace Disability Living Allowance (DLA) for disabled people aged 16 to 64.
This Benefits and Money Matters factsheet is the property of the Carers Support Service, Worthing &
District, and may be copied in its entirety only, for personal or non-income-generating professional use.
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•
•
•
•
Help with Health costs – for information regarding claims for exemption
from NHS charges, or help with charges, tel 0845 850 1166. Can provide advice and
information about entitlement to help with prescriptions, dental and optical treatment,
travel to hospital, wigs and fabric supports.
Housing Benefit and/or Council Tax Benefit – You may get Housing Benefit if you
pay rent and your income and capital (savings and investments) are below a certain
level.
Income Support – Income Support is extra money to help people on a low income and
is for people who don't have to sign on as unemployed.
Pension Credit - Pension Credit is an income related benefit for pensioners living in
Great Britain. It is made up of two different parts, Guarantee Credit and Savings Credit.
Benefit Enquiry Line can give free confidential advice and information, and help complete
Disability Living Allowance and Attendance Allowance forms over the phone.
The Local Pension Service Information Point can be contacted to arrange a face to
face appointment on 0845 606 0265 (textphone 0845 606 0285).
CARERS TRUST GRANTS
As a member of Carers Trust network of carers centres, Carers Support Service, Worthing
and District can make an application for funds to contribute towards:
• Equipment to make the carers life easier
Grants are not means tested, but a financial information sheet does need to be completed,
and Carers Trust expect that carers who can afford to pay for these things themselves, will
do so. As availability of funds depends on the fund raising that Carers Trust does, not all
grants are open for applications at all times. Whilst grant applications have to be made
through Carers Support Service, Worthing & District, we do not have any input into the
decision.
www.adviceguide.org.uk/england/benefi
ts_e.htm
A full entry for this service is in the ‘Advice and Information’ factsheet.
CIVIL SERVICE BENEVOLENT FUND
0800 056 2424
www.csbf.org.uk
The service exists to help serving, retired and former Civil Servants (and staff of certain
associated organisations) and their dependants. Assistance may include non-repayable or
repayable grants.
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HORSHAM COMMUNITY DEBT ADVICE SERVICE
01403 258040
www.hdas.co.uk/
Offers a free and confidential debt advice service, without liability, to members of the
public who have financial problems. Is able to negotiate with creditors on client's behalf.
This is mainly for people from Horsham district, but clients from further away are welcome
if they can travel.
JOBCENTRE PLUS - WORTHING
0845 604 3719
Responsible for managing claims and payment of working age benefits such as
Jobseeker's Allowance, Income Support and health related benefits.
MONEY ADVICE AND COMMUNITY SUPPORT
01273 664040
SERVICE
www.macss.org.uk
MACS provides a specialist welfare benefit and debt advice telephone line available to the
general public.
PENSION SERVICE
0845 606 0265
www.dwp.gov.uk/about-dwp/customerdelivery/the-pension-service/
Provide a wide range of information for people aged over 60 on state pensions, Pension
Credit, Disability Living Allowance, Attendance Allowance, Carers Allowance, winter fuel
payments and related benefits.
SSAFA/FORCES HELP
0800 731 4880
www.ssafa.org.uk
Soldiers, Sailors, Airmen and Families Association/Forces Help offers practical and
personal welfare support, financial advice and support, residential care, short-stay
accommodation and a Housing Advisory service.
WEST SUSSEX CREDIT UNION
01903 237221
www.westsussexcreditunion.co.uk/
Non profit making savings and loans co-operative owned by its members. Offers financial
advice and support and aims to provide cost effective and flexible loans and help with
savings strategy.
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Bereavement
BEREAVEMENT
When someone dies there are many decisions and arrangements to be made, at a time of
great personal distress. Practical advice and support may be provided by friends, family,
doctor, nurse, solicitor, minister of religion or anyone involved with you or the person who
has died. The Funeral Director can also explain about arrangements that have to be
made. Citizens Advice Bureaux can provide confidential, independent advice and
information on all aspects of the situation.
You may feel you want to talk to someone who is outside your immediate family or with
other people who have been through a similar experience, and there are a number of
organisations that offer a listening ear or counselling service and others deal especially
with people who have been bereaved.
AGE UK
0800 169 6565
www.ageuk.org.uk/Documents/EN-GB/Informationguides/AgeUKIG03_When_someone_dies.pdf?dtrk=true
Publishes free information guides including what to do when someone dies.
BRITISH HUMANIST ASSOCIATION
020 7079 3580
www.humanism.org.uk
Organises non-religious ceremonies for funerals, weddings and baby-namings. Provides
its members with fellowship and support through newsletters, local groups, campaign
networks and conferences.
CARERS SUPPORT SERVICE, WORTHING &
DISTRICT
01903 536378
Can provide useful contact information following a death, and a listening ear. Can also
give details of organisations which offer bereavement counselling.
CHILD BEREAVEMENT CHARITY
01494 568900
www.childbereavement.org.uk
Support for families who have experienced the death of a baby or child, or children who
have experienced the death of a parent or sibling.
CHILD DEATH HELPLINE
0800 282986
Freephone for mobiles: 0808 00619
www.childdeathhelpline.org.uk/
Helpline for bereaved parents and anyone affected by the death of a child (of any age) to
talk to someone who has been in a similar situation. The confidential helpline is operated
from Great Ormond Street and Alder Hey Children's Hospitals.
This Bereavement factsheet is the property of the Carers Support Service, Worthing & District, and may
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Bereavement
CHURCHES AND FAITH GROUPS
Many churches and faith groups offer support to people who are bereaved even if they are
not members of their community. Contact details can be found in the Yellow Pages or on
the Internet.
COMPASSIONATE FRIENDS
0845 123 2304
www.tcf.org.uk
Supports parents, grandparents and siblings after the death of a child, of any age and any
cause.
CRUSE BEREAVEMENT CARE
01903 205900 & 08454 4779400
www.cruse.org.uk
For young people www.rd4u.org.uk/
Free and confidential counselling for all people who are bereaved. There are two local
groups, the Friendship Group has a coffee morning Thursday and a social evening on
Tuesday. The Early Bereavement Group, for those recently bereaved, meets for a coffee
morning fortnightly on a Tuesday. One to one counselling also available.
FUNERAL COSTS
www.dwp.gov.uk/advisers/claimforms/sf200_print.pdf
You can only get help with the cost of a funeral if it appears reasonable for you to accept
responsibility for the funeral arrangements and cost. If you are on a low income and need
help to pay for a funeral you are arranging, you may be able to get a Funeral Payment
from the Social Fund. You might have to repay some or all of it from the estate of the
person who died. To possibly be eligible for a payment from the Social Fund you must be
in receipt of a qualifying benefit. For further information contact your local Jobcentre Plus
office.
INTERIM BEREAVEMENT GROUP
01903 207366
Interim is a group for people bereaved in the last two years, which meets on the 2nd and
4th Tuesday of the month at Broadwater Parish Centre, Worthing.
LESBIAN AND GAY BEREAVEMENT
PROJECT
020 7837 3337
www.londonfriend.org.uk/index.php
Run by London Friend, the oldest established LGBT charity in London, this project offers
support and practical information to LGBT callers who have been bereaved or are
preparing for bereavement.
16
Bereavement
REGISTERING A
DEATH
01243 642122
www.westsussex.gov.uk/living/births_marriages_and_de
aths/registration_offices.aspx
West Sussex is a unified district. This means you can register a death that occurred in
West Sussex, at any West Sussex registration office. However this is by appointment
only, at Bognor Regis, Burgess Hill, Chichester, Crawley, East Grinstead, Haywards
Heath, Horsham, Littlehampton, Midhurst, Shoreham by Sea, Storrington, Worthing.
SURVIVORS OF BEREAVEMENT BY
SUICIDE (SOBS)
0844 561 6855
www.uk-sobs.org.uk/
A national registered charity for relatives or friends who have lost a loved one to suicide.
WAY FOUNDATION
0300 012 4929
www.wayfoundation.org.uk/
A self-help group for men and women who were bereaved by the loss of their partner
before their 51st birthday. The main aim is to help those who were widowed young to
rebuild their lives by helping one another, whether married or not or with children or not.
WINSTONS WISH
08452 030405
www.winstonswish.org.uk/
Winston's Wish helps bereaved children and young people rebuild their lives after a family
death. Offers practical support and guidance to families, professionals and to anyone
concerned about a grieving child.
WORTHING BEREAVEMENT CARE
0790 162 1706
www.worthingbereavementcare.org.uk
Help for bereaved people through the grieving process by providing confidential listening
and support. The service is free and available for people in Worthing, Clapham, Ferring,
Findon, Lancing, Patching and Sompting.
17
BME Services
BME SERVICES
This section lists organisations which can provide advice and/or information on Black and
Minority Ethnic issues.
ASIAN PEOPLES DISABILITY ALLIANCE
(APDA)
020 8459 1030
www.apda.org.uk
APDA's aim is to provide a full range of the highest level of services to disabled people,
their families and their carers, based on their specific personal, cultural and community
needs.
BLACK AND ASIAN THERAPISTS ONLINE (BAATO)
www.baatn.org.uk/
The BAATO network seeks to reflect the many who are committed, passionate and
actively engaged in addressing the psychological needs of Black and Asian people in
Britain.
BME COMMUNITY SERVICES
01903 211033
www.bme-cs.org.uk
Work to address the needs of groups, families and individuals from black and minority
ethnic communities. Support families and individuals with access to appropriate social and
health care services, advocacy, family crisis intervention, drop-in for victims of abuse,
befriending, mentoring, life skills training, CV writing support, employment advice,
volunteering opportunities, signposting and social activities.
CHINESE MENTAL HEALTH
ASSOCIATION
020 7613 1008
www.cmha.org.uk
Provide a diverse range of services with the aim of serving Chinese people who suffer
from mental health related issues and problems. Can also offer help to their carers who
may not be familiar to the nuances of traditional Chinese culture. The Association
provides user self-advocacy, befriending, interpreting, face to face counselling, telecounselling, community housing support, gambling care, information and advice and also
has user social groups. All workers speak Cantonese, Mandarin and English.
COMMISSION FOR RACIAL EQUALITY
0845 604 6610
www.equalityhumanrights.com
The Commission works to eliminate discrimination, reduce inequality, protect human rights
and to build good relations, ensuring that everyone has a fair chance to participate in
society.
This BME Services factsheet is the property of the Carers Support Service, Worthing & District, and may
18
BME Services
COMMUNITY DEVELOPMENT
01903 211033
ORGANISATION-SUSSEX, WORTHING
www.cdo-sussex.org
OFFICE
Sexual health and HIV prevention project for individuals, families and groups from Black
African and Afro Caribbean communities living in West Sussex and Brighton and Hove.
DESTIGMATIZE
destigmatize.anxietyuk.org.uk/
This website aims to provide information and support for sufferers of anxiety disorders
mainly, but not exclusively, in the Asian population.
EMERGENCY MULTI-LINGUAL
PHRASEBOOK
www.dh.gov.uk/en/Publicationsandst
atistics/Publications/PublicationsPoli
cyAndGuidance/DH_4073230
Phrasebook covers the most common medical questions and terms to help first contact
staff communicate with patients who do not speak English.
ETHNIC MINORITY HELPLINE
0845 758 1649
www.westsussex.gov.uk/your_council
/get_in_touch/contact_us/contact_us_
by_phone.aspx
The service offers help and support to individuals and groups in ethnic minority
communities. Can liaise, give advice and write to relevant authorities on behalf of clients,
putting people in touch with the right contact. Provides information on West Sussex
County Council services in Gujarati, Hindi, Punjabi, Urdu.
EXPANDING COMMUNITIES PROJECT
01903 726229
www.arun.gov.uk/main.cfm?type=EX
PANDINGCOMMUNITI&objectid=5653
Project which develops links with and supports migrant communities living in Arun and
Chichester areas, including signposting and supporting access of the migrant communities
to appropriate organisations.
FRIENDS FAMILIES AND TRAVELLERS
(FFT)
01273 234 777
www.gypsy-traveller.org/
A registered charity working towards a more equitable society where everyone has the
right to travel and to stop without constant fear of persecution because of their lifestyle.
Consequently, FFT does not restrict it’s services to one particular group nor does it
represent one group against another, but rather responds to the needs of the community
as a whole.
19
BME Services
MOVING ON UP
www.movingonup.info
Website for young people from minority ethnic communities to find out about transition. It is
especially for young people with a learning disability and their supporters and families
although any young person at transition stage may find it helpful.
MUSLIM COMMUNITY HELPLINE
020 8904 8193
http://muslimcommunityhelpline.org.
uk/
Aims to provide any Muslim girl or woman in a crisis with a free, confidential listening
service and referral to Islamic consultants, plus practical help and information where
required.
NATIONAL BME MENTAL HEALTH
NETWORK
0207 582 0400
www.afiya-trust.org/index.php/ourwork/mental-health/154-national-bmemental-health-network-.html
Aims to reduce inequality and promote good practice in mental health for people from an
ethnic or minority background. Open to all BME voluntary and statutory sector
organisations, carers, users and anyone concerned with poor BME Mental Health.
SUSSEX BME PARTNERSHIP
http://sites.google.com/site/sussexbm
epartnership/
Promotes good race relations and racial harmony between communities. Aim to provide
real help and support for Black and Minority Ethnic individuals and communities in Sussex.
TELEPHONE ADVICE LINE FOR
TRAVELLERS
0845 120 2980
www.gypsy-traveller.org/yourrights/law/travellers-advice-team/
The Travellers Advice Team at the Community Law Partnership offer direct access to
experienced advisers on questions of evictions, planning matters, issues involving official
caravan sites and other matters. The helpline can provide legal advice by telephone and
post.
20
Carers Groups
CARERS GROUPS
Carers groups meet regularly and offer the chance to talk with other
people who may have experienced feelings and situations similar to your
own, social activities, information and some may also be involved in
campaigning or other action. Some groups are for any carers in the local
area and others focus on a particular illness, condition or disability.
07765262524 or 07867786540
ADHD PARENT SUPPORT GROUP
Meeting every other Tuesday (term time only) from 12 noon – 1pm, at the Maybridge
Children's Family Centre, 77 The Strand, Worthing BN12 6DR, this group is run by 2
mums with children with ADHD.
ALZHEIMERS SOCIETY CARERS GROUPS
•
•
•
01903 262666 (Coastal)
01403 213017 (Steyning and
north Sussex)
Every 3rd Wednesday of the month from 2pm – 4pm at the Information Centre, 27
Stone Lane, Worthing. Respite is available on request. The venue is accessible for
people in wheelchairs with entrance ramp and accessible toilet.
Every 1st Monday of each month (not bank holidays) from 2.30pm – 4.30pm at The
Laurels, Rustington. Transport and respite available on request. The venue is
accessible for people in wheelchairs, all on ground floor with ramped entrance and
accessible toilet.
Every 4th Tuesday of the month 2pm – 4pm at Dingemans Court, Shooting Field,
Steyning.
BRITISH EPILEPSY ASSOCIATION
(EAST AND WEST SUSSEX)
01273 508620
National helpline 0808 800 5050
Small, informal group providing information, advice and support for people with epilepsy
and their families. Coffee mornings monthly on last Tuesday of month.
BUTTERFLIES BREAST
CANCER SUPPORT GROUP
01903 507343
http://butterfliesbreastcare.wordpress.com/
Group for breast cancer patients, family and friends. Meets every other month at the East
Worthing Community Centre, Pages Lane, Worthing, BN11 2QN from 7pm – 9pm.
This Carers Groups factsheet is the property of the Carers Support Service, Worthing & District, and may
be copied in its entirety only, for personal or non-income-generating professional use. No responsibility
or inferences can be assumed for any inaccuracies, inclusions or omissions.
Information last checked July 2012.
21
Carers Groups
CARERS SUPPORT SERVICE,
WORTHING & DISTRICT
01903 536378
The Carers Support Service runs several support groups and drop-ins for carers. Please
ring for more details of any of these groups including dates and venues:
•
Activities Group for carers of people aged 14+ with Learning Difficulties. Regular
meetings are held at Buddy's, South Farm Road, Worthing and there are also informal
sessions, drop-ins, events and activities. Dates and times vary.
•
Drop-in and Peer Support in Chanctonbury on the third Monday of each month
between 2pm and 4pm at Little Footsteps Children and Family Centre, 24-26 West
Street, Storrington RH20 4EE.
•
Drop-in Surgery and Support for Younger Carers (18-45) of people with working
age mental health issues on the last Tuesday of every month between 10am—12
noon at the Wickbourne Centre, Littlehampton.
•
Generic Arun Health & Wellbeing Drop-in Surgery, held at Arun Civic Centre,
Maltravers Road, Littlehampton. Dates for this vary.
•
Generic Drop-in and Peer Support on the last Wednesday of each month between
5pm—7pm at Methold House, North Street, Worthing BN11 1DU.
•
Generic Drop-in and Peer Support on the 3rd Wednesday of each month between
1pm - 2.30pm at Southwick Community Church, 1-5 Roman Crescent, Southwick.
•
Male Carers Group - this group specifically run for male carers, was set up as male
carers can feel that there aren’t many opportunities for them to talk in a male
environment about their caring situation. Alternate outings and peer support meetings
are arranged. Dates and times vary.
•
Mental Health Carers Support Group – Information, support and social contact for
carers of people with mental health difficulties. This group meets on the 2nd Monday of
each month from 6pm – 8pm at Meadowfield, Swandean Hospital, Arundel Road,
Worthing.
HEADWAY IN WEST SUSSEX
07531 146516
www.headway-in-west-sussex.org.uk
Support, information and advocacy for anyone with an acquired brain injury, their families,
carers or concerned professional in West Sussex. Regular support group meetings to
make friends, share experiences, listen to expert speakers, access Headway literature,
signposting to other services. Meets first Wednesday of every month from 6pm-8pm at
Buddys, South Farm Road, Worthing.
22
Carers Groups
01903 772046
www.hda.org.uk
Provides support, information and advice for sufferers, carers and those at risk of
developing the disease. Covers East and West Sussex. Meetings are held at Cliffe Hall,
Cliffe High Street, Lewes.
HUNTINGTONS DISEASE ASSOCIATION
01903 207004
www.leucan.org.uk/
LEUCAN
Support group for families with children who have cancer, leukaemia or haematological
conditions.
MOTOR NEURONE DISEASE
ASSOCIATION
01243 514155
www.mndwestsussexsouth.co.uk/
Local support group offers advice, support and information and specialised equipment for
local people with Motor Neurone Disease. Meetings take place on the 4th Monday each
month (not bank holidays) at the Laurels Day Centre, Sheepfold Avenue, Rustington at
7.30pm.
PARKINSONS DISEASE SOCIETY
01903 691937
www.parkinsons.org.uk
Support group offers social contact and information for people with Parkinson's Disease
and their carers. Speech improvement Tuesday, 2-4pm at Methodist Church Hall, Bury
Drive, Goring-by-Sea. Also has a welfare service, regular monthly meetings and
telephone befriending service. Indoor bowls group meets at Adur Indoor Bowling Club,
Southwick, Monday, 1-2.30pm, offering one to one support and guidance for people with
physical disabilities
Parkinson's UK - West Sussex Information and Support Worker - Jonathan Smith, tel:
08442 253667, provides information and emotional support to people with Parkinson's and
their families and carers in West Sussex. Also provides information about benefits and
local services, visits to home, residential homes or hospital can be arranged if necessary.
REMEMBER - THE CHRONIC FATIGUE SOCIETY
(WEST SUSSEX ME/CFS SUPPORT GROUP)
01273 832202
www.remembercfs.org.uk
Support, advice and information for people with Myalgic Encephalitis (ME) or Chronic
Fatigue Syndrome (CFS).
Advice Line 0300 5000 927
www.rethink.org
National advice service to people with severe mental illness. Support to sufferers of
schizophrenia and other severe mental illnesses and to their relatives, friends and carers.
Comprehensive advice on severe mental illness, treatment and community care including
welfare benefits and housing.
RETHINK MENTAL ILLNESS
23
Carers Groups
SPEAKABILITY
01903 770251
www.speakability.org.uk
For people with dysphasia, aphasia and carers of people with communication difficulties
following a stroke, head injury or brain tumour. Group meets on the last Wednesday of
each month at United Reformed Church Hall, Shaftesbury Avenue, Goring.
STROKE SUPPORT GROUPS
•
•
Adur Stroke Club - Offers companionship and social activities for members. Meets on
Fridays from 2- 4pm at Marsh House, Park Lane, Southwick. Tel: 01273 453760.
Worthing and District Stroke Club (Kestro) - Meet every Friday between 2pm and
4pm at the United Reform Church Shaftesbury Avenue, Goring by Sea (no meeting in
August). Tel: 01903 240688.
07519 280950
www.sussexadhd.org.uk
Provides information, advice and support for people affected by Attention Deficit
Hyperactivity Disorder, or those caring for them.
SUSSEX ADHD SUPPORT SERVICE
WORTHING DIABETIC CLUB
01903 244628
Social group which enables people with diabetes and carers to meet for talks and social
events. Meets at Postgraduate Centre, Worthing Hospital, Park Avenue, Worthing on the
first Monday of each month at 3pm.
24
Children with Special Needs
CHILDREN WITH SPECIAL NEEDS
Services for children with special needs are offered by a number of organisations including
the NHS, West Sussex County Council, Education Services and voluntary organisations.
Information in the factsheets ‘West Sussex County Council’ and ‘Health Services’ may also
be of help. ICIS 0800 859929 can provide specialised information.
ADDISS
020 8952 2800
www.addiss.co.uk
The Attention Deficit Disorder Information and Support Service provides information and
resources about Attention Deficit Hyperactivity Disorder (ADHD) to anyone who needs
assistance - parents, sufferers, teachers or health professionals. Information is available
from publications through the website with a range of resources about ADHD and
associated conditions.
ADHD PARENT SUPPORT GROUP
07765262524 or 07867786540
Meeting every other Tuesday (term time only) from 12 noon – 1pm, at the Maybridge
Children's Family Centre, 77 The Strand, Worthing BN12 6DR, this group is run by 2
mums with children with ADHD.
ADHD SUSSEX SUPPORT GROUP
07519 280950
www.sussexadhd.org.uk
Support group for people with and/or caring for someone with ADHD. Provides regular
drop-in sessions, phone helpline, newsletter, study days and talks, and information packs
and library.
ADUR SPECIAL NEEDS PROJECT (ASP)
01273 441866
Provides weekend respite on the second and fourth weekend of each month except
August, from 9.30am - 3pm Saturday and Sunday for 5-23 year olds at the Glebelands
Day Care Centre. They also run a summer scheme in the summer holidays.
ASHDOWN CLUB FOR CHILDREN WITH SPECIAL NEEDS
01903 528607
www.guildcare.org
Based at 6-8 Ashdown Road, Worthing, the Ashdown Club offers a safe and stimulating
environment for children with a wide range of special needs, both physical and
behavioural, providing play and fun while being supervised. The club runs on Saturdays
and 20 school holiday sessions. There is a youth club aimed at children aged 12-18 which
runs on Wednesday evenings and occasional sessions for siblings.
CAMELIA BOTNAR CHILDRENS CENTRE
01903 504077
Based at Wellesley Avenue, Goring-by-Sea, Worthing, this is a purpose built independent
pre-school play centre for children with special needs, open Mon – Fri 50 weeks of the
year.
This Children with Special Needs factsheet is the property of the Carers Support Service, Worthing &
No responsibility or inferences can be assumed for any inaccuracies, inclusions or omissions.
25
CHALLENGING BEHAVIOUR FOUNDATION
01634 838739
www.thecbf.org.uk
Offers information and support to parents, carers and professionals of people with severe
learning difficulties that present challenging behaviour.
CHANCTONBURY COMMUNITY PLAYSCHEME
01903 741246
www.ccps-sussex.org.uk
Provides a summer play scheme for children aged 5 – 19 years with learning difficulties
(must have a statement of special educational needs). Activities are matched to the
children’s ability and needs and range from wheelchair ice skating to music workshops and
from fashion shows to visits to the funfair.
CHILDREN AND FAMILY CENTRES
Several Children and Family Centres, affiliated to West Sussex County Council, have been
set up locally offering a one-stop shop for parents and children with play sessions, dropins, adult and family education, family outreach, information on family related issues and
access to family health care. Parents are welcome to drop-in to their local centre and see
what is on offer.
Adur
• Boundstone Lancing – 01903 276850
• Lancing – 01903 276898
• Kingston Buci Shoreham – 01273 467998
• Stepping Stones Fishersgate – 01273 467980
Arun
• Angmering – 01903 276893
• East Preston – 01903 270470
• Littlehampton – 01903 276840
Chanctonbury
• Little Footsteps Storrington – 01903 270444
• Rural Henfield – 01403 864668
• Upper Beeding – 01903 270459
Worthing
• Vale School Findon – 01903 270455
• Foot Prints Worthing – 01903 270424
• The Wave Worthing – 01903 276869
• Worthing – 01903 270412
• Maybridge Worthing – 01903 276890
• Durrington – 01903 276888
26
CHESTNUT TREE HOUSE
0845 450 5820
www.chestnut-tree-house.org.uk
Children’s hospice for children and young people from 0 -19 years of age with progressive
life-limiting and life threatening illnesses. Offers respite care, crisis care, day care, end of
life care and bereavement support for children and adults.
CHILD DISABILITY TEAMS
Chanctonbury – 01403 246456
Worthing & Adur – 01903 270288
Arun 01243 642424
Teams set up by West Sussex County Council (Children and Young People’s Services) to
meet the needs of severely disabled children and their families. Includes a sitting service
for children with disabilities in their own home, providing a break for parents and carers.
CONTACT A FAMILY (CAF)
0808 808 3555
www.cafamily.org.uk
National charity for any parent or professional involved with or caring for a child with any
special need or rare disorder. Services include putting families in touch with support
groups for specific medical conditions as well as linking individual families affected by rare
disorders.
DREAMS COME TRUE
0800 018 6013
www.dctc.org.uk
Nationwide charity whose aim is to lift the spirits of seriously and terminally ill children
(aged 2 - 21 years inclusive), by enabling them to fulfil their most treasured dreams.
EDUCATION
Many children will have special educational needs of some kind at some time during their
education. Schools and other organisations can help most children overcome the barriers
their difficulties present quickly and easily. But a few children will need extra help for some
or all of their time in school. For example they may have difficulties with:
• All of the work in school
• Reading, writing, number work or understanding information
• Expressing themselves or understanding what others are saying
• Making friends or relating to adults
• Behaving properly in school
• Organising themselves
• Some kind of sensory or physical need which may affect them in
school
Further information can be found in the booklet ‘Special Educational Needs, a Guide for
Parents’. To obtain a copy contact the Parent Partnership Service on 0845 075 1008, or
direct from DfES Publications Centre on 0845 602 2600. Website: www.dfes.gov.uk
27
FACE2FACE
0844 8009189
www.face2facenetwork.org.uk
Face 2 Face is a network of trained volunteer befrienders who can help parents make
positive adjustments to the news that their child has a disability.
FAMILY FUND
08449 744099
www.familyfund.org.uk
Helps families of severely disabled or seriously ill children with grants related to the care of
the child including holidays, leisure, laundry equipment, driving lessons and more. Aims to
help all families with an income of £23,000 pa or less.
FAMILY RESOURCE TEAM – COUNTY TEAM
01903 236562
Team providing a service to anyone in the county with children and young people, their
families and carers who are having problems at home or in school and at risk of family
breakdown. Services include time-limited family work, individual work with children and
young people, parent support and education, group work, crisis response and school
support programme.
FAMILY SUPPORT WORK
01273 425790
www.familysupportwork.org.uk
Works intensively with families in East and West Sussex to overcome difficult periods in
their lives with positive emotional and practical advice. Offers home visits, one-to-one
meetings, support groups and drop-ins as well as signposting to other agencies for legal
and financial issues.
HOME START
0800 0686368
www.home-start.org.uk
Home Start is a charity which offers free support, friendship and practical help to families
with at least one child under 5. Families are visited regularly in their own homes by
volunteers. Local Home Start offices are at:
• Arun, tel: 01903 889707
• Crawley & Horsham, tel: 01293 416327. www.home-startcrawleyandhorsham.org.uk
• Worthing & Adur, tel: 01903 236 916. www.wahomestart.org.uk
I CAN
0845 2254071
www.ican.org.uk &
www.talkingpoint.org.uk
Educational charity that helps children with speech and language difficulties.
IPSEA (INDEPENDENT PANEL FOR SPECIAL
0800 0184016
EDUCATION ADVICE)
www.ipsea.org.uk
Offers free and independent advice and support on education matters for parents of
children with special educational needs.
28
LEISURE ACTIVITIES FOR PEOPLE WITH SPECIAL
NEEDS
ICIS hold comprehensive up to date information and contact details of
clubs and leisure activities available throughout the county for adults and
children.
LOOK
0800 859929
01293 454454
www.look-uk.org
Look Sussex is a charity providing information and support for families in East & West
Sussex who have a child or young adult with a visual impairment.
NATIONAL CHILDREN’S BUREAU
020 78436000
Their mission is to advance the well-being of all children and young people across every
aspect of their lives. Has a library and information service, publications and training and
consultancy. Some publications are free.
PARENT PARTNERSHIP SERVICE – WEST
SUSSEX
0845 0751008
http://wsgfl.westsussex.gov.uk/pp
Service for parents and carers of children with special educational needs. Can provide
advice and information on educational issues, has a Parental Supporter Scheme for
parents and carers in need of assistance and support when aspects of their child’s special
educational needs are being discussed or assessed. Produces a termly newsletter,
arranges information events for parents and carers, and works with voluntary networks
and service providers to promote greater understanding and working together in respect of
special educational needs.
PHAB SUSSEX
01273 821789
Aims to promote and encourage adults and children with and without physical disabilities
to come together on equal terms, to achieve complete integration within the wider
community, mainly through Junior and Senior clubs and projects.
PORTAGE SERVICE – WORTHING
01903 242558
Home visiting educational service for families with pre-school children who have additional
support needs.
REACH - THE ASSOCIATION FOR CHILDREN WITH
HAND OR ARM DEFICIENCY
0845 1306225
www.reach.org.uk
Parent support organisation providing contact with other families with similar problems.
29
REACH OUT website
www.reachoutwestsussex.org.uk
This website is a comprehensive online information directory for disabled young people,
their families and professionals, in West Sussex.
SATURDAY CLUB
01903 821437
www.worthingscope.org.uk
Run by Worthing & District Scope for children with cerebral palsy and their families.
The group meets on the last Saturday of the month and welcomes the whole family to
meet and play.
SMILE SUPPORT AND CARE
01903 723333
Charity providing respite care and support to parents of children with disabilities in their
own home. Care is provided for children aged up to 19 with varying disabilities and
behavioural problems. Covers Portsmouth to Brighton and north to Crawley and
surrounding areas.
SIBS
01535 645453
www.sibs.org.uk
Sibs is for the child or adult brothers and sisters of people with disabilities. Their aim is to
enhance the lives of siblings by providing them with information and support, and by
influencing service provision for siblings throughout the UK.
SITTING SERVICE
01403 229900
Sitting service for children with disabilities in their own home, in order to offer a break for
parents and carers. Referral is via West Sussex County Council helpdesk.
SNAP - WORTHING
01903 213611
Drop-in for parents of children with special needs. Take the child, their brothers or sisters
under five, a friend or go alone. Chat over a cup of tea or coffee, share experiences, find
out about other relevant groups or share new skills for living with a child with special
needs. The premises are fully accessible with a wheelchair accessible toilet and parking.
THE HUB, LITTLEHAMPTON
01903 712940
Multi agency team affiliated to West Sussex County Council Childrens Services, providing
easier access to family support services for children and young people and their families.
The team delivers family support, advice and help to parents and children. Area(s)
covered: East Arun.
30
SAMUEL’S WORLD WEBSITE
www.samuelsworld.co.uk
This website offers support, advice and a listening ear for parents of children with Tourette
Syndrome, attention deficit hyperactivity disorder (ADHD), Aspergers Syndrome and
obsessive behaviour disorder.
WELLSPRING WEST SUSSEX
07984 179772
www.wellspringwestsussex.org.uk
This registered charity is for children and young people with disabilities and special needs,
and their parents and carers in West Sussex. A free, quarterly newsletter is produced
providing information about local and national services, leisure opportunities and articles
focusing on issues of interest.
WEST SUSSEX COUNTY COUNCIL CHILDREN AND
YOUNG PEOPLES SERVICES
Social care workers support children in their families and communities through integrated
service delivery area (ISDA) teams, child disability teams (CDTs) and occupational therapy
teams.
ISDA teams work with children with additional needs, but not those with complex
disabilities. You can contact your local ISDA by calling 01243 642 555.
Child disability teams provide a social work service to children who have severe and/or
complex disabilities and their families. They can offer advice and assess your child’s
needs and your needs as a parent carer and discuss possible services with you, including
care in your home, short breaks, and activities for your child. For the Child Disability Team
covering Chanctonbury phone: 01403 246450, for Worthing & Adur phone 01903 839015,
and for Arun phone 01243 642424.
Staff in Childrens Occupational Therapy assess children and recommend ways to help
them to be as independent as possible at home. Eg they may suggest equipment, advise
on adaptations to your home to make caring for your child easier and safer, assist with
getting ramps, handrails and other equipment, or help you to apply for grants that may be
available. You can contact children’s occupational therapy through OT Connect, phone
01903 839100.
WEST SUSSEX PARENTS FORUM
07528 418149
www.westsussexparentsforum.co.uk
This forum run by parents for parents is a friendly group of parents who meet to discuss
real issues affecting children and young people aged 0 – 25 with learning difficulties and
disabilities in West Sussex, and aims to give parents a voice in influencing support
services available and service providers. Whilst it is unable to operate as an individual
advisory or support service it can signpost parents to organisations which can help.
31
WEST SUSSEX CHILDRENS INFORMATION
01243 777807
SERVICE
• The Children's Information Service - a central point of information about all aspects of
childcare for parents and carers
• The FIRST programme consists of training, support and advice to help early years and
childcare practitioners provide the best possible experience for all children in their
setting,
• Contact for Children and Family Centres (under fives) in West Sussex.
WHERE DO I GO FROM HERE?
This free guide for parents, produced to assist parents find out what services are available
and who can help, is available from West Sussex County Council (Social Care).
WORTHING AND DISTRICT SCOPE
FIELDWORK SERVICE
01903 522366
A local charity that offers support and services to adults and children with cerebral palsy
and their carers.
WORTHING KIDS & DAPPER SNAPPER
07570 768893
www.wkds.org
A support group for children and their families who have downs syndrome, autism,
cerebral palsy and numerous other undiagnosed or unique conditions.
YOUNG MINDS
0808 8025544
www.youngminds.org.uk
National charity committed to improving the mental health of all babies, children and young
people. Services include the Parents' Information Service helpline for anyone with
concerns about the mental health of a child or young person, YoungMinds Consultancy
and YoungMinds seminars and training. Produces information leaflets and booklets for
young people, parents and professionals and publishes a magazine.
32
Complaints
COMPLAINTS
Most organisations encourage people to comment on the service or services they
provide. You may be pleased with a service or have a suggestion to make and
many organisations see these comments as a way of feeding back to staff who
have done well or making improvements to their service. When people are
dissatisfied with a service they are often reluctant to complain, fearing that
the fact that they have complained will affect the service they receive in the
future; this should NOT happen. Complaining can result in an apology,
explanation or other action and may change or improve the service for the
future. The process of complaining can sometimes be difficult, but there are
people who can help.
Each service or organisation will have its own complaints procedure. For details contact
the organisation direct and ask for a copy of their complaints procedure and put your
complaint in writing as soon as possible and keep a copy of the letter for future reference.
Carers Support Service, Worthing & District can support you in making a complaint if you
should need to.
COMMISSION FOR LOCAL ADMINISTRATION IN
ENGLAND
0300 061 0614
www.lgo.org.uk
Deals with complaints from members of the public against local authorities and certain
other bodies, including education admission appeal panels and adult social care providers
such as care homes and home care providers. Makes decisions independently of all
Government Departments, councils and politicians.
ICAS (INDEPENDENT COMPLAINTS ADVOCACY
SERVICE)
01892 540490
www.seap.org.uk/icas
Service commissioned by the Department of Health to provide independent and
confidential advocacy support to anyone wishing to raise a concern or make a complaint
about any aspect of their NHS treatment or service.
NATIONAL HEALTH
SERVICE
01903 705087
www.westsussex.nhs.uk/
If you're not happy with the care or treatment you've received or you've been refused
treatment for a condition, you have the right to complain, have your complaint investigated,
and be given a full and prompt reply. The NHS Constitution explains your rights when it
comes to making a complaint. You have the right to:
• have your complaint dealt with efficiently, and properly investigated,
• know the outcome of any investigation into your complaint,
This Complaints factsheet is the property of the Carers Support Service, Worthing & District, and may be
copied in its entirety only, for personal or non-income-generating professional use. No responsibility or
inferences can be assumed for any inaccuracies, inclusions or omissions.
Information last checked June 2012.
33
Complaints
•
•
•
take your complaint to the independent Parliamentary and Health Service
Ombudsman if you're not satisfied with the way the NHS has dealt with your complaint,
make a claim for judicial review if you think you've been directly affected by an unlawful
act or decision of an NHS body, and
receive compensation if you've been harmed.
You can complain either to the service that you're unhappy with, or you can complain to
your local primary care trust (NHS West Sussex in this area) that commissioned the
service.
PALS
01903 505456
Provides a free and confidential service for patients, relatives or carers and the public who
would like information about local health services, advice and support or help to resolve
any issues, concerns or queries on any aspect of care provided by NHS West Sussex.
PALS will also give advice on how to solve problems or queries and help make it easier to
find the way round NHS services. Will also advise on the formal NHS complaints
procedure and how to make a complaint.
WEST SUSSEX
COUNTY COUNCIL
01243 777100
www.westsussex.gov.uk/your_council/get_in_touch/com
ments_compliments_and/how_do_i_make_a_comment_co
mpl.aspx
Aims to deal with complaints within 10 working days, with a maximum of 20. If complaints
are still not resolved at this stage then the customer relations team can advise on future
steps to take. Special Educational Needs Appeals, Schools Admissions Appeals and
Children's Placement Appeals are dealt with by other departments. Complaints about
schools must go to the schools themselves as each school has it's own complaints
procedure.
This Complaints factsheet is the property of the Carers Support Service, Worthing & District, and may be
inferences can be assumed for any inaccuracies, inclusions or omissions.
Information last checked June 2012.
34
Dementia
DEMENTIA
This section lists organisations which can provide advice, information and/or support on
Alzheimers Disease and other forms of dementia.
ACTIVE MINDS ACTIVITY DAY CLUB
07754142460
Active Minds Activity Club is for people with early stages of dementia in need of activity,
socialisation, motivation and stimulation, and also offers respite for carers in need of a
short break. Lunch and refreshments are offered, and the sessions run from 10am – 4pm
on Wednesday, Thursday and Friday each week, at Dial Post Village Hall.
ADMIRAL NURSING DIRECT
Information line 0845 257 9406
Admiral Nursing Direct is a national helpline for people with dementia, their carers, friends,
family and professionals. The service is run by Admiral Nurse’s specialist dementia
nurses and is available Tuesdays and Thursdays from 11am - 8.45pm and Saturdays from
10am - 1pm.
ALZHEIMERS SOCIETY, COASTAL
Information 01903 690490
Care services 01903 262666
Centre Club 01903 267902
www.alzheimers.org.uk
Provides information, support and advice to people with Alzheimer’s disease and other
forms of dementia and their families, including advocacy for the cared-for person.
•
•
•
•
Advocacy & Dementia Awareness Training – 01903 262071
The advocate works directly with people who have dementia, enabling them to express
their wishes, supporting them in conjunction with social services or health
professionals. The advocate also provides Dementia Awareness Training for health
professionals
Alz Café – 01903 267902, Thursday evening 6.30pm – 8.30pm
A social evening event at 27 Stone Lane, Worthing, for younger people with dementia
and their friends and families. Refreshments and entertainment provided.
Carers Support Groups – 01903 690490. An opportunity for carers to meet socially
to share experiences and information that can support their caring role. £1 entry
includes refreshments and raffle ticket. Respite care available, currently £5.
The Laurels, Rustington : 2.30pm – 4.30pm, 1st Monday of the month (except bank
holidays)
27 Stone Lane, Worthing: 2 – 4pm, 3rd Wednesday of the month
Centre Club – 01903 267902, every Tuesday 10am – 3pm
For younger people with a diagnosis of early to moderate stage dementia. Clients are
encouraged to choose how they wish to spend their time in an informal, safe setting.
There is a daily charge. By referral only.
This Dementia factsheet is the property of the Carers Support Service, Worthing & District, and may be
inferences can be assumed for any inaccuracies, inclusions or omissions. Information last checked May
2012.
35
Dementia
•
•
Information Centre – 01903 690490, Wednesdays 10am – 1pm
A free service offering experienced volunteers with time to listen, and provide
information about dementia care and support.
Respite Care Service – 01903 262666
Experienced support workers trained in dementia care for people with dementia in their
own homes, providing carers with a break of 3-4 hours per week. Hourly charge
applies.
ALZHEIMERS SOCIETY, WEST
SUSSEX NORTH
01403 213017
www.alzheimers.org.uk
Steyning – carers support group (drop in) 4th Tuesday of the month 2pm – 4pm at
Dingermans Court, Shooting Field.
ALZHEIMERS SOCIETY LGBT CARERS
0845 300 0336
www.alzheimers.org.uk/GayCarers
Alzheimer's Society's National Dementia Helpline offers support to all people with
dementia and carers including members of the lesbian, gay, bisexual or transgender
(LGBT) community. Has a relevant factsheet available.
ATDEMENTIA WEBSITE
www.atdementia.org.uk/
Website that aims to inform professionals and the public about the kind of equipment that
can support people with dementia and their carers.
CHAT - HORSHAM
07970 994886
www.cognitivehelpandtherapy.org
Cognitive stimulation therapy sessions for people with early stage dementia and cognitive
impairment to improve memory skills, confidence, self esteem and quality of life. Also
provide information sessions for carers.
COUNCIL TAX
Anyone with a severe mental impairment, including dementia, who is living on their own
and receiving an appropriate disability benefit eg Attendance Allowance or the higher or
middle care components of Disability Living Allowance, is exempt from paying any council
tax. If the person living with dementia is receiving an appropriate benefit, they are not
included in the count of how many people live in the property. If they live with one person,
that person can get the 25% discount that someone living alone is entitled to. Check with
the council tax department of your local authority.
2012.
36
Dementia
DAY RESPITE
Some residential/EMI Care Homes can provide a regular daily respite. To obtain a copy of
the West Sussex Care Guide which lists all the care homes in West Sussex contact
County Hall, Tower Street, Chichester 01243 777100 or download a copy from
www.westsussex.gov.uk The following may also be able to offer day respite/activities for
people with dementia:
• Active Minds Activity Day Club – see page 1 of this factsheet.
• Cherish Development Centre specialises in providing daily clubs for people with
dementia living in Henfied and the surrounding area, tel: 01273 494990
• Dingemans Centre, Steyning, tel: 01903 879297
• Guild Care Time out for Carers – provides a safe, stimulating and caring environment
for people with dementia, operating Monday & Friday 9.30am – 3.30pm at Lovett
Centre, Maybridge Square, Worthing. Tel: 01903 528600.
• Kingsfield Club, Storrington - meets from 10am to 3.30pm on Tuesdays and Fridays
at the Saxon Weald Kingsfield Sheltered housing complex. Offers a social occasion
for up to ten older people each Tuesday and Friday with dementia and memory
problems, within the Storrington, Sullington and surrounding areas. Tel: 07796
662506.
• New Tyne Resource Centre – WSCC establishment that may also be able to offer
residential respite. The centre supports people with dementia from the Adur, Arun and
Worthing areas. In order to access the services you need to meet the West Sussex
County Council eligibility criteria after an assessment from a Social Worker. Tel: 01903
277414.
• Specialist day care - Day care may be available at a West Sussex Specialist Adult
Services Day Centre, following an assessment by a social worker. People must meet
an eligibility criteria for adult social care and may need to make a financial contribution
towards the cost of care they receive. The amount will depend on their financial
circumstances.
o Henfield Day Service- Hewitts, Henfield, tel: 01273 493119
o Glebelands Day Service – Middle Road, Shoreham-by-Sea, tel: 01273
268920
o The Laurels Day Service – Sheepfold Avenue, Rustington, tel: 01903 859078
o Rowans Day Services – Steeple View, Worthing, tel: 01903 218022
• Welcome Break, Worthing - every Thursday Morning from 10am-1pm at the Salvation
Army Welcome In, Crescent Road, Worthing. Transport may be available at additional
cost. Tel: 01903 234497.
DEMENTIA TIMEOUT
01877 386332
www.dementiatimeout.com
Provides self catering holidays and short breaks for people with dementia, their carers and
families in Aberdeen, Scotland.
2012.
37
Dementia
MIND MENTAL HEALTH ADVOCACY SERVICE-
01273 666961
Independent advocacy service for adults of all ages who use mental health services or are
diagnosed with a mental health condition including dementia. Provides advocacy both in
hospital and in the community.
PICKS DISEASE SUPPORT GROUP
Sussex and Surrey 01428 729702
www.pdsg.org.uk
Support group providing quarterly meetings, information booklets and a quarterly
newsletter, and can also link sufferers and their families with others. The group supports
carers of people with a wide range of rarer dementia diagnoses including Dementia with
Lewy Bodies, Front temporal dementia, Alcohol related Dementia and Corticobasal
Degeneration.
SPECIALIST DEMENTIA CARE SERVICE
0845 0920414
www.westsussex.nhs.uk
Service that provides support to people with dementia. Aims to help them stay in their
homes for longer and to support their carers. Provides support with medication, dietary
advice, safeguarding, complimentary therapies, psychological support, carers groups and
training and advocacy services. Referral to the team is via Community Health Access
Point referral service, GP or other health professional.
TALKING POINT
www.talkingpoint@alzheimers.org.uk
Talking Point is an online support and discussion forum, for anyone affected by dementia.
The forum is managed by the Alzheimer’s Society.
THE MEDE
01392 421189
www.themede.org
Holiday house in Devon offering holidays for people with dementia and their carers. Within
easy reach of Exeter, offers accompanied outings and a sitting service allowing carers
time on their own. The bungalow is suitable for people with poor mobility.
VITALISE
0845 3451970
www.vitalise.org.uk
Provides holidays for disabled people and breaks for carers at 5 holiday centres in Britain.
They provide a number of weeks specifically for guests with Alzheimer’s and other types of
dementia and their carers.
2012.
38
Emergencies
EMERGENCIES
As a carer you know that the person you care for relies on you for vital help and support.
You need to know what you can do if ever faced with an emergency, either during office
hours, or at night or at weekends. If you are faced with a medical emergency, dial 999
and ask for an ambulance.
CARERS EMERGENCY ALERT CARD SCHEME
01243 778688
This is a free scheme administered by Chichester Careline for people who look after an
adult or child who depends on them because they are ill, have a disability or are frail.
Carers are provided with a card that identifies them as a carer and includes the number of
a 24-hour emergency alarm centre that can be alerted if the carer is involved in an
accident. The call centre will then contact the friend or family member who has agreed to
be involved. You don’t have to have Careline to be eligible for this service.
MINDME LOCATE
0800 292 2901
http://www.mindme.co.uk/dementia.html
This is a pendant that uses satellite technology to locate a person with dementia who has
wandered. Carers can check the person’s whereabouts by logging into a secure website
or using a suitable mobile phone. In an emergency carers can call Chichester Careline
and an operator will locate the person for them. The pendant transmits its location every
few minutes.
COMMUNITY ALARM SYSTEM / LIFELINE / CARELINE
These are emergency help services available to elderly, disabled and vulnerable residents
in their own homes. They offer a 24 hour, 7 days a week telephone link to a control
centre. Staff at the centre can summon immediate help, from relatives, neighbours or
emergency services.
• Adur area, operated by Adur District Council, 01273 263000
• Arun area, operated by Arun District Council, 01903 7375000
• Horsham area, operated by Horsham District Council, 01403 215100
• Worthing area, operated by Red Assure (Worthing Homes Ltd,) 01903 703103
CONTINGENCY PLANNING: BEING PREPARED
Carers who are providing regular and substantial care have a legal entitlement to a Carers
Assessment. If you provide essential support to the person you care for, ask for a
contingency plan to be built into your care plan. Carers of people with mental health
difficulties should have their own care plan which includes actions in an emergency. Call
your West Sussex County Council (Social Care) Helpdesk. If you are relying on family or
friends to help in an emergency, make sure you discuss in advance what is involved.
Prepare information to include:
• Medication
• Emergency duty team contact number
• Details of the person’s illness or disability
This Emergencies factsheet is the property of the Carers Support Service, Worthing & District, and may
or inferences can be assumed for any inaccuracies, inclusions or omissions. Information last checked
June 2012.
39
Emergencies
• The person’s likes and dislikes
• Details of their care needs
• Who else is involved in their care – day centres, care agencies etc
Make yourself a list of useful contact numbers and put in an ‘In Case of Emergency’
number (ICE) into your mobile phone if you have one.
DATALINK EMERGENCY
INFORMATION SCHEME
01903 762918
http://www.sussexnwfed.org.uk/datalink.htm
This ensures vital information is available at home regarding relevant illnesses, allergies,
medication and contact addresses in case of an emergency. Neighbourhood Watch,
Health Centres and CSS, Worthing and District can supply the cannisters.
CARERS EMERGENCY
RESPITE CARE SCHEME
(CROSSROADS)
01403 243924
http://www.westsussex.gov.uk/living/social_care/
carers/carers_emergency_respite_care.aspx
A West Sussex scheme run by Crossroads in partnership with Chichester Careline and
West Sussex County Council. It provides emergency care for a person if their carer is ill or
involved in an accident. Care is provided for up to 48 hours, or 72 hours over a weekend
or bank holiday. To use this service you will need to be registered with the emergency alert
card scheme as your registration number will be used to trace your record and put any
contingency plans in place.
HELP AT SHORT NOTICE OR IN A CRISIS
• West Sussex County Council (Social Care) The first point of contact on weekdays
9am—5pm for the Adult Help Desk:
o Adur Office, Glebelands, Middle Road, Shoreham by Sea, 01273 268800
o Horsham/Chanctonbury, Talbot House, 20-22 East Street, Horsham, 01243
642555
o Littlehampton Office, 44 High Street, Littlehampton, 01903 738900
o Worthing Office, Centenary House, Durrington Lane, Worthing, 01903 839100
o For Children’s Services call the Children’s Access Point (CAP) a
county wide phone number established to ensure all calls will be
handled consistently no matter where the concern has come from or
what it consists of. All calls will be answered and dealt with by a
qualified social worker. 01403 229900
o Out of hours service - 01903 694422 (Adults and Children)
•
GP Out of Hours Service (Harmoni) – If you need a doctor out of hours, telephone
your GP’s surgery or call 0300 130 313
June 2012.
40
Emergencies
•
If someone falls and is unable to get up – The ambulance service will
assist and decide whether the person needs to go to hospital or not. Telephone 999.
•
Mental Health Emergencies – Call the GP Out of Hours Service (Harmoni) indicated
or the 24-hour Mental Health Line on 0300 5000 101
HELPLINES
•
•
•
•
•
•
•
Alcoholics Anonymous - Offers 24 hour support, information and advice for anyone
affected by an addiction to alcohol. Phone 08457 697 555.
Mental Healthline - A countywide 24 hour confidential helpline run by Sussex
Partnership NHS Trust for people coping with mental health problems, their carers or
families and anyone who needs advice or information about mental health services.
Can provide practical advice about what help is available and emotional support / a
listening ear. Phone 0300 5000 101.
National Drugs Helpline – Offers 24 hour support and information on drugs and
solvent misuse. Phone 0800 776600
NHS Direct – a 24 hour helpline for nurse-led information on health matters. Phone
0845 4647
Samaritans - Offers 24 hour confidential emotional support for people who are
experiencing feelings of distress and despair, including those which may lead to
suicide. Phone 01903 205555/08457 909090 or email jo@samaritans.org
Shelterline - This is a free national helpline (8am – 8pm, Mon – Fri and 8am – 5pm Sat
and Sun), giving advice, information, referral and emergency advocacy on housing
related difficulties. Freephone 0808 800 4444. Website: www.shelter.org.uk
West Sussex County Council Helpline – A 24 hour helpline for any local government
or health authority service. Phone 0845 758 1232
June 2012.
41
Emotional Support
EMOTIONAL SUPPORT
Everyone at times needs someone to talk to about what is happening in their lives and
about how they feel. Sometimes friends and family are not around when they are most
needed or they may be too closely involved. Carers support groups can offer support and
a chance to talk with others who may have experienced feelings and situations similar to
your own.
Some helplines offer a confidential telephone support service staffed by trained people to
give you space and time to talk through your problems over the telephone. Or you may
decide you wish to speak to a counsellor – a more formal session with someone trained
and experienced in helping people talk through their problems. Most counsellors offer an
initial session followed by an agreement made with you about the number of future
sessions. Your GP can refer you to a NHS counsellor if you wish.
ARUN COUNSELLING CENTRE
01903 714417
Trained, qualified and supervised volunteer counsellors aim to help those with troubles to
find their own solutions. Clients offer donations but nobody is refused help through lack of
ability to pay. It is not a drop-in service. Based in Littlehampton.
BRITISH ASSOCIATION FOR COUNSELLING and
01455 883300
PSYCHOTHERAPY
www.bacp.co.uk
Information about counselling methods and models. Lists counsellors and
psychotherapists in the area.
COUNSELLING DIRECTORY
0844 8030 240
http://www.counsellingdirectory.org.uk/search.php?search=West%20Su
ssex
Directory of practicing counsellors, listed by area for convenience. Also includes useful
information on types of counselling and support.
CRUSE
01903 205900
http://www.crusebereavementcare.org.uk/WestSussex/index.html
Bereavement counselling and support service.
EMOTIONAL SUPPORT FOR CARERS
(Carers Support Service, Worthing & District)
01903 528629
This service consists of two complementary services:
• Counselling for Carers - free, confidential, face to face counselling for carers and
former carers of any age. The service gives people the opportunity to talk through any
concerns and feelings they may have about their caring role and their relationship with
the person they care for. The counsellors are specially trained to give them a deeper
understanding of carers’ issues.
This Emotional Support factsheet is the property of the Carers Support Service, Worthing & District, and
may be copied in its entirety only, for personal or non-income-generating professional use. No
responsibility or inferences can be assumed for any inaccuracies, inclusions or omissions. Information
last checked April 2012.
42
Emotional Support
Sessions last fifty minutes and take place on the same day and time each
week.
•
Phone Support for Carers – Phone Support for Carers can offer an individual
telephone call-back by a trained volunteer to talk through concerns and problems or to
just have a friendly chat.
FAMILY LIVES
0808 800 2222
http://familylives.org.uk/
A national charity providing help and support in all aspects of family life.
HORSHAM AND CRAWLEY COUNSELLING SERVICE
01403 217900
http://www.dialoguehcc.org.u
k
For help with personal, emotional and relationship problems for those aged 18 and over.
All clients will be asked to make a contribution according to their means. Area(s) covered:
Horsham and surrounding areas.
OFFINGTON COUNSELLING SERVICE
01903 212275
http://ocs-counselling.org.uk
An independent charity, offering counselling for personal, marital and family problems.
Cost negotiable to means of client. Also offers the 1-2-1 counselling service for young
people aged 14-18 years.
RELATE
Worthing 01903 202512
www.relate4u.org
Offers relationship counselling for people aged 16 and over.
SAGE – SENIOR AGE COUNSELLING
01243 789819
SERVICE
http://www.sagecounselling.org.uk/index.ht
ml
One-to-one counselling service for people aged 55 and over, or younger people with
mobility problems, with concerns about adjusting to retirement, moving from an
independent to a dependent lifestyle, coping with bereavement, loneliness, unresolved
conflicts, anger management and facing the reality of death. Contribution requested for
running costs.
SAMARITANS
01903 205555
http://www.samaritans.org/
Offers 24 hour confidential emotional support for people who are experiencing feelings of
distress and despair, including those which may lead to suicide.
43
Emotional Support
SUPPORT GROUPS
01903 536378
Often it can be a help to talk to others in similar situations. This can provide
companionship and understanding; there are many support groups locally. Carers
Support Service runs a variety of support groups for carers and many condition specific
organisations run groups for carer and cared for. These include: Alzheimer’s Society,
Stroke Association, Headway etc. For more information contact Carers Support Service,
Worthing & District.
SUSSEX COUNSELLING
01273 732900
www.sussex-counselling.co.uk
An association of counsellors who produce a directory of qualified counsellors working in
Sussex.
44
Equipment and Adaptations to your Home
EQUIPMENT AND ADAPTATIONS TO YOUR HOME
Organisations providing and supplying equipment and adaptations include West Sussex
County Council (Adult and Children’s Services), the NHS, voluntary organisations and
private companies. It is worth getting professional advice about the most appropriate
piece of equipment before buying something and about the suitability of any adaptations to
your home which may be necessary to make it more suitable for the disabled person. An
Occupational Therapist or your local council can explain what grants may be available,
and details of eligibility.
Disabled facilities grants are provided by District and Borough councils
for a range of home adaptations that help disabled people to live more
independently in their own homes. Disabled facilities grants mainly help to
make sure that disabled people can move more freely and safely around
their home and use essential facilities. In all cases, the disabled person
must be registered as disabled, or eligible for registration. The amount of
grant you get will depend on your income, savings and investments. District or borough
council officers use this information to determine how much you can afford to pay towards
the cost of the adaptations. You will not normally get any grant if you start work before
your council approves your application. For more information, contact your local council.
ABILITYONE HOMECRAFT LTD
08444 124330
www.homecraft-rolyan.com
Produces a catalogue of aids and equipment for daily living, including mobility, bathroom
and toilet aids, household equipment, wheelchairs etc.
AIDS AND EQUIPMENT FOR HELP WITH EVERYDAY TASKS
Many private companies listed in Yellow Pages, magazines and newspapers offer aids
and equipment for sale. Many organisations listed in this factsheet can give advice on
suitability of equipment and give details of private companies that may be able to supply
particular items of equipment.
ASK DES
01903 859929
www.askdes.org.uk
Disability Equipment Service lists second-hand disability equipment being sold by
individuals in specific areas.
AUTOHOME MOBILITY RESCUE
0800 371280
http://www.autohome.co.uk/mobilityrescue.htm
Commercial service providing roadside assistance and recovery for mobility scooters 24
hours a day, 7 days a week, depending on the level of cover you opt for.
This Equipment and Adaptations to your Home factsheet is the property of the Carers Support Service,
Worthing & District, and may be copied in its entirety only, for personal or non-income-generating
professional use. No responsibility or inferences can be assumed for any inaccuracies, inclusions or
omissions. Information last checked July 2012.
45
BRITISH RED CROSS - EQUIPMENT
www.redcross.org.uk
Loans and sells medical equipment. Equipment is loaned free of charge, although a
refundable deposit is requested and donations are welcome. Other services may also be
offered, depending on the branch.
• Rustington, Red Cross Centre, Somerfield Car Park, Broadmark Lane, Rustington,
01903 787711
• Shoreham, c/o CAB, Pond Road, Shoreham by Sea, 01273 453156
• Worthing, Red Cross, 12 Shelley Road, Worthing, 01903 207191
• Horsham, Rushams Road, Horsham, RH12 2NT, 0800 0280831
BT AGE & DISABILITY ACTION
0800 800 150
www.btplc.com/includingyou
Promotes equal access to phone service. BT have made provision for text phone users,
offer BT information in accessible formats and have developed products that they hope
appeal to both disabled and non-disabled people.
CARE CENTRES LTD
01903 821515
A commercial service based at 73-75 Rowlands Road, Worthing, Care Centres Ltd
specialises in a variety of disability equipment, both new and old. Has a delivery service
and can supply equipment on approval where appropriate, and the premises are
wheelchair accessible.
DAILY LIVING CENTRE
01273 296132
Offers free, impartial advice and information on equipment, to the disabled and the elderly,
as well as carers. There is a comprehensive display of equipment, mobility aids and
communication aids. Visitors can see and try out a wide range of products and information
is available on costs and where to obtain or borrow specific items. Based at Montague
House, Montague Place, Kemp Town Brighton BN2 1JE.
DISABLED LIVING FOUNDATION (DLF)
0845 130 9177
www.dlf.org.uk
DLF offers practical, up to date, unbiased information and advice on disability equipment
and assistive technology. They also have a wide range of publications including a
comprehensive directory of equipment and assistive technology, and an equipment
demonstration centre in London.
OCCUPATIONAL
THERAPY SERVICE –
AIDS & EQUIPMENT
01903 839100
http://www.westsussex.gov.uk/living/social_care_and_he
alth/adults/recovering_from_a_serious/occupational_the
rapy.aspx
Occupational Therapists (OTs) with West Sussex County Council provide advice on all
aspects of the management of physical disability.
46
RADAR KEY
01903 859928
Carrying a RADAR key allows independent access to disabled toilets throughout the
United Kingdom. As well as public toilets provided by local authorities, facilities for people
with disabilities and requiring the keys are provided by other public, voluntary and
commercial organisations. A fee applies.
REMAP – REHABILITATION ENGINEERING
MOVEMENT ADVISORY PANEL
01243 552290 or
01403 261854
www.remap.org.uk
Volunteer engineers make or modify aids and equipment for people with disabilities when
suitable equipment is not available commercially.
SHOPMOBILITY
Littlehampton – 01903 733004
Worthing – 01903 820980
Provide manual and powered wheelchairs and scooters to help people with limited mobility
to use facilities in town centre. Occasional and regular use hire available. There is also
equipment for mobility and daily living for sale.
WEST SUSSEX COMMUNITY EQUIPMENT SERVICE
0845 1272931
Service provided by Nottingham Rehab Supplies National Care on behalf of West Sussex
County Council and West Sussex Primary Care Trust within West Sussex. The service
offers deliveries, collections, maintenance, repair and fitting of equipment by qualified staff.
The service does not accept direct referrals; access is by on-line referral through health or
social service professionals.
WHEELCHAIR SERVICE
Provides and maintains manual and powered wheelchairs issued on loan, on prescription
only. Initial referral is via hospital, GP, OT or consultant.
47
Health Services
HEALTH SERVICES
CHIROPODY/PODIATRY
Contact your own GP practice to see if you are eligible for NHS chiropody
treatment, but there may be a waiting list for non urgent treatment. ICIS
(0800 859929) have details of chiropodists who will carry out home visits.
COMMUNITY REHABILITATION AND SUPPORT
01403 227000 ext 7522
SERVICE
Community rehabilitation for people with complex physical needs and long-term health
conditions. Provides occupational therapy, physiotherapy and speech and language
therapy. Any member of multidisciplinary team can refer. They also take self referrals
from people with long term conditions who are already known to the service.
Area covered: Chanctonbury.
COMMUNITY NEUROLOGICAL TEAM (previously known as the
Community Stroke Team)
01903 846558
Works in the community offering help, advice and support for people with speech and
communication difficulties, problems with swallowing food and drink, mobility problems
caused by pain or weakness in joints or muscles, coping in the home, memory and
behaviour changes, incontinence or any confirmed neurological condition. The team helps
people who have had a Stroke, Transient Ischaemic Attack, Parkinson's Disease, Multiple
Sclerosis or Motor Neurone Disease and includes physiotherapists, occupational
therapists, clinical psychologists, speech and language therapists etc. You can self refer
but must be registered with a West Sussex GP. Area(s) covered: Adur, Arun and
Worthing only.
COMPLAINTS, COMMENTS AND QUERIES
•
•
•
Patient Advice and Liaison Service (PALS) is a free and confidential service for
members of the public who would like advice or information primarily about NHS
services. PALS staff at NHS Sussex can handle enquiries about primary care services
- GPs, dentists, opticians and pharmacies - along with commissioning and Continuing
Healthcare issues. There are PALS teams available in most NHS organisations and we
work closely with other PALS teams and often signpost between NHS Trusts to ensure
enquiries are handled by the most appropriate team. Contact the Coastal West Sussex
Clinical Commissioning Group, on 01903 505456, Email ws-pct.cwspals@nhs.net or
by post at 1 The Causeway, Goring by Sea, Worthing BN12 6BT
Sussex Partnership NHS Foundation Trust – phone 01903 843185. They deal with
matters relating to services provided by the Sussex Partnership NHS Trust such as
mental health, substance misuse and learning disability services. Email
PALS@sussexpartnership.nhs.uk
Western Sussex Hospital Trust – phone 01903 285032. They deal with services
provided by Worthing and Southlands Hospitals.
This Health Services factsheet is the property of the Carers Support Service, Worthing & District, and
last checked June 2012.
48
Health Services
CONTINENCE
•
•
•
•
Adur, Arun and Worthing - If you need advice about continence contact your G.P,
Health Visitor, District Nurse or call 01903 846520/846524.
Chanctonbury - If you need advice about continence contact your GP or District Nurse
or call 01903 846520/846524.
The Lyndhurst Walk-In Clinic is held on the 2nd Monday of every month between
1.30pm and 4pm at for continence advice and treatment at the Lyndhurst Clinic, Unit L,
Downlands Business Park, Lyons Way, Worthing.
The Bladder and Bowel Foundation nurse helpline: 0845 345 0165
www.bladderandbowelfoundation.org
DENTISTS
If you are registered with a dentist providing NHS treatment, you may be entitled to free
treatment, because of your age or income. For more information obtain the Department of
Health HC11 leaflet ‘Help with health costs’. If you need a dentist to make a home visit, a
list can be obtained from:
• NHS Direct on 0845 4647.
• ICIS on 0800 859929.
• NHS Choices Website: www.nhs.uk
DISTRICT NURSING SERVICE
The District Nursing Service is a team of trained nurses and health care assistants led by a
trained nurse with a specialist community nursing qualification. These teams are attached
to a GP surgery and work closely with all other staff who are employed within the practice.
The service provides skilled nursing care which includes complex assessments of health
needs, wound assessment and care, acute and chronic disease management, palliative
and terminal care and administration of treatments using specialised nursing equipment
and medication. Care is carried out in the patient’s home. You can contact a District
Nurse at your health centre or clinic, or through your GP.
EXPERT PATIENT PROGRAMME - LIVING WELL
01403 227000 ext 7547
The Expert Patient Programme "Living Well" courses are self-management courses for
people who live with a chronic illness such as heart disease, asthma, back pain, arthritis
and diabetes for example. The courses are free , are run by volunteer lay people who
themselves live with chronic illness, and run for two and a half hours once a week for 6
consecutive weeks.
HOSPITAL PALLIATIVE CARE TEAM
01903 205111 ext 4801
Provides care and support for people with terminal illness and their families. Two full time
nurses work Monday to Friday caring for patients with palliative care needs and their
family, from diagnosis to end of life. They network closely with the Community Palliative
Care Nurse Specialist and the Community Primary Care Teams, and especially with St
Barnabas House.
49
Health Services
HOSPITAL DISCHARGE TEAM
There are agreed procedures between hospitals and West Sussex County Council to
ensure that anyone who may require support services or equipment on leaving hospital is
entitled to have their needs assessed and an appropriate care package arranged prior to
discharge. Carers should be involved in this process. Social workers based at hospitals
can offer assistance with non-medical problems or queries, and can advise the patient and
carer on how to obtain more help in the home. If you are unsure about any aspect of how
you will cope when the person being cared for comes home, ask to see someone from the
Hospital Discharge Team.
INTERMEDIATE
CARE TEAM
Chanctonbury 01403 227000 ext 7540
Adur, Arun, Worthing refer via One Call 08450 920414
The Intermediate Care Team is a multi-disciplinary team of Nurses, Occupational
Therapists, Physiotherapists, Community Psychiatric Nurse, Social Workers and
Community Support Workers. The aim is provide rehabilitative support in a person's own
home, for up to 6 weeks, to help them be as independent as possible. They are unable to
provide intensive support or 24-hour-care after leaving hospital, as this is the remit of the
Hospital Discharge Scheme.
MACMILLAN NURSE
0808 808 0000
The Support Nurse has specialist expertise in symptom control and emotional support and
can offer advice, information, guidance and support to people with cancer and other
progressive illnesses, their family and professionals.
MARIE CURIE NURSING SERVICE
If you would like a Marie Curie Nurse, you should contact your District Nurse (sometimes
called the community nurse) who coordinates your care at home. Your GP surgery will be
able to tell you who your local District Nurse is and how to contact them. Your District
Nurse will decide whether to request a Marie Curie Nurse; what periods of care are
required and whether to request a Registered Nurse or Senior Healthcare Assistant
(depending on your and your cared for needs). If it is agreed that the Marie Curie Nursing
Service is appropriate, your District Nurse will contact Marie Curie Cancer Care and
request a visit or visits for dates and times previously discussed with you.
NHS DIRECT
0845 4647
www.nhsdirect.nhs.uk
NHS Direct is a 24 hour nurse led helpline providing confidential healthcare advice and
information and is particularly aimed at enquirers who are unsure whether to go to their GP
or the accident and emergency service.
50
Health Services
NHS WEST SUSSEX
01903 708400
www.westsussex.nhs.uk
NHS West Sussex is the working name of West Sussex Primary Care Trust. Its
headquarters is at The Causeway, Goring by Sea, Worthing BN12 6BT. The role of the
Trust is to improve the health of the local community, reduce inequalities in health and
make sure people have access to safe, high quality health services.
OCCUPATIONAL THERAPY
SERVICE (OT CONNECT)
01903 839100
http://www.westsussex.gov.uk/living/social_care/adu
lts/recovering_from_a_serious/occupational_therapy
.aspx
West Sussex County Council Occupational Therapy Service work primarily with children
and adults who are facing long term permanent and substantial difficulties with everyday
tasks within their own home e.g. accessing the bath, toilet etc. OT Connect is the first
point of contact for the County Occupational Therapy Service and accepts referrals from
anyone; health and social care professionals, customers themselves or carers and
relatives.
OPTICIANS/OPTOMETRISTS
You may be entitled to a free NHS sight test because of your age or income. For more
information obtain the Department of Health HC11 leaflet ‘Help with health costs’. If you
need an optician to make a home visit, a list can be obtained from:
• NHS Direct on 0845 4647.
• ICIS on 0800 859929
• NHS Choices website www.nhs.uk
PULBOROUGH AND DISTRICT COMMUNITY CARE
01798 872540
ASSOCIATION - Toe Nail Cutting Service
For those with healthy feet who cannot cut their own toe nails, but who have no health
problems such as diabetes or circulatory ailments. Also provide social activities and
community services for the residents of Pulborough, including lunch club, social club,
transport, volunteer visiting scheme and meals-on-wheels. Area covered: Chanctonbury
only.
SPEECH AND LANGUAGE SERVICE
This is a comprehensive service for children and adults who may be experiencing
communication and/or swallowing problems. Therapists work in a wide range of locations
and offer diagnosis, assessment, treatment and advice. Referrals can be made via your
GP practice or you can contact the service direct.
• Adults in Adur Arun and Worthing - 01903 285222 ext 5582
• Adults in Chanctonbury – 01293 600300 ext 3764
• Children in Adur, Arun, Worthing - 01903 846594
• Children in Chanctonbury – 01403 227000 ext 7165
51
Health Services
ST BARNABAS HOUSE HOSPICE
01903 706300
www.stbarnabashospice.org.uk
Offers palliative care for patients with advanced cancer and other advanced life limiting
disease. Referral is via GP, Hospital Consultant or Specialist Nurse with the agreement
of your GP.
SUSSEX PARTNERSHIP NHS TRUST
01903 843000
www.sussexpartnership.nhs.uk
Sussex Partnership NHS Trust provides mental health, specialist learning disability and
substance misuse services in and across Sussex and is based at Swandean, Arundel
Road, Worthing.
SUSSEX REHABILITATION CENTRE
01273 696011 ext 3818 or
01273 242155
Outpatient facility providing artificial limbs and support services to people living in Sussex,
counselling service for Centre's patients; artificial eye clinic; information service for
outpatients, and environmental control assessment.
WHEELCHAIR SERVICE
01903 846500
You must be registered with a West Sussex GP and living in your own home. Referral
forms will be accepted from GPs, Medical Consultants, and other Health Care
Professionals, such as Occupational Therapists, Specialist Nurses etc.
WESTERN SUSSEX HOSPITALS NHS
TRUST
01903 205111
www.westernsussexhospitals.nhs.uk
Worthing and Southlands Hospitals provide a range of acute hospital services to people
living in Adur, East Arun, Worthing and Chanctonbury and specialist services in a wider
catchment area running from Chichester in the west to Brighton in the east.
• Worthing Hospital, Lyndhurst Road, Worthing BN11 2DH
• Southlands Hospital , Upper Shoreham Road, Shoreham-by-Sea BN43 6TQ
52
Hearing Difficulties
HEARING DIFFICULTIES
ACTION FOR DEAFNESS (Previously West Sussex Deaf and
Hard of Hearing Association)
01903 217341
Resource centre for specialised equipment eg phones, TV listening devices, alarm clocks,
alerting devices, offers advice and advocacy; audiology service (referral by GP needed)
and equipment loan.
ACTION ON HEARING LOSS
Helpline 0808 808 0123
(FORMERLY KNOWN AS ROYAL
Helpline text 0808 808 9000
NATIONAL INSTITUTE FOR DEAF
www.actiononhearingloss.co.uk
PEOPLE (RNID)
Offers a range of services and provides information and support on all aspects of
deafness, hearing loss and tinnitus.
ACTION ON HEARING LOSS COMMUNICATION
SUPPORT UNIT
Voice 0845 684 8000
Text 0845 685 8001
Booking service for people who need sign language support and interpreters, lip speakers,
note takers, speech to text and deafblind interperaters.
BT
0800 800150
Text 18001 0800 800150
www.btplc.com/inclusion
Publishes a free guide to telephone products and services for elderly and disabled people,
available in large print, Braille or on audio cassette. A free Directory Enquiry Service is
available for blind and disabled customers on 0800 5870195. A large range of equipment
is available for people with disabilities, including loud bell units and inductive couplers.
DARBY AND JOAN CLUB
01273 671899
www.worthingdeafsocialclub.co.uk
A club for people with hearing difficulties offering entertainment and social contact. Meets
at West Worthing Baptist Church on the first and third Thursdays of the month between
12.30 pm and 4.30pm.
DEAFBLIND UK
0800 132 320
www.deafblind.org.uk
Deafblind UK is a national charity offering specialist services and support to deafblind
people and those who have progressive sight and hearing loss acquired throughout their
lives and promotes awareness of deafblindness.
This Hearing Difficulties factsheet is the property of the Carers Support Service, Worthing & District, and
last checked July 2012.
53
HARD OF HEARING CLUB - WORTHING
01903 230319
Weekly club for anybody involved with hearing loss. Meets Mondays, 7.30-9pm, Methold
House (not August or public holidays). Information, entertainment, advice, outings and
social activities. May be able to offer transport help in Worthing area.
HEARING DOGS for DEAF PEOPLE
01844 348100 Voice/Minicom
www.hearingdogs.org.uk
A national organisation that trains dogs to alert profoundly deaf and severely
hard of hearing people to sounds such as doorbells, phones and fire alarms,
as well as providing companionship and a sense of security.
HEARING LINK
0300 1111113
www.hearinglink.org
National charity dedicated to improving the quality of life for those who are hard of hearing.
Its main objectives are to provide advice, information and support, promote communication
access and raise public and professional awareness of the issues associated with hearing
loss.
NATIONAL DEAF CHILDRENS SOCIETY
0808 800 8880 voice or text
www.ndcs.org.uk
Provides advice and information on all aspects of childhood deafness (age 0 – 19),
including education, benefits, technology and equipment. Provides support with welfare
rights and benefit claims.
SENSE
Voice 0845 127 0066
Textphone 0845 127 0062
www.sense.org.uk
A national charity that supports and campaigns for children and adults who are deafblind.
Provides tailored support, advice and information as well as specialist services to all
deafblind people, their families, carers and the professionals who work with them. Also
support people who have a single sensory impairment with additional needs.
SOCIAL CLUBS AND ACTIVITIES
Voice/text 0800 859929
A number of local clubs exist for people who have problems with their hearing. ICIS have
details on the number shown above or email enquiries@icis-info4life.org.uk .
54
SUSSEX DEAF ASSOCIATION
Mobile/SMS Text 07958 655127
www.sussexdeaf.co.uk
www.worthingdeafsocialclub.co.uk
Provides communication support, advocacy and assistance with benefit forms and runs
social groups and outings. Holds Deaf Awareness Training and British Sign Language
Level 1 courses. Has a Communication Club, Worthing Deaf Darby & Joan group and
Worthing Deaf Social Club all held at West Worthing Baptist Church.
TYPE TALK, TEXTDIRECT AND RELAY ASSIST
Voice 0800 7311 888
Text 18001 0800 500 888
www.typetalk.org
Enables people with communication problems to make phone calls. Typetalk Relay
Service operates 24 hours a day, seven days a week and is accessed by making calls
through BT TextDirect. TextDirect converts ringing and busy tones into text messages that
are displayed on the textphone. A prefix used before the number being called brings a
Typetalk Relay Assistant into the call if required. Ringing the 18000 number will put callers
in direct contact with the 999 emergency services.
WEST SUSSEX COMMUNITY EQUIPMENT SERVICE
A service provided by Nottingham Rehab Supplies National Care on behalf of West
Sussex County Council and NHS West Sussex. The service offers deliveries, collections,
maintenance, repair and fitting of equipment by qualified staff. Access by on-line referral
through health or social service professionals. Equipment provided includes equipment for
people with sensory impairments.
WEST SUSSEX COUNTY COUNCIL (SENSORY SERVICES
01243 642555
TEAM)
Central office for provision of services for children and adults with sensory impairments in
West Sussex.
55
Help to Stay at Home
HELP TO STAY AT HOME
ADUR AND WORTHING BEFRIENDING SERVICE
01903 600300
Befriending service run by Age UK which provides volunteers who have time to sit and
chat, aimed at older people who live alone and either find it difficult to get out and meet
people, or who feel lonely and isolated. Volunteers are NOT able to provide nursing or
personal care services or domestic help. It is not an emergency service.
ADUR CARE AND REPAIR SCHEME
01273 263308 / 263309
www.adur.gov.uk
This service administered by Adur District Council, provides advice and help for
pensioners, people with disabilities or special needs, families in receipt of working families
tax benefit, income support, pension credit or housing benefit in the private sector (home
owners or private tenants) on home repairs, improvements and adaptations. Also provides
information on finding reliable builders, finding other accommodation, retirement housing,
applying for grants or loans, benefits and other services.
Operates the S.A.F.E. scheme (Security Action for the Elderly) in Adur, which provides
practical or financial help to older residents who have been the victims of crime or are
concerned about home security. The Handyman Service carries out small repairs and
jobs such as putting up shelves, replacing tap washers etc for the cost of the materials
plus a small amount per job (up to 2 hours work), for people who are over the age of 60, or
have a disability or are vulnerable and are on a low income.
BUY WITH CONFIDENCE
01243 777100
http://www.westsussex.gov.uk/living/consumer_ad
vice/buy_with_confidence.aspx
The Buy with Confidence scheme is an initiative by the Trading Standards Service in West
Sussex. Businesses registered with the scheme undergo strict vetting and inspection to
make sure they are committed to maintaining high standards and have a good customer
focus. The inspection includes references and Criminal Records Bureau checks on
owners and staff if they visit customers in their homes. Trading Standards do not vouch
for the financial stability of any company nor for their health and safety procedures. All
information provided is to assist consumers in exercising their own best judgment. All
information is provided in good faith but no guarantee is given or implied as to the
accuracy of the information provided.
CINNAMON TRUST
01736 757900
www.cinnamon.org.uk
Provides homes for pets while owners over pensionable age are in hospital. Operates
through volunteers on a national basis to provide help at home, e.g. walking a dog for a
housebound owner. Has national register of residential/nursing accommodation that will
allow residents to keep their pets. Can make arrangements for looking after pets if owner
dies, providing arrangements are made with the Trust well in advance.
This Help to Stay at Home factsheet is the property of the Carers Support Service, Worthing & District,
and may be copied in its entirety only, for personal or non-income-generating professional use. No
56
COMMUNITY ALARM SYSTEM
These are emergency help services available to elderly, disabled and vulnerable residents
in their own homes. They offer a 24 hour, 7 days a week telephone link to a control
centre. Staff at the centre can summon immediate help, from relatives, neighbours or
emergency services.
• Adur area, operated by Adur District Council, tel: 01273 263390
• Arun area, operated by Arun District Council, tel: 01903 737970
• Horsham area, operated by Horsham District Council, tel: 01403 215230
• Worthing area, operated by Red Assure (Worthing Homes) Ltd, tel: 01903 703103
COMMUNITY SHOPPING SERVICE (ARUN)
01903 723584 or
01903 713371
Offers assisted group shopping trips by minibus for those unable to manage trips on their
own. For people in Littlehampton and Rustington the bus runs on Monday, Tuesday,
Wednesday and Thursday to Sainsbury's at Rustington. A small charge is made. Area(s)
covered: Arun only.
GOOD NEIGHBOURS ASSOCIATION – STEYNING
01903 816181
The primary purpose of the association is to provide transport to people in the Steyning
area to enable them to attend medical appointments and to provide transport for other
purposes such as shopping to those people who are housebound.
HANDY VAN SERVICE (CHANCTONBURY)
01403 226005
The Handy Van service is a not-for-profit service carrying out small repairs and minor
adaptations for more vulnerable members of the community living in the Horsham district.
It undertakes minor repairs and works, but not gardening or decorating.
HELP AT HOME (AGE CONCERN)
(CHANCTONBURY)
01903 879916 or 01403 751322
The service is primarily available to people over 65 and to disabled vulnerable younger
people living in the Horsham District offering domestic services, pension and prescription
collection, and other reasonable requests for assistance in the home.
HENFIELD GOOD NEIGHBOURS
01273 492138 or
01273 492455
A local service for villagers who are housebound or who have difficulty in getting to the
shops on their own, to either take people out shopping or collect shopping, prescriptions
etc for them. Volunteers always welcome.
HENFIELD SELF-HELP GROUP
01273 494335
For people in the area covered by Henfield Medical Centre. Affiliated to West Sussex
Association for the Disabled. Meet every Tuesday 10am-3.30pm at Henfield Village Hall
for exercises, entertainment and lunch.
57
HOME CARE AGENCIES
West Sussex County Council maintain a list of agencies offering home care services.
Contact your local Helpdesk for a copy. Alternatively, ICIS on 0800 859929 and CSS,
Worthing & District on 01903 536378 can provide information on which organisations offer
home care services.
HOUSEBOUND READER SERVICE
01903 704818
A library service for people who are housebound through age, disability, or illness and
have difficulty using or reaching the library. Trained volunteers can bring books, story
cassettes, audio CDs, music CDs, or other items to their home. Application forms are
available from local libraries or from the West Sussex Library website.
LUNCH CLUBS AND RETIREMENT CLUBS
0800 859929
ICIS hold details on lunch and retirement clubs throughout the area, and the activities on
offer, and their number is shown above.
MEAL DELIVERY SERVICES
ICIS hold a larger list of organisations which can deliver meals if you do
to, or are unable to cook for yourself.
• Door2doormeals Rustington 07742 991702
• Home Farm Foods 01273 582260
• Martins Meals 01903 202525
• Meals on Wheels Arun, 01903 772003
• Meals on Wheels Henfield/Steyning (WRVS service) 01444
451462
• Meals on Wheels Pulborough (WRVS service) 01798 343773
• Meals on Wheels Worthing, Shoreham & Lancing, 01903 237790
• Sussex Farmhouse Meals (previously Dial a Lunch), 01903 820057
• Wiltshire Farm Foods, 01444 881926
• Oakhouse (Home Farm Foods) BN postcodes, 01273 582260
MEARS STAYING PUT SCHEME (ARUN & WORTHING)
not wish
0800 1814322
Scheme run in partnership with local councils to help home owners in their area who have
problems with their property. Help is available for people age 60 and over, who are
disabled or receive a means tested benefit. May be able to provide a service outside these
areas for a small charge. Provides alterations and repairs to allow people to remain safely
in their own homes. The service is not available for Council or Housing Association
tenants.
58
PULBOROUGH AND DISTRICT COMMUNITY CARE ASSOCIATION
Provides a number of services to support people in the local area:
• Ballroom and Latin American Dancing – Classes of Ballroom and Latin American
dancing for beginners, intermediate and advanced in Pulborough Village Hall on
Thursdays and Friday evenings. Tel: Gill Boys on 01798 831696
• Community Transport – collecting people from their homes and taking them to
doctors, dentists and hospital appointments. Tel: 01798 875600 10am – 12 noon Mon
– Fri
• Good Neighbours Scheme – welcomes newcomers to the village and provides a
friendly contact. Tel: Terry Donnelly on 01798 874101
• Liaise - advice on financial matters every Tuesday 9am – 11am at Petworth Family
Centre and 2pm – 4pm at Storrington Family Centre. Tel: 07931 300705
• Pulborough Lunch Club – a lunch club for senior citizens Wednesdays (not August)
from 12.30pm. Tel: Betty Evans on 01798 874254
• Open door tea & chat first Sunday of every month 2.30pm – 4.30 pm 01798 872929
• Toe Nail Cutting Service – for those with healthy feet who cannot cut their own toe
nails, but who have no health problems such as diabetes or circulatory ailments. Tel:
Jean Seagrim on 01798 872540
• Volunteer Visiting Scheme - Pulborough - a home visiting scheme staffed by trained
and friendly volunteers, who provide regular social visits for companionship and are
also happy to undertake simple shopping. Mrs Jill Westlake Tel: 01798 812104
• Wednesday Club – Wednesdays (not August) from 2pm 4pm for those aged 50+ for
social recreations and outings. Tel: Rosemary Russell 01798 873174
• Pop into Pulborough – Coffe morning with activities every Tuesday 9.30-11.30am in
the Meadows Room Village Hall. Tell Jean Seagrim 01798 872540
PREVENTION OF FALLS SERVICE
(CHANCTONBURY)
01403 227000 ext 7501
Service for adults living in the Horsham and Chanctonbury area, giving advice to those
who fall, or are in danger of falling, on prevention and rehabilitation. Investigates causes,
holds exercise classes, provides small pieces of equipment etc. Clinic and classes at
Horsham Hospital, people seen individually in their homes.
STORRINGTON HELP SCHEME
01903 742124
Offers help with essential transport of a medical nature, i.e. hospital, doctor, dentist
appointments.
59
WARM FRONT SCHEME
0800 316 2805
www.warmfront.co.uk
The scheme is now targeted at people on certain income-related benefits
and living in properties that are poorly insulated and/or do not have a
working central heating system. You must own your home or rent it
from a private landlord. The Warm Front scheme is only available in
England. Qualifying households can get improvements worth up to
£3,500 (£6,000 where oil central heating and other alternative
technologies are recommended). Grants are available for
improvements such as loft insulation, draughtproofing, cavity wall
insulation, hot water tank insulation, gas, electric, liquid petroleum
gas or oil heating, glass-fronted fire
WEST SUSSEX FIRE AND RESCUE FREE HOME
0800 328 6487
SAFETY CHECKS
Free service provided by local firefighters from West Sussex Fire and Rescue Service who
work in partnership with community alarm providers. As an alternative to a home fire
safety check visit, they can provide an information CD-ROM, which contains fire safety
advice in a multimedia format. More information is available on the website.
WRVS CARS AND COMPANIONS IN ADUR
01903 851558
Volunteers that will carry out a schedule of 12 x weekly visits to a lonely or isolated person,
just to chat, listen, make a cup of tea, help with small problems like assisting with a meal,
dealing with junk mail etc thus providing a ‘safe and well’ check and signposting to any
other services. These are done on a 12 week schedule because demand always outstrips
supply and this way no user goes too long without a companion.
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HIV/AIDS
HIV/AIDS
HIV/AIDS is affecting increasing numbers of people, whether they are infected themselves,
or caring for someone else. New treatments mean that people’s health and survival
prospects are much better, but they are often living with a chronic long term condition.
AVERT
01403 210202
www.avert.org
AVERT aims to prevent people from becoming infected with HIV, to improve the quality of
life for those already infected and to work with others to develop a cure.
COMMUNITY DEVELOPMENT ORGANISATION http://www.cdo-sussex.org
SUSSEX
Sexual health and HIV prevention project for individuals, families and groups from Black
African and Afro Caribbean communities living in West Sussex.
• Lancing office, tel: 01903 854984
• Worthing office, tel: 01903 211033
GENITO-URINARY MEDICINE (GUM)
CLINIC
0845 111 3456
www.sexualhealthwestsussex.nhs.uk
A team of doctors, nurses, health advisors and counsellors are available for prompt
diagnosis and treatment of genital infections or sexually transmitted diseases.
HIV COMMUNITY SERVICES - SOUTH
01273 858044
Community-based service for anyone living with HIV/AIDS, or caring for someone affected.
Single point of contact for information and liaison with other services. Can arrange referral
to specialist dental service for people with HIV. Also offers ongoing support for people
living with HIV. And nursing care in conjunction with the District Nursing Service.
POSITIVELY UK
020 7713 0222
http://www.positivelyuk.org
Provides support for HIV positive men, women and young people by HIV positive men and
young people. Includes helpline, support groups, complementary therapies, family
service.
SEXUAL HEALTH LINE
0800 567 123
Confidential information and advice on all aspects of sexually transmitted infections, HIV
prevention and signposts to local services. A translation service is available for other
languages through the helpline.
This HIV/AIDS factsheet is the property of the Carers Support Service, Worthing & District, and may be
inferences can be assumed for any inaccuracies, inclusions or omissions. Information last checked July
2012.
61
HIV/AIDS
ST PETERS HOUSE PROJECT
01403 259435
http://www.stpetershousewsx.org.uk
Registered charity offering HIV community support and information to people living with
HIV in West Sussex.
SUSSEX BEACON
01273 694222
http://www.sussexbeacon.org.uk
The Sussex Beacon is a clinical care centre for men and women living with HIV/AIDS,
based in Brighton. There is a ten bedded Inpatient Unit as well as Outpatient Services
including Anxiety Management, Sleep Service, Day Service and Women & Families
Service. Referral is via health professionals only.
TERRENCE HIGGINS TRUST SOUTH
01273 764200
www.tht.org.uk
Provides practical and emotional support to people living with HIV and those affected by it.
Guides people through the information and options relating to living with a HIV diagnosis.
This HIV/AIDS factsheet is the property of the Carers Support Service, Worthing & District, and may be
2012.
62
Holidays
HOLIDAYS
Holidays for people who are ill or who have disabilities and their carers need
detailed arrangements. When making arrangements it is advisable to explain
your needs fully to any establishment/travel agent etc that you use before
making a booking and to confirm all the details in writing to avoid any
misunderstanding. You may also find the ‘Taking a Break’ factsheet, useful.
ACTIVENTURE HOLIDAYS
01342 828215
www.activenture.org
Offers week long activity holidays for children and young people with disabilities (physical
and non-physical) or special needs, at Hindleap Warren, Wych Cross, in the Ashdown
Forest, Sussex and Woodrow High House, Amersham, Buckinghamshire. 24 hour care
provided. 30 places available and each guest is accompanied by a young companion and
helper with adult supervision.
BREAK
01263 822161
www.break-charity.org
Provide inclusive supported seaside holidays and respite care for children and adults with
learning and physical disabilities, challenging behaviour and high level care needs. Offer a
choice of four locations providing short breaks and holidays:
• Rainbow House in Sheringham, Norfolk for full inclusive holidays
• Golden Bay Village, Westwood Ho! For self catering holidays
• Morley House, Kings Lynn, Norfolk for weekly boarding and short breaks
• Nelson Lodge, Long Stratton, Norfolk for short stay residential short breaks
CALVERT TRUST CENTRES
www.calvert-trust.org.uk
Accessible activity centres for people with disabilities.
• Calvert Trust Kielder, Kielder Water, Hexham, Northumberland, 01434 250232
• Calvert Trust Cumbria, Little Crosthwaite, Keswick, Cumbria, 01768 772255
• Calvert Trust Exmoor, Wistlandpound, Kentisbury, North Devon, 01598 763221
COMMERCIAL COMPANIES
Many commercial companies offer extra specialist services for people with disabilities or
additional needs. Please contact ICIS on 0800 859929 or Carers Support Service on
01903 536378 for details.
DISABLED GO
0845 270 4627
www.disabledgo.com
A website which provides detailed information about accessing restaurants, colleges,
tourist attractions, libraries, hospitals, leisure centres and more.
This Holidays factsheet is the property of the Carers Support Service, Worthing & District, and may be
2012.
63
Holidays
DISABLED HOLIDAY DIRECTORY
0800 993 0796
http://www.disabledholidaydirectory.com
Gives a list of accessible properties of various types both in the UK and abroad together
with advice and links to other useful sites.
DISABILITY NOW WEBSITE
www.disabilitynow.org.uk
Accessible holiday directory. Contains details of holiday properties in the United Kingdom
as well as Europe and further afield.
DISAWAY TRUST
www.disaway.co.uk
The Disaway Trust is a registered charity that organises group holidays with physically
disabled people aged 16 – 80.
HOLIDAYS WITH HELP
01772 739144
www.holidayswithhelp.org.uk
Offer respite care holiday breaks at various UK venues with experienced and trained
helpers and nursing care support for people with disabilities and their carers. Cater for all
types of disabilities dependant on the care needs of the individual. Will take bookings for
individuals, couples, families and groups.
HOTELS AND GUESTHOUSES
Many local hotels and guesthouses offer holiday accommodation suitable for people who
have additional needs. It is important that you explain what your needs are, before making
a firm booking, to ensure that the accommodation will be suitable for you.
JEAN CARR CHARITABLE TRUST
01243 370606
May be able to provide funding for people over 60 in West Sussex, living on a low income
or benefit, to have a holiday, or travel expenses to visit distant relatives.
KENSINGTON FOUNDATION DAISY CHAIN
PROJECT
01253 761444
www.kensingtonfoundation.com
A respite holiday programme for families who have children who are sick or who have
special needs, with properties in Blackpool.
LIVABILITY
08456 584 478
www.livability.org.uk
Holiday service for disabled people, their friends and families. Operate two hotels in
Llandudno and Minehead. Also offer a variety of self catering accommodation across
Britain. These include former Farrell Trust properties. Formerly John Grooms Holidays.
2012.
64
Holidays
RADAR
020 7250 3222
Minicom 020 7250 4119
www.radar.org.uk
National disability organisation campaigning for disabled people's rights and full integration
into society. Can provide information about holidays and produce a number of
publications.
TOURISM FOR ALL (incorporating Holiday Care)
0845 124 9971
www.tourismforall.org.uk
Provides information to people with disabilities and older people in relation to accessible
accommodation and other tourism services.
TRAVEL INSURANCE
Getting travel insurance can be a concern if the person travelling or on whom the trip
depends, is an older person or has a medical condition. A number of companies
specialise in either giving information or providing travel insurance for circumstances such
as this. Tourism for All can provide information on specialist insurers, or you may like to
try ICIS.
VITALISE
0303 303 0147
www.vitalise.org.uk
Provides short respite breaks in a holiday environment for disabled people and carers at
UK centres and run group holidays for visually impaired adults in the UK and abroad.
Centres offer 24 hour care and personal support for adults with physical disabilities.
Breaks for those with dementia and their partners or carers offered on specific weeks.
Group holidays cover many interests from relaxing on the beach to more adventurous
activity holidays including walking, skiing and horse riding.
2012.
65
Housing
HOUSING
Housing services include information and help with repairs or
adaptations, housing grants, rehousing, sheltered housing, home swaps
and homelessness advice. Contact the appropriate number below for
help on these topics and also information on property to rent, both in the
public and private sector. Otherwise contact Letting Agents or see
adverts in the local papers.
• Adur District Council, Housing Advice Service, Civic Centre, Ham
Road, Shoreham by Sea, 01273 263010
• Arun District Council, Civic Centre, Maltravers Road, Littlehampton,
01903 737751
• Horsham District Council, Park North, North Street, Horsham, 01403 215100
• Worthing Homes, Davison House, North Street, Worthing, 01903 703100
AGE UK
0800 169 6565
http://www.ageuk.org.uk/documents/engb/fs64_retirement_housing_fcs.pdf?dtrk=true
Can provide impartial, independent advice and information for residents and staff of rented
sheltered and leasehold retirement housing. Has a factsheet available on
sheltered/retirement housing.
CARINGINFO.COM
http://www.caringinfo.com
Website designed to help adults and older people in West Sussex, at every stage of the
aging process, make choices about any support services or care needs they may have,
including housing options.
FIRSTSTOP ADVICE
0800 377 7070
http://www.firststopcareadvice.org.uk/
FirstStop Advice is an independent, free service offering advice and information for older
people, their families and carers about housing and care options in later life. It is led by
the charity Elderly Accommodation Counsel (EAC) working in partnership with other
national and local organisations.
ELDERLY ACCOMMODATION COUNSEL
0800 377 7070
www.housingcare.org
National charity which maintains a nationwide database of accommodation specifically for
older people - sheltered, retirement housing to buy and rent, assisted living and extra care
schemes, and close care housing (sheltered accommodation where there is a care home
on site), both for personal care and for nursing. Through an independent Advice Line staff
also give guidance, advice and detailed information to help callers choose and fund the
accommodation or support most suited to their needs.
This Housing factsheet is the property of the Carers Support Service, Worthing & District, and may be
2012.
66
Housing
HOUSING OPTIONS
08454 561497
http://www.housingoptions.org.uk/
Advice service for people with learning disabilities, carers and professionals who work with
them. The aim is to provide answers to all housing related questions including benefits,
trusts, tenancies, choices available, mortgages, support and similar matters.
SHELTER
0808 800 4444
www.shelter.org.uk
Works for the provision of decent, secure, affordable housing as a basic human right.
Carries out campaigning activities and provides practical advice and advocacy services on
homelessness, benefits, housing disputes, disrepair, housing debt, and repossession, for
badly housed and homeless people.
SHELTERED OR SUPPORTED HOUSING
Sheltered or supported housing housing, for elderly frail people, or people with learning
difficulties or mental health difficulties, may provide additional support for people with
additional needs to live independently. Such accommodation may be available to rent or
buy. A number of commercial and voluntary organisations operate sheltered and
supported housing, and ICIS (0800 859929) or Carers Support Service (01903 536378)
can let you have details of these.
SOUTHDOWN
01273 405800
www.southdownhousing.org
Southdown provides outreach housing support for people aged 16-64 who are
experiencing problems in accessing or keeping accommodation.
STONHAM SIGNPOST SERVICE
01243 775281
www.homegroup.org.uk
Advice service for people with housing problems, including signposting to providers of
suitable accommodation and counselling services. Can provide home visits and floating
support. Drop in services are provided weekly in Littlehampton, Chichester and Bognor.
Area covered: Arun only.
WARM FRONT SCHEME
0800 316 2805
www.warmfront.co.uk
The scheme is now targeted at people on certain income-related benefits and living in
properties that are poorly insulated and/or do not have a working central heating system.
You must own your home or rent it from a private landlord. The Warm Front scheme is
only available in England. Qualifying households can get improvements worth up to
£3,500 (£6,000 where oil central heating and other alternative technologies are
recommended). Grants are available for improvements such as loft insulation,
draughtproofing, cavity wall insulation, hot water tank insulation, gas, electric, liquid
petroleum gas or oil heating, glass-fronted fire - the Warm Front scheme can convert your
solid-fuel open fire to a glass-fronted fire.
This Housing factsheet is the property of the Carers Support Service, Worthing & District, and may be
2012.
67
Learning Difficulties and Disabilities
LEARNING DIFFICULTIES AND DISABILITIES
ADDISS
020 8952 2800
www.addiss.co.uk
Provides information and resources about Attention Deficit Hyperactivity Disorder (ADHD)
to anyone who needs assistance - parents, sufferers, teachers or health professionals.
Information is available from publications through the website with a range of resources
about ADHD and associated conditions.
ADUR SPECIAL NEEDS PROJECT (ASP)
01273 441866
www.adurspecialneedsproject.com
A Sussex-registered charity committed to providing out-of-school respite and recreational
activities for young people with special needs age from 5 years. At present ASP provides
fortnightly weekend respite, a four week summer scheme, a weekly interactive youth club,
a weekly club for young people and young adults aged 13+ and a weekly club for adults
aged 18 and over.
ALDINGBOURNE TRUST
01243 544607
www.aldingbournetrust.co.uk
Provides services for adults with learning disabilities by developing their skills, helping
them gain employment in the local community and encouraging them to lead more fulfilled,
independent lives. Many of the people they support also have physical disabilities and
support is provided to ensure their lives are contented and secure. Services including
Acorn Centre, country centre, creative art studio, Powerful Trainers, residential services,
Work Aid, horse rug washing, social enterprises and more.
ARUN SUNSHINE GROUP
01903 731223
www.arunsunshine.org.uk
Small, friendly and happy group for adults with learning difficulties, meets on
alternative Sundays between 2pm-5pm in Dove lodge, Littlehampton. It
provides an opportunity for social and recreational activities such as pool,
table tennis, board games, crafts and outings. Members must be age 18 or
over and are invited to contribute £2 per session.
(£10 annual memebership)
AUTISM SUSSEX
01424 773366 or 01243
855502
Provide residential care services, community outreach support and day care support
services for adults with autistic spectrum conditions. Support people whose levels of ability
range from severe autism and learning difficulties to people with Asperger Syndrome.
Children and young people's services include short breaks, mentoring, sitting services,
individualised support to access various activities in the community and weekend and after
school clubs - these services are currently provided in the Worthing, Arun, Chichester and
Horsham areas.
This Learning Difficulties and Disabilities factsheet is the property of the Carers Support Service,
68
BEATBOX LEISURE
07561065089
www.beatboxworthing.co.uk
Beatbox Leisure is a charity which aims to provide a safe environment where people who
have learning disabilities have opportunities to socialise with their friends and enjoy new
experiences. Beatbox events are run by volunteers with and without learning disabilities
who have been trained in customers service skills including operating tills, runnung a
cofe/shop and using the DJ equipment, this develops confidence and the vital skills
needed for moving on into the workplace.
BRITISH INSTITUTE OF LEARNING DISABILITIES
01562 723 010
www.bild.org.uk
Works to improve the lives of people in the UK with a learning disability to be valued
equally, participate fully in their communities and be treated with dignity and respect. Their
services also include training for organisations, Positive Behaviour Support for schools and
running many projects like Aging Well, Giving us a Voice, Involve Me and many others.
BUDDYS (121 South Farm Road, Worthing)
01903 202030
www.buddys.ukf.net
This is a drop in and meeting place for people with learning difficulties and their families,
friends and supporters. Offers work experience in the café, information and meeting room.
Also runs “Out of Hours” club for young people with Aspergers and retirement club for
older people with learning disabilities.
CHALLENGING BEHAVIOUR FOUNDATION
General enquiries 01634 838739
Family support 0845 6027885
www.challengingbehaviour.org.uk
The aim of the foundation is to see children and adults with severe learning disabilities,
who are described as having challenging behaviour, having the same life opportunities as
everyone else, including home life, education, employment and leisure. They provide a
range of information about understanding and supporting children and adults whose
behaviour challenges. Their resources offer practical information about challenging
behaviour for family carers and professionals. Have family support workers and in addition
offers a family linking scheme, online networks for family carers and professionals and
positive behaviour support training.
CHANCTONBURY COMMUNITY PLAYSCHEME
(CCPS)
01903 741246
www.ccps-sussex.org.uk
CCPS is a registered charity and provides a summer play scheme for children aged 5 – 19
years with special needs (must have a statement of special educational needs). Activities
are matched to the children’s ability and needs and range from wheelchair ice skating to
music workshops and from fashion shows to visits to the funfair.
69
CIRCLES NETWORK
01444 236593
www.circlesnetwork.org.uk
Circles Network is a voluntary organisation which works to support communities in helping
people to avoid becoming isolated and socially excluded in their lives, with a specific focus
on disabled and disadvantaged adults and also children, young people and families. Has
expertise in the areas of Circles of Support, Individual and Collective Advocacy, Person
Centred Planning and Life Building, Peer Mentorship and Befriending, Transition Planning,
Family Empowerment and Parenting Skills, Three Dimensional Community Services and
Self-Directed Support, Community Outreach, Time Banking and Equine Facilitated
Learning.
COASTAL ENTERPRISES
01903 239460
www.coastal.ukf.net
A West Sussex County Council day centre for people over 18 years of age with learning
disabilities, providing a range of activities and training focused on work opportunities. The
aim is to enable customers to develop work skills with opportunities to progress onto
employment. Operates a range of training opportunities and business ventures designed
to provide continuous work opportunities, including Coastal Cookies (their commercial
catering enterprise), Coastal Cuppa coffee shop, woodwork and design, gardening,
horticulture and more. All referrals must be agreed by a social worker.
COMMUNITY TEAM for PEOPLE WITH LEARNING
DISABILITIES
The Community Team for People with Learning Disabilities (CTPLD) includes workers
from both Adult Services and Health. Every team includes Social Workers, Nurses,
Occupational Therapists, Psychologists, Psychiatrists and Speech and Language
Therapists. There are 3 teams that cover West Sussex, based in Chichester, Worthing
and Horsham.
• Adur Arun and Worthing - 01903 846656
• Chanctonbury / Horsham - 01403 223200
Services may include help and support with housing/accommodation, employment, daily
living, personal care, mental health, support in accessing NHS, behavioural challenges,
short breaks for carers, Carers Assessments, psychological well-being, sexual health,
person centred planning, health needs (specific to learning disability) speech, language
and communication, adapting to environments, community participation,
advice/information on available services and funding applications for services/resources.
FERRING COUNTRY CENTRE
01903 245078
www.ferringcountrycentre.org
Ferring Country Centre is a local independent charity that provides meaningful training and
work experience for people with learning difficulties. The clients develop work and social
skills by assisting with the operation of the Riding Therapy Unit, Garden Centre, Café and
Small Animals Farm.
70
FOUNDATION FOR PEOPLE WITH LEARNING
DISABILITIES
www.learningdisabilities.org.uk
This organisation influences government and local authority policies and services so that
they better meet the needs of people with learning disabilities, their families and carers.
They also raise awareness of learning disability issues amongst the wider public, in order
to break down stigma and discrimination.
GATEWAY CLUB (CHANCTONBURY AREA)
01273 492465
Club for people with learning difficulties. Meets weekly at Forest Youth Wing, Forest
School, Comptons Lane, Horsham.
GATEWAY CLUB (LANCING)
01903 764647
Club for adults with learning difficulties which meets at the Methodist Church Hall, Chester
Avenue, Lancing. Activities include craftwork, knitting, sewing, lego, jigsaw puzzles, chime
bars, colouring, skittles, team ball games, dancing, and playing percussion to music,
visiting live entertainment, Christmas party and trips out all year. Light tea provided, and
transport can be provided, charge will vary according to distance.
GROWING OLDER WITH DISABILITY (GOLD)
01903 528610
This is a needs-led service operated by Guild Care, providing a range of person-centred
individual and group activities which can respond sympathetically to progressive changes
in cognitive and physical ability. Meets every Thursday in the Healthy Living Centre,
Methold House.
IMPACT ADVOCACY SERVICE
01903 730044
www.impact-initiatives.org.uk
Provide independent high quality advocacy to people with disabilities in West Sussex.
Advocates can help people with a range of issues, understand their rights, make informed
choices and decisions, make their views and wishes known, make effective complaints,
understand what others are saying and obtain independent advice and impartial
information.
L'ARCHE
01243 863426
www.larchebognor.org.uk
Community for people with and without learning disabilities. Activities available to residents
and non-residents include crafts, gardening, cooking, IT, music and drama.
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LOOK UP
01372 755066
www.lookupinfo.org
Look up is an information service for adults with learning disabilities, family carers, eye
care professionals and health and social care staff. Provides a resource of information on
eye care and vision. Website contains directory of eye care professionals and helpful
factsheets.
MENCAP - ROYAL SOCIETY FOR MENTALLY
HANDICAPPED CHILDREN & ADULTS
0808 808 1111
http://www.mencap.org.uk
Advice and information service for adults and children with learning disabilities. Helpline
can provide help and advice on community care, benefits, education, employment,
housing, holidays, family and personal relationships. Can also offer advice on respite care,
individual budgets, self directed support and transport services.
Partnership Officer Surrey, East and West Sussex – tel: 07432 740100
MY NETWORK, WORTHING and LITTLEHAMPTON
01903 202030
A drop in service for people with learning disabilities offering information, advice and
support as well as activities and refreshments and opportunities to make friends. Meets in
Buddys Café in Worthing or Dove Lodge in Littlehampton
NATIONAL AUTISTIC SOCIETY
0808 800 4104
www.autism.org.uk
Information, support and specialist services to people with autism, including Aspergers
syndrome, their parents and professionals. Provides impartial and confidential information,
advice and support including information on the Autism Alert card. The Parent to Parent 24
hour telephone support service is a support and listening service run by trained parent
volunteers. Education Rights Service provides information, support and advice on
educational provision and entitlements to help parents and carers through education law.
National Autistic Society, Worthing Branch - to find out what is happening in Worthing
or for help and support contact Clare Greaves 07435 784999, email: worthing@nas.org.uk
THE OAK COMMUNITY PROJECT
01903 779739
Day service for adults with a learning difficulty. Programmes include work experience,
horticulture, social skills, literacy and numeracy, computers, daily living skills, photography
and community access. Has an allotment. The main centres are situated at the Woodlands
Centre in Rustington and Dove Lodge in Littlehampton.
72
OUT THERE! WORTHING
01293 544773
Sports and leisure club for adults over 18 years with learning difficulties which meets at
Worthing Leisure Centre and Field Place. Activities include trampolining, tennis,
badminton, football, arts and crafts, yoga, table tennis, music, dance, drama, beauty
therapy, sensory sessions, basketball, cricket, boccia, new age kurling and short mat
bowls. All sports sessions are lead by qualified coaches, with a good number of volunteers
assisting all activities. This is part of the Out There! West Sussex project, hosting similar
evening clubs and daytime activities across the county. Worthing Leisure Centre and Field
Place have disabled parking, ramps, level access throughout, wide doorways and
corridors, and accessible toilet.
PATHWAY TO WORK
01903 205882
www.a4epathways.co.uk
Employment support and training agency that prepares people who receive unemployment
benefit for new employment or return to work. It also acts as a recruitment agency for local
employers.
RESPOND
020 7383 0700
www.respond.org.uk
For people with learning difficulties who have experienced significant trauma in their lives.
Specialise in working with the effects of sexual abuse, but also with people whose
problems are not sexual. Provides support, advice and training for families and
professionals supporting people who have experienced trauma. Runs a project for parents
with learning disabilities, a Young People and an Elder People Project. Offers support for
the perpetrators of sexual abuse who themselves have learning difficulties. Provide a
bereavement counselling service.
SNAPS - WORTHING
01903 213611
www.stmatthewschurch.co.uk/sm4lls.htm
Drop-in support group for parents and/or carers of children 0 to 16 years with special
needs. Chat over a cup of tea or coffee, share experiences, find out about other relevant
groups or share new skills for living with a child with special needs. Brothers or sisters
under five also welcome. The premises are fully accessible with a wheelchair accessible
toilet and parking
SOUTHDOWN HOUSING ASSOCIATION,
LD Supported Living Service
01903 221063
Provides supported living services for people with learning difficulties in Horsham, Burgess
Hill, Worthing and Mid Sussex. Supported living tenants have their own flat or live in a
shared house where they have their own bathroom and share the kitchen and living areas.
Most schemes are staffed overnight to ensure safety. There are usually 5-7 flats together
so residents can make friends with their neighbours and share the support of staff as
needed.
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SUPPORTING PARENTS WITH AUTISTIC
07766 525909
CHILDREN EQUALLY (SPACE)
sussexspace@btinternet.com
Support group in Worthing for parents of children diagnosed with autistic spectrum
disorders. It gives an opportunity to chat with others, have a cup of coffee and cake, ask
questions, get information and to give mutual support. The venue is wheelchair accessible
with an accessible toilet and disabled parking.
THE BIG BRIDGE WEBSITE
www.thebigbridge.org
An on-line information resource for people with learning difficulties, their parents and
carers and social care professionals working in West Sussex. The website is designed to
offer practical, local information and signposting to services and support.
THURSDAY CLUB, SALVATION ARMY
01903 234497
www.worthingsalvationarmy.org.uk
Thursday club for young people with special needs including those with learning
difficulties, behavioural problems, Epilepsy, Down's Syndrome and Spina Bifida.
WEST SUSSEX LEARNING LINKS
01403 713513
www.wslearninglinks.org.uk
Charity providing a mentoring and befriending service for adults with learning disabilities
who would like to go to adult and community learning classes, social and leisure activities.
Volunteer 'buddies' are needed who could support a Learning Links student. Buddies can
choose the type of volunteering to undertake. Course fees and travel costs paid.
WEST SUSSEX SHARED
LIVES SCHEME
01444 254463
http://www.westsussex.gov.uk/living/social_care_and
_health/people_with_disabilities/adults_with_disabilit
ies_or/learning_difficulties/shared_lives.aspx
West Sussex Shared Lives scheme (formerly called the Adult Placement Scheme) is an
imaginative way of supporting vulnerable people and people with disabilities. Offers people
aged over 18 a highly flexible form of care - an opportunity to live an ordinary domestic life
as part of the 'approved carer's' life in the community. Shared Lives carers and their
families open their homes to provide people with a place to stay and the support they
need. They can help people for short periods during the day, welcome people to stay in
their home for short breaks, or provide a long term home to someone who needs one. It is
also possible for an approved carer to move into the home of a person requiring support
while the regular carer has a short break.
WORKAID
01243 546035
http://www.aldingbournetrust.co.uk
Supports and encourages people with learning disabilities to develop confidence,
preparation for work, job searching and communication skills. Also supports individuals
into supported employment.
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WORTHING AND DISTRICT
SCOPE
Day centre 01903 522399
Administration 01903 522366
Worthing and District Scope provides services to people with cerebral palsy and
associated disabilities. Services include advice, support and information available through
the community service, a day centre for adults, social housing, a club for children, their
siblings and parents and carers, and resource library open to members and non members.
Please see the website for more information.
WORTHING SPEAKABOUT
01903 824308
Mobile: 07748 088427
speakabout@btopenworld.com
A group providing self-advocacy for people with learning difficulties in the Worthing,
Littlehampton and Shoreham areas.
YOUR SPACE YOUR TIME
01273 465616
http://www.yourspaceyourtime.co.uk
Provides out of school and college activities by offering physical and emotional space for
children and young people to socialise and interact with their peers. Activities include
indoor and outdoor games, constructive play, role play, indoor and outdoor sports, art &
crafts, cookery, soft play, dance music and drama workshops, dance exercise, nature
projects, 13+ club, 18+ club and two fully equipped sensory rooms.
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Legal Matters
LEGAL MATTERS
It is generally advisable to consult a solicitor if you are concerned about any legal matters they are listed in the Yellow Pages. If you are not sure whether a solicitor is necessary or
you do not know how to find one contact your local Citizens Advice Bureau.
ADVICE NOW WEBSITE
http://www.advicenow.org.uk/
An independent, not-for-profit website that provides accurate information on rights and
legal issues. Aims to bring together the best information on the law and rights from over
400 UK websites. Also produces in-depth guides to advise people on how to face any
legal problems they have.
08444 771 171
www.citizensadvice.org.uk
Provides general help with community care, consumer and general contracts, debt,
education, employment, housing, actions against the Police, public law and welfare
benefits. The service is confidential, impartial and independent.
•
•
•
•
•
Horsham, Lower Tanbridge Way, Horsham (outreach appointments offered once a
month in Henfield, Steyning, Storrington and Pulborough)
Lancing & Sompting, Parish Hall, 96 South Street
Littlehampton, 14-16 Anchor Springs
Shoreham & Southwick, Pond Road, Shoreham by Sea
Worthing, 11North Street
COMMUNITY LEGAL ADVICE
0845 345 4345
West Sussex adviceline 08444 771171
Community Legal Advice (CLA) is a free and confidential advice service in England and
Wales paid for by legal aid. If you are living on a low income or benefits, you may be
eligible for free specialist advice from legal advisers on issues including: benefits and tax
credits; debt, education; housing; employment; and family problems. The advice is
independent and confidential. Community Legal Advice will ask you questions about your
problem and find out what help you need. You will be asked a number of questions about
your finances to see if you are eligible for legal aid.
DISABILITY LAW SERVICE (DLS)
020 7791 9800
www.dls.org.uk
Offers confidential, free legal advice to disabled people, their families and carers on
matters such as employment, disability discrimination, community care and welfare
benefits.
This Legal Matters factsheet is the property of the Carers Support Service, Worthing & District, and may
June 2012.
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Legal Matters
INDEPENDENT MENTAL HEALTH
0845 604 2712
ADVOCACY (IMHA) SERVICE
A statutory Independent Mental Health Act Advocacy (IMHA) Service provides advocacy
for people of all ages who are subject to compulsory powers under the Mental Health Act.
The IMHA Service exists to support your understanding of your rights under the Mental
Health Act. In West Sussex the IMHA Service is provided by Mind. Anyone who is directly
involved in your care or treatment can refer to the IMHA Service. You can also refer
yourself.
LAWWORKS
020 7092 3940
http://www.lawworks.org.uk/
Charity that aims to provide free legal help to individuals and community groups who
cannot afford to pay for it and who are unable to access legal aid. Also aims to provide a
wide variety of pro bono opportunities to lawyers through various projects. Operates a free
mediation service and an Initial Electronic Advice service, an online system which provides
answers to brief legal questions. Has a network of free legal advice clinics. Cannot help
with legal matters regarding crime, family or immigration.
MIND LEGAL ADVICE SERVICE
0300 466 6463
http://www.mind.org.uk/help/advice_lin
es
Provides legal information and advice on mental health related law covering mental health,
community care, capacity, discrimination, equality and human rights.
SOLICITORS FOR THE ELDERLY
0844 567 6173
www.solicitorsfortheelderly.com
Solicitors for the Elderly (SFE) is a national organisation of lawyers, such as solicitors,
barristers, and legal executives who are committed to providing and promoting robust,
comprehensive and independent legal advice for older people and vulnerable people and
their family and carers, and can provide a list of relevant solicitors in the area.
TELEPHONE ADVICE LINE FOR
TRAVELLERS
0845 120 2980
http://www.gypsy-traveller.org/yourrights/law/travellers-advice-team/
The Travellers Advice Team at the Community Law Partnership offer direct access to
experienced advisers on questions of evictions, planning matters, issues involving official
caravan sites and other matters. The helpline can provide legal advice by telephone and
post.
This Legal Matters factsheet is the property of the Carers Support Service, Worthing & District, and may
June 2012.
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Looking after Yourself
LOOKING AFTER YOURSELF
Caring for someone can be very hard work, physically and emotionally.
Although carers often choose willingly to care for someone they love, the
cost can be high in terms of loss of freedom, income and social
activities. It is very important to look after yourself and try to ensure
some personal time for rest, relaxation and the pursuit of your own
activities. These needs should be taken into account in your Carer’s
Assessment and by you, your family and friends. It will benefit no-one if your own physical
or mental health suffers as a result of your caring responsibilities. Talk to your doctor,
social worker and/or CSS, Worthing & District about how you can look after yourself as
well as the person you care for. Listed below are some ideas that may be useful. If you
do not see what you are looking for, call CSS, Worthing & District on 01903 536378 for
further information and suggestions.
BACKCARE (NATIONAL BACK PAIN ASSOCIATION)
0845 130 2704 or
020 8977 5474
www.backcare.org.uk
BackCare aims to significantly reduce the burden of back pain by providing information
and education to all people and organisations affected by back pain and to fund scientific
research into the causes, prevention and management of back pain.
BACK CARE WORKSHOPS
01903 536378
From time to time CSS, Worthing & District organises back care workshops for carers.
Ring to find out when they are planned.
CARERS DAYS
01903 536378
www.carerswsx.org.uk`
CSS, Worthing & District organises occasional carers days as an opportunity to relax with
other carers, enjoying a range of activities eg talks, creative activities, complementary
therapies, specialist groups, entertainment etc. Ring the above number or look in Carers
News for details. Help with transport and alternative care for the person you care for may
be available if you contact us well in advance.
CAREWELL WEBSITE
http://carewelluk.org/
Carewell is a partnership between BUPA, Carers UK and MEND to help carers and the
people they care for, make positive changes to be healthier and happier.
COURSES FOR CARERS
01903 536378
CSS, Worthing & District organises a range of courses for carers including:
• Dealing with Life
• Managing your Mobile
Please contact the above number to find out about current and future courses.
This Looking after Yourself factsheet is the property of the Carers Support Service, Worthing & District,
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Looking after Yourself
FUNDING FOR CARERS ACTIVITIES
01903 536378
CSS, Worthing & District can sometimes access funding for carers through the Carers
Trust eg.
• Equipment to make the carer’s life easier
CSS also has access to a small grant fund for Short Breaks for carers. ICIS (0800
859929) can provide information on other sources of funding.
HOLIDAYS AND SHORT BREAKS
01903 536378
See the factsheets on Holidays and Taking a Break. CSS, Worthing & District (number
above) and ICIS (0800 859929) hold a range of information on breaks, some especially
designed for carers.
LOW COST COMPLEMENTARY THERAPIES
01903 536378
We have been able to set up an arrangement with several local complementary therapists,
who have agreed to offer reduced cost complementary therapies to carers on our mailing
list. If you would like to take advantage of this, please contact us for a Carers Registration
Card and list of therapists taking part.
OTHER DISCOUNTS FOR CARERS
From time to time, local organisations may make arrangements for carers to obtain free or
reduced price entry to their facilities. It is worth asking at places such as cinemas, gyms,
leisure centres etc, if they are currently offering these.
This Looking after Yourself factsheet is the property of the Carers Support Service, Worthing & District,
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Mental Health Services
MENTAL HEALTH SERVICES
Anyone who is experiencing mental health difficulties should first see their GP, who will be
able to make an assessment, and either provide treatment themselves, or refer on to
specialist mental health services for assessment and/or treatment. Problems can range
from mild depression or anxiety, through to more serious problems in which someone’s
behaviour, emotional or mental state can be seriously affected.
For the carer, getting the person they care for to begin to ask for help can be one of the
most difficult times. The person experiencing the problems may feel unable to tell
someone else what is going on for them; they may be frightened or ashamed, feel that
they must sort out the difficulty themselves, or feel that nothing can be done to help.
Although the situation is gradually changing, there is still stigma attached to mental health
difficulties.
Carers should not be afraid to ask for help for themselves, as the caring role can be very
demanding. The carer may well want more information about the particular illness that the
person they care for is suffering from, information about local services, or just someone to
talk to about the situation.
If the person experiencing the problems does not feel able to talk to a health professional
about their difficulties, it may be necessary for the carer to make the first approach to the
GP, who should be able to advise on the options available. Phoning one of the help-lines
mentioned in this section, or Carers Support Service Worthing & District, may help in this
case.
One in Four
It is important for both the person experiencing problems and their carer to recognise that
mental health difficulties are very much a part of modern life, with one in four of the
population seeking help for such a problem at some stage. Unfortunately, acknowledging
that there is a problem can be difficult, but generally speaking, the earlier that help is
sought, the less a person’s life will be seriously affected. The GP may decide that he can
deal with the difficulty himself, and prescribe treatment such as medication, or refer
someone to a course of counselling. The GP will also check the person’s general health,
as there are a number of physical illnesses which can produce symptoms of mental ill
health.
Specialist Mental Health Services
If the GP decides that specialist help is needed, he will refer the
person, usually to one of the Mental Health Services Teams which are
described later on in this section. Each team has a range of specialist
staff that will assess what treatment is needed. Patients are often
treated in the community as outpatients, but if the problem is more
serious the person may be offered a stay in an inpatient unit whilst
treatment is started and the person’s situation is stabilised.
This Mental Health Services factsheet is the property of the Carers Support Service, Worthing & District,
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Stays in inpatient care are comparatively short in most cases, but are often
followed by periods of care in the community. There are a range of support services which
operate in the community, from the Mental Health services Teams, to supported
accommodation, day centres, employment projects, advocacy projects, outreach projects
and a county-wide mental health helpline.
Care Plans
If someone has a severe mental health problem or a range of different needs then their
care may be coordinated under a care plan approach (CPA). In these cases there should
be a formal written care plan.
Information
Carers often feel poorly informed about the services that the person they care for is
receiving, and about the nature of the illness they are suffering from. Carers should be
able to approach those professionals providing the care to ask for further information. In
most cases the information will be readily available, although issues of confidentiality may
prevent professionals from passing on information in some cases. Where a carer feels
they are not being given the information they need about the care and treatment of the
person they care for, they should approach the service concerned and make their own
needs for information clear, or contact Carers Support Service, Worthing & District if they
need support in such an approach.
Further Enquiries
There are also a number of specialist national mental health organisations that we can put
you in touch with. For further details, for emotional support or any other enquiry, contact
Carers Support Service, Worthing & District on 01903 536378.
CARERS SUPPORT SERVICE
MENTAL HEALTH CARERS SUPPORT GROUPS
01903 536378
The groups aim to provide information and support to carers of people who use mental
health services in the area. The groups offers the chance to meet and talk with other
carers, find out more about local services, share information about mental health issues
and hear speakers on mental health topics.
• Meadowfield, Swandean Hospital, Arundel Road, Worthing meets on the second
Monday of the month (not Bank Holidays) from 6pm – 8.pm.
• Wickbourne Centre peer support group Clun Road Wick, Littlehampton, meets the
last Tuesday of the month from 10am – 12 noon. There is also a carers drop
in/surgery at The Wickbourne centre from 9am – 10am prior to the peer support
group.
01403 227000 227206/227021
HORSHAM AND CHANCTONBURY
Carers support group for carers of people with mental health needs in Horsham &
Chanctonbury. They offer mutual support and sharing of information. Meets on the last
Thursday of each month in the club room at Horsham Hospital from 7pm until 8.30pm.
CARERS SUPPORT GROUP MENTAL HEALTH
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CLINICAL PSYCHOLOGY SERVICE
01903 843530
Part of Sussex Partnership NHS Trust, provides general psychological and counselling
services for adults and people with learning difficulties, and specialist psychologists for
neuropsychology, health and pain. Child and adolescent psychology services are now
located at the Children's Centre, Worthing Hospital. Also covers eating disorders, HIV and
autistic spectrum conditions.
CRISIS RESOLUTION & HOME TREATMENT TEAM
Operating on a 24 hour, 7 day a week basis, this multi-disciplinary service run by Sussex
Partnership NHS Trust aims to provide a realistic alternative to a hospital admission during
a time of mental health crisis. Referrals are made by the Mental Health services team and
in-patient services.
DAY AND INPATIENT CARE and DROP IN CENTRES
• Acre Day Hospital, Worthing
Day Hospital providing support for adults with mental health problems. Referrals
received via the mental health services teams.
•
Meadowfield Psychiatric Unit
Unit providing in-patient care for people with mental health problems.
•
Arun Care
Aims to improve the quality of life for people who are suffering or recovering from
mental health problems in Littlehampton. Phone 01903 770400. Drop in centre at
Littlehampton United Church Hall, every Thursday, between 1pm and 4pm. Also
provides once a month outing for service users. Carers also can attend outings.
•
•
Friday Friends, Henfield
Self-help group supported by volunteers (formerly Willow Drop-in Group) for people
recovering from psychiatric illness or carers who are isolated. The group offers
emotional and practical support, refreshments and activities are available. Meets on the
third Friday of the month at 1pm. Phone 01273 492227, 01273 494159 or 01273
492680. Area(s) covered: Chanctonbury only.
Halcyon Club, Shoreham
Social contact for older people including those who have suffered with mental health
difficulties or general health problems and be feeling isolated or lonely. They are unable
to cater for people with Alzheimer's disease or dementia and cannot provide help with
personal care during meetings. Meets on Thursdays between 2pm and 5pm at St
Peter's Church Hall, West Street, Shoreham. It may be possible to arrange transport
within the Adur district. Activities (optional) include craft, games, gentle exercise,
musical entertainment and occasional outings. Phone 01273 556510
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•
Henfield Day Centre
Based at Hewitts, Henfield, the Day Centre is open on Mondays, Wednesdays and
Fridays for people with long term or complex care needs such as physical disabilities
and, people with dementia. On Tuesdays and Thursdays it is open for people with
dementia, phone 01273 493119. Area covered: Cowfold/ Partridge Green and
Steyning. only.
•
Littlehampton Community Services
A resource centre run by Worthing/Arun MIND for people with mental health problems.
The centre cannot cater for people with Alzheimers disease or dementia. Referrals can
be made by care co-ordinators, GP and self referrals. Contact 23 Maltravers Drive,
Littlehampton on 01903 721893. Area(s) covered: Littlehampton/ Arun.
•
Shoreham and District Mental Health Association Centre – The Cornerhouse
A registered charity providing an independent day centre for people living in Adur, aged
18-65 who have suffered or are suffering mental health difficulties, offering support and
a wide range of activities including peer mentoring. Phone 01273 871575.
•
Tea & Chat Club – Littlehampton
A drop-in centre that caters for people with mental health problems. The club provides
activities, refreshments and lunch for a small charge. United Church Hall, High Street,
Littlehampton once a week on Tuesdays from 10am-3.30pm.
Phone 01903 782876.
EARLY INTERVENTION IN PSYCHOSIS SERVICE
01903 843695
Mental health service for young people at risk of developing (or those experiencing)
symptoms of psychosis for the first time. The service focuses on recovery. The support
includes help with employment, relapse prevention and getting back into meaningful
activity. The premises are accessible for wheelchairs and there is disabled parking.
Referrals can be accepted from any source including self or carer.
IMPACT INITIATIVES – WEST SUSSEX
01903 730044
Textphone 01903 735957
This service is for unemployed adults (18-65) with mental health needs, physical/sensory
disabilities, or acquired brain injury and offers individual guidance and assessment,
information and advice on careers, education courses, training and work opportunities,
support in accessing voluntary work, training programmes, educational courses and paid
work, skill development including preparation of CVs, interviews and job search.
INDEPENDENT MENTAL HEALTH
0845 604 2712
ADVOCACY (IMHA) SERVICE
The statutory Independent Mental Health Act Advocacy (IMHA) Service provides advocacy
for people of all ages who are subject to compulsory powers under the Mental Health Act.
In West Sussex the IMHA Service is provided by MIND. Anyone who is directly involved in
your care or treatment can refer to the IMHA Service. You can also refer yourself.
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MENTAL HEALTH CARERS SUPPORT WORKERS
01903 536378
These posts with CSS, Worthing & District cover Adur, East Arun, Chanctonbury and
Worthing, and support carers of people of working age who have a mental health difficulty
which is not dementia.
MENTAL HEALTH SERVICES
01903 843888
Part of Sussex Partnership NHS Trust, the teams include CPN’s (Community Psychiatric
Nurses), Psychiatrists, Social Workers and Occupational Therapists. Adur, Arun and
Worthing psychiatric services are all based at the Chanctonbury Building, Swandean
Hospital site, Arundel Road, Worthing, West Sussex. BN13 3EP.
MENTAL HEALTHLINE – WEST SUSSEX
0300 500 0101
A 24 hour confidential helpline run by Sussex Partnership NHS Trust for
people coping with mental health difficulties, extreme distress and suicidal
feelings, their carers or families and anyone who needs advice or
information about mental health services. Can provide practical advice
about what help is available and emotional support / a listening ear.
MIND – NATIONAL ASSOCIATION FOR MENTAL
HEALTH
0845 766 0163
www.mind.org.uk
Information on all aspects of mental health including legal matters for service users,
carers, family and friends, researchers, students, service providers and the public.
MIND WEST SUSSEX ADVOCACY PROJECTS
0845 604 2712
MIND West Sussex Advocacy Services for adults aged 18-65, and young people aged 1119 who are inpatients or living in the community. Speak your Mind Advocacy (for young
people) has two workers for North and South areas of West Sussex. Also Independent
Mental Health Advocates in North and South West Sussex specifically for detained
patients.
NO PANIC
0808 80800545
This is a confidential helpline for people with phobias, anxiety or who have obsessive and
compulsive disorders or who are suffering tranquilliser withdrawal. Also helps, advises
and supports carers of those with borderline personality disorder. Services include fact
sheets and self-help booklets.
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RESPITE SERVICE
01273 871573
http://www.corner-house.org.uk
Respite service covering Adur, Arun and Worthing. Works in partnership with carers to
offer help to people of all ages who have mental health problems and who are receiving a
service from their local Community Mental Health Team. The service is an innovative way
to meet people's needs and offers an assessed, activity based service which provides a
break away from the home. Breaks can be taken with or without a carer depending on
circumstances and carers may be able to access a grant from the Carers Short Break
Fund if eligible.
RETHINK
0845 4560455
www.rethink.org
Provides a national advice service to people with severe mental illness including
schizophrenia. Support and advice is also offered to their relatives, friends and carers.
SANE
SANELINE 0845 767 8000
www.sane.org.uk
SANE aims to raise awareness, respect and standards of education, training and secure
services for people with mental illness. SANELINE is an ‘out of hours’ information and
emotional support line to those experiencing mental health problems. Support and advice
is also offered to their families and carers.
SOUTHDOWN HOUSING ASSOCIATION
01273 405800
Non-profit making housing association that provides housing and support for adults with
mental health and learning disabilities. In addition, Southdown has day facilities and
supported employment services.
SUSSEX PARTNERSHIP CARERS
CHARTER
01903 843185
http://www.sussexpartnership.nhs.uk
/public/carer-info/charter/
This Carers' Charter is Sussex Partnership Trust’s statement of values, principles and
standards in relation to all carers of people who use the organisations specialist mental
health, learning disability and substance misuse services. The Charter covers how the
Trust intends to address the areas which carers have said are important, such as
Information, Assessment processes, Short breaks, Emotional support, Support to care and
maintain carer’s own health, Having a voice, A life beyond caring, and Equality and
diversity.
TRIUMPH OVER PHOBIA
0845 600 9601
info@topuk.org
This organisation teaches structured self-help to people who suffer with phobias and
obsessive compulsive disorder. Send S.A.E. to PO Box 3760, Bath BA2 3YW for latest
information on location of groups.
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UNITED RESPONSE
01903 733078
United Response is a charity working across England and in Wales supporting people with
learning disabilities, mental health needs or physical disabilities. Provides support and
information about work and training together with supported housing.
WEST SUSSEX EARLY INTERVENTION SERVICE
01403 223200
Mental health service for young people at risk of developing, or those experiencing,
symptoms of psychosis for the first time. The service focuses on recovery which is very
common for this client group. The support includes help with employment, relapse
prevention and getting back into meaningful activity.
YOUNG MINDS
020 70895050
Parents helpline 0808 802 5544
www.youngminds.org.uk
Charity committed to improving the emotional well being and mental health of children and
young people and empowering their parents and carers.
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Palliative Care
PALLIATIVE CARE
CHASE HOSPICE CARE FOR CHILDREN
01483 230960
www.shootingstarchase.org.uk
CHASE Hospice Care for Children charity provides practical and emotional care and
support to life-limited children, young people and their families in south west London,
Surrey and Sussex. Support is provided at home and in the community by specially trained
professionals and at children's hospice in Guildford. Support includes respite, palliative
and end of life care.
CHESTNUT TREE HOUSE
0845 450 5820
www.chestnut-tree-house.org.uk
Hospice for young people aged 0-19 with progressive life-limiting and life-threatening
illnesses in Sussex. Offers respite care, crisis care, day care, end-of-life care and
bereavement support. Facilities include multi-sensory room, hydrotherapy pool, computer
room, wet and dry play areas, sensory garden, young person’s wing, chapel and
bereavement suite, all areas accessible. Community service available offering respite
care, activity days and teenager programme.
HOME CARE AGENCIES
Many agencies can provide palliative care. For a list of agencies and assistance with
finding one which can provide the care you require, contact Carers Support Service,
Worthing & District on 01903 536378. West Sussex Care Guide (available from County
Hall, Chichester) is a complete list of registered agencies.
NURSING HOMES
Many nursing homes can provide palliative care. For a list of homes and assistance with
finding suitable vacancies contact Relatives Support Service at CSS, Worthing & District
01903 536378. West Sussex Care Guide (available from County Hall, Chichester) is a
complete list of registered nursing homes.
PALLIATIVE CARE TEAM
01903 205111 ext 4801
Provides care and support for people with terminal illness and their families (cancer and
non-cancer). Two full time Macmillan Palliative Care nurse specialists work Mon-Fri for
palliative patients and their family, from diagnosis to the dying patient. Works with the
Community Palliative Care Nurse Specialist and the Community Primary Care Teams, and
St Barnabas House, Columbia Drive, Worthing. Hospital support at Worthing Hospital,
Lyndhurst Road, Worthing for Worthing and Southlands Hospitals.
This Palliative Care factsheet is the property of the Carers Support Service, Worthing & District, and may
July 2012.
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Palliative Care
ST BARNABAS HOUSE
01903 524106
www.stbh.org.uk
The inpatient unit has beds for specialist respite care, complex symptom control and
complex end of life care but no long-term residential care. Also operates a day care
service. This is for all advanced progressive diseases with specialist needs. Provides
services for the Worthing, Littlehampton, Lancing, Shoreham, Southwick, Storrington, and
Henfield areas. All referral via GP, or Hospital Consultant.
TOGETHER FOR SHORT LIVES
Helpline 0845 108 2201
www.togetherforshortlives.org.uk
A national charity seeking to promote excellence and equity of provision of care and
support for children and young people with life-threatening or life-limiting conditions and
their families. Campaigns for improved service provision, supports professionals and
informs and empowers families. Database of support services available for families and
professionals working with them.
This Palliative Care factsheet is the property of the Carers Support Service, Worthing & District, and may
July 2012.
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Physical Disabilities, Illnesses and Conditions
PHYSICAL DISABILITIES, ILLNESSES AND CONDITIONS
In this section you will find details of organisations that we are asked for most often, but
many more exist covering an enormous range of conditions, illnesses and disabilities please contact ICIS on 0800 859929 or CSS, Worthing & District on 01903 536378 for
details.
ADUR STROKE CLUB
01273 453760
Meet on Fridays 2-4pm at Marsh House, Park Lane, Southwick. Offers companionship,
social activities and rehabilitation for members. Area(s) covered: Adur only.
BRITTLE BONE SOCIETY
01382 204446
www.brittlebone.org
This is a UK wide charity which gives support and advice to people who have
osteogenesis imperfecta (brittle bones), and their relatives.
DIABETES UK (BRITISH DIABETIC
ASSOCIATION) LOCAL GROUPS
Careline 0845 120 2960
01372 720148
www.diabetes.org.uk
Charity for people with diabetes, their family, friends and carers. It produces a wide range
of magazines, books and leaflets covering all aspects of diabetes.
DIFFERENT STROKES
01903 740055
www.differentstrokes.co.uk
Different Strokes is a national charity formed for stroke survivors, which now has branches
in many parts of the country. The West Sussex Different Strokes group runs weekly
exercise and social meetings, held from 2pm—3.30pm on Thursdays at Chanctonbury
Sports and Leisure Centre, Storrington. The exercise session is taken by an experienced
exercise professional.
FIBROMYALGIA SUPPORT GROUP
07796 653477
www.fmswaws.org
Aims to support, advise and encourage those who have fibromyalgia through meetings
and social gatherings. People with Myalgic Encephalomyelitis (ME) and Chronic Fatigue
Syndrome are also welcome. Meets at Ferring Baptist Church 6.30pm-9pm every third
Tuesday.
HEADWAY
01903 693471
www.headway-in-west-sussex.org.uk
Aims to provide information, support and advocacy for people with brain injuries, their
families and carers, including self help groups and day centres. Support group meets at
Buddy’s Café 121 South Farm Road, Worthing on the 1st Wednesday of the month from
6pm-8pm.
This Physical Disabilities, Illnesses and Conditions factsheet is the property of the Carers Support
Service, Worthing & District, and may be copied in its entirety only, for personal or non-incomegenerating professional use. No responsibility or inferences can be assumed for any inaccuracies,
inclusions or omissions. Information last checked July 2012.
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HUNTINGTONS DISEASE ASSOCIATION
01903 772046 or 0151 3315444
www.hda.org.uk
National charity which promotes research provides information, support and advice,
including financial support when appropriate. Local group covers East and West Sussex,
and provides support, information and care for sufferers, carers and "those at risk".
Monthly meetings are held at Cliffe Church Hall in Lewes.
MOTOR NEURONE DISEASE
ASSOCIATION (MNDA)
West Sussex South 01243 544241
West Sussex North 01444 245486
National 08457 626262
www.mndassociation.org
Provides information, advice and support for people with MND and their carers. Local
meetings are held regularly; contact either of the above numbers for details.
MS SOCIETY
01903 527074 or 0808 800 8000
www.mssociety.org.uk
The MS Society funds MS research, runs respite care centres, provides grants, education
and training on MS. It produces numerous publications on MS and runs a free phone
specialist helpline. Local group offers advice, support and regular meetings.
The Sussex Multiple Sclerosis Treatment Centre offers support and complementary
therapies for people with Multiple Sclerosis, including High Dosage Oxygen Treatment, or
just tea and a chat. Phone 01273 594484. Website: www.mssussex.com
PARKINSONS DISEASE SOCIETY
01903 691937 or 0808 800 0303
www.parkinsons.org.uk
Nationwide charity dedicated to supporting all people with Parkinson's, their families,
friends and carers. Local support group provides social contact and information for people
with Parkinson's Disease and their carers, and meets on the fourth Saturday of each
month from 10.30am at Bury Drive Methodist Church Hall, Worthing.
SASBAH – SUSSEX ASSOCIATION FOR SPINA
01825 873045
BIFIDA & HYDROCEPHALUS
www.sasbah.org
Provides support for people with spina bifida and/or hydrocephalus in East and West
Sussex, including advice, support and friendship, and possible welfare grants.
SPINAL INJURIES ASSOCIATION
0800 980 0501
www.spinal.co.uk
National organisation of spinal cord injured people, supporting all those who are affected
by spinal cord injury, including the family and friends of the disabled person. Offers help,
advice and factsheets.
STROKE ASSOCIATION
0303 303 3100
www.stroke.org.uk
Information and advice for people who have had a stroke, their families, friends and
carers.
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WORTHING AND DISTRICT
01903 522366
SCOPE
A local charity that offers support and services to adults and children in West Sussex with
cerebral palsy and similar disabilities, their families, carers and friends. Includes a day
centre for adults, community services, family support group and housing projects.
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Residential Care
RESIDENTIAL CARE
A residential care home provides accommodation with meals and personal care for people
who need assistance and supervision, such as help with dressing, washing, and
administration of medicine. A nursing home provides a higher level of care where there
are medical needs.
West Sussex County Council can provide advice and guidance on choosing a home, and
subject to both a full assessment of the person needing care and a financial assessment,
may provide financial assistance towards the cost of a place in a home.
The decision for someone to go into a home is complex, and involves difficult financial
decisions. There are a number of organisations that can provide information on this, and
checklists that can be used to help select a home. Please contact CSS, Worthing &
District on 01903 536378, or Age Concern West Sussex (Age UK) on 01903 731800 for a
list of organisations who can help with information. Do not hesitate to visit several homes
before you make a choice to ensure that all the needs of the person going into care are
met.
Most Residential and Nursing Homes will offer short term respite or convalescent breaks if
they have a room available. Some are able to accept bookings in advance.
www.carehomesguide.com is a definitive guide to national care homes.
CAREAWARE
0161 7071107
www.careaware.co.uk
CareAware is a non profit making public information, advisory and advocacy service
specialising in elderly care funding advice in the UK.
CAREWISE
01243 642555
www.westsussex.gov.uk/carewise
Carewise offers advice and information about the range of care and support options, and
the most effective ways of paying for care. It has been established by Age UK West
Sussex, the Society of Later Life Advisors (SOLLA), West Sussex Forum and West
Sussex County Council’s Adults’ Services and Trading Standards.
CHOOSING A HOME
The experience of relatives, friends or other carers can be useful and reassuring when
choosing a home, and discussing the needs of the person to be cared for with the
proprietor of the home is essential. Ask to meet staff and other residents, look at the
cleanliness, menus, choice of activities offered, additional services available and the costs
eg chiropody, hair dressing etc. For a booklet of all registered homes in West Sussex
contact your local West Sussex County Council Help Desk, or County Hall on 01243
777100.
This Residential Care factsheet is the property of the Carers Support Service, Worthing & District, and
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Residential Care
THE CARE QUALITY COMMISSION
03000 616161
www.cqc.org.uk
The Care Quality Commission regulates health and adult social care services in England,
whether they're provided by the NHS, local authorities, private companies or voluntary
organizations. They hold a directory of registered homes.
ELDERLY ACCOMMODATION COUNSEL
0800 377 7070
www.housingcare.org
National charity which maintains a nationwide database of accommodation specifically for
older people - sheltered, retirement housing to buy and rent, assisted living and extra care
schemes, and close care housing (sheltered accommodation where there is a care home
on site), both for personal care and for nursing. Through an independent Advice Line staff
also give guidance, advice and detailed information to help callers choose and fund the
accommodation or support most suited to their needs.
NHFA
0800 998833
www.nhfa.co.uk
NHFA is a commercial organisation which provides advice to all older people and their
families, regardless of means, on all the financial implications relating to obtaining and
paying for care.
RELATIVES AND RESIDENTS ASSOCIATION
020 7359 8136
www.relres.org
A national organisation which provides information and support for those in or considering
long term care, their relatives and friends, including advice on finding a care home, paying
fees, concerns about care, and involving families and friends in homes.
This Residential Care factsheet is the property of the Carers Support Service, Worthing & District, and
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Speech and Language Difficulties
SPEECH AND LANGUAGE DIFFICULTIES
AFASIC – UNLOCKING SPEECH & LANGUAGE
0845 355 5577
www.afasic.org.uk
Aims to increase awareness and recognition of communication impairments, leading to
early assessment and diagnosis, and better educational provision, employment and
training prospects. Offers advice, information, support, seminars/workshops, self help
groups and a newsletter.
ARCOS - Association for Rehabilitation of
Communication & Oral Skills
01684 576795
http://www.arcos.org.uk
National charity working for improved services for people with communication and eating
(swallowing) difficulties. Services include nationwide assessment, multi-disciplinary
training courses, information and advice and equipment loan.
SPEAKABILITY (ACTION FOR DYSPHASIC ADULTS)
Local 01903 770251
National 0808 808 9572
www.speakability.org.uk
For people with dysphasia and carers of people with communication difficulties following a
stroke, head injury or brain tumour. Local group meets on the last Wednesday of each
month at United Reformed Church Hall, Shaftesbury Avenue, Goring by Sea.
SPEECH AND LANGUAGE SERVICE
This is a comprehensive service for children and adults who may be experiencing
communication and/or swallowing problems. Therapists work in a wide range of locations
and offer diagnosis, assessment, treatment and advice. Referrals can be made via your
GP practice or you can contact the service direct.
• Adults in Adur Arun and Worthing - 01903 846525
• Adults in Chanctonbury - 01403 227000 ext 7167
• Children in Adur, Arun, Worthing and Chanctonbury - 01903 846580
This Speech and Language Difficulties factsheet is the property of the Carers Support Service, Worthing
& District, and may be copied in its entirety only, for personal or non-income-generating professional
use. No responsibility or inferences can be assumed for any inaccuracies, inclusions or omissions.
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Substance Misuse
SUBSTANCE MISUSE
ACTION ON ADDICTION
www.actiononaddiction.org.uk
A registered charity offering a range of services for people with a severe dependency on
alcohol and/or drugs and their families, including. Offers information, family support
services, treatment programmes, training in addiction studies including a foundation
degree, research programmes, news and campaigns.
ADDACTION - WORTHING
01903 237038
www.addaction.org.uk
www.westsussexdaat.co.uk
Community based day care treatment programme to provide flexible, structured and
individualised support for people aiming to live drug and alcohol free lives. Operates a
group work programme that incorporates key working, and individualised care plans and
includes links to education, training and employment opportunities.
AL-ANON FAMILY GROUPS
020 7403 0888
www.al-anonuk.org.uk
Offers understanding and support for families and friends of problem drinkers. Alateen,
(same telephone number – part of Al-Anon), is for young people aged 12-17 who have
been affected by someone else’s drinking. For details of meetings, call the helpline.
ALCOHOLICS ANONYMOUS
01273 203343 or 08457 697555
www.alcoholics-anonymous.org.uk
Provides a 24 hour helpline offering support, information and advice for anyone affected by
an addiction to alcohol.
CHILDREN OF ADDICTED PARENTS AND PEOPLE (COAP)
www.coap.co.uk
Online charity for young people affected by someone else's addiction to drugs, alcohol or
some form of behaviour such as gambling. Peer led support network that enables young
people to come together to share their experiences and support each other.
CRI WEST SUSSEX YOUNG PERSONS SUBSTANCE MISUSE
01903 230600
SERVICE
Offers treatment and support to young people and their families where there are drug and
alcohol issues.
FAMILIES ANONYMOUS
0845 120 0660
www.famanon.org.uk
Offers support through a helpline and self-help groups to families and friends of those with
a drug or drug-related behaviour problem.
This Substance Misuse factsheet is the property of the Carers Support Service, Worthing & District, and
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Substance Misuse
FRANK
0800 776600
www.talktofrank.com
Website and helpline available 24 hours a day for free and confidential drugs information
and advice for young people, their parents and friends. A translation service is available for
other languages.
NATIONAL ASSOCIATION FOR
CHILDREN OF ALCOHOLICS - NACOA
0800 358 3456
www.nacoa.org.uk
Provides information, advice and support to children of alcohol-dependent parents and
people concerned with their welfare.
NATIONAL TREATMENT AGENCY FOR
SUBSTANCE MISUSE WEBSITE
www.nta.nhs.uk
NHS special health authority established to improve the availability, capacity and
effectiveness of drug treatment in England. The website has sections for those involved in
providing drug treatment, for drug users, their families and carers and items of public and
general interest.
SUSSEX ALCOHOL & SUBSTANCE USE SERVICES (SASS)
01273 727888
This service aims to minimise the misuse of alcohol and other substances and thereby
reduce the harm to the individual and the community. Offers one to one confidential
counselling for anyone concerned about their own drinking or someone else's.
SUSSEX PARTNERSHIP CARERS
CHARTER
http://www.sussexpartnership.nhs.uk/pub
lic/carer-info/what-spdoes/charter/full/?locale=en
This Carers' Charter is Sussex Partnership Trust’s statement of values, principles and
standards in relation to all carers of people who use the organisation’s specialist mental
health, learning disability and substance misuse services. The Charter covers how the
Trust intends to address the areas which carers have said are important, such as
Information, Assessment processes, Short breaks, Emotional support, Support to care and
maintain carer’s own health, Having a voice, A life beyond caring, and Equality and
diversity.
WEST SUSSEX DRUG
0800 085 4450
AND ALCOHOL ACTION
http://www.westsussex.gov.uk/living/social_care_and
TEAM (including Families
_health/adults/drug_and_alcohol_services/west_suss
and Friends Network and
ex_drug_and_alcohol_a.aspx
Dig-it)
The Families & Friends Network supports anyone affected by someone else's drinking
and/or drug use. Services include information about drugs and alcohol, local drop in
services and support groups, and individual appointments.
Dig-it is aimed at 11-24 year olds across West Sussex, and aims to provide realistic,
interesting and informal information about drugs, alcohol, crime and addiction.
This Substance Misuse factsheet is the property of the Carers Support Service, Worthing & District, and
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Taking a Break
TAKING A BREAK
It is widely acknowledged that to enable carers to continue in their caring role, that many of
them will need occasional or regular breaks from the caring situation. Previously this was
called ‘respite’, but is now more commonly known as ‘short term breaks’.
Short term break opportunities for the person you are caring for may include day care in a
day centre or day hospital, or perhaps someone coming into the home to sit with the
person, whilst the carer gets some time to themselves. Longer term care could be in a
residential care home or nursing home, in a hospital or perhaps a supported holiday.
Access to short term breaks may be ‘open’, e.g. the carer may contact the service directly
and ask for a short term break, or may involve a referral from Health or West Sussex
County Council. CSS, Worthing & District (01903 536378) and ICIS (0800 859929) hold
information on various short breaks and holidays. See also ‘Holidays’ and ‘Residential
Care’ Factsheets.
ACRE DAY HOSPITAL
01903 216807
Day hospital providing care for people under 65 with mental health problems from the
Worthing area. Referral is via your Community Mental Health Team.
ALZHEIMERS SOCIETY, SUSSEX LOCALITY
01903 267902
Provides information, support and advice to people with Alzheimer’s disease and other
forms of dementia and their families, including advocacy for the cared-for person. Can
provide relief care assistants who visit families at home giving carers a break for 3-4 hours
once or twice a week, at a modest charge. Details of local groups are in the Advice &
Information, and Carers Groups Factsheets.
ARUN SUNSHINE GROUP
01903 731223
Provides a fortnightly group for adults with learning difficulties on alternate Sunday
afternoons between 2pm and 5pm at Dove Lodge, Littlehampton.
ASP
01273 441866
Provides a variety of activities and clubs for children and young people aged up to 23 with
additional needs, including evenings and weekends, and a summer scheme in the summer
holidays. Activities include pool, football, table tennis, outdoor and indoor games, art and
crafts, cookery, computer games, music and films, fully equipped sensory room. Also
depending on age, participation in group activities such as visits to cinema, ten pin
bowling, games of pool, summer barbecues, etc.
This Taking a Break factsheet is the property of the Carers Support Service, Worthing & District, and
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Taking a Break
CROSSROADS CARE
01903 790270
www.crossroadscare-sc.org
Crossroads Care provide home-based respite care, taking over the role of the carer during
the day or night to enable the carer to have a few hours to themselves. Caters for all ages
including children.
DAY CARE SERVICES
Day care may be available at an Adult Services Day Centre, following an assessment by a
Social Worker. There is usually a single charge covering both home care and day care
services, which is based on the income of the person receiving the services.
The following centres cater for adults, primarily older people.
• Henfield Day Centre - Hewitts, Henfield, 01273 493119
• Glebelands - Middle Road, Shoreham-by-Sea, 01273 268920
• The Laurels – Sheepfold Avenue, Rustington, 01903 859078
• The Rowans – Steeple View, Pelham Road, Tarring, 01903 218022
DINGEMANS CENTRE FOR OLDER
PEOPLE
01903 879297
An Impact Initiatives service supporting the health and social care of people over 60 living
in Steyning, Upper Beeding, Bramber, Wiston, Ashurst and parts of Washington, who are
registered with the Steyning Health Centre. Has regular outings, exercise classes, a cafe
service and Steyning 60+ lunch club. Open on Tuesday and Wednesday, 10am-3.30pm.
Can cater for people with physical and sensory disabilities and people with mild to
moderate communication and learning disabilities. Has accessible transport to enable
people to get to the Centre. Out and About wheelchair accessible minibus trips on
alternate Tuesdays and Wednesdays to shops, pubs and places of interest..
KILORAN TRUST
020 7602 7404
www.kilorantrust.org.uk
Kiloran Trust is a registered charity that offers full-time carers a 5-night break in their West
London house. The atmosphere is intended to be informal, friendly and relaxed. The cost
to carers is approx £50 per night but for those on low income or claim income support,
Kiloran can help set up arrangements to get the cost of the stay covered.
PRIVATE HOME CARE OR NURSING
AGENCIES
There are a number of private agencies that can offer long and short term break care
within the home, and charges are variable. Contact ICIS (0800 859929) or CSS, Worthing
& District (01903 536378) for agencies in your area. Other agencies can be found in
Yellow Pages or the West Sussex Care Guide available from West Sussex County
Council.
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Taking a Break
SUSSEXDOWN CARE-SOUTH
01903 744221
Royal Air Forces Association care home available to ex-RAF staff, spouses and
dependents aged 50 and over. Can provide respite care. Other militaries accepted for
respite. Applications to Welfare Officer of your local RAFA branch.
‘TIME OUT’, ‘TIME OUT AND ABOUT’ & HEALTHY LIVING
01903 528600
CENTRE SERVICES, OFFERED BY GUILD CARE
Time Out and About - this scheme offers outings for carers and the person being cared
for to enjoy together, with transport by wheelchair accessible minibus and care provided,
to local places of interest. There is a small cost for transport with any entrance fees or
ticket costs being payable by the carer.
Time Out for Carers - this scheme runs every Monday and Friday from The Lovett
Centre, Maybridge Square, Goring-by-Sea., Worthing and provides a safe and stimulating
environment for people with dementia whilst their carer takes a break. A full programme of
activities is on offer including gentle exercise, reminiscence and music, along with a home
cooked lunch. Tel: 01903 505236.
Other Healthy Living Centre options include: hairdressing, beauty therapy including
facials and manicures, massage, walks for health, Tai Chi, keep fit, Well Person service (a
health check with a nurse), low cost lunches, assisted bathing/showering, and many
others. Other activities are also run by Full of Beans for active people over 60. Please
phone for more details or to make an appointment. (Please note that some of these
activities are being held at Ashmount, Southey Road, Worthing between up until
December 2012 )
WELCOME BREAK
01903 234497
This scheme provides local carers of people with physical disabilities or frailty, a morning's
break. Once registered with the scheme, the carer can book in advance and leave the
person they care for at the Salvation Army Welcome In, Crescent Road, Worthing, where
they will be looked after by care attendants and volunteers. The scheme operates on
Tuesdays 10.30am – 3pm and Thursdays 10.30am - 1pm and transport can be provided
within Worthing, Lancing and Littlehampton areas for people who do not have a car.
Bookings are made through the Salvation Army on 01903 234497.
WEST SUSSEX FAMILY PLACEMENT SERVICE
(DISABILITY)
01903 839430
Scheme run by West Sussex County Council Children and Young People's Services which
recruits and assesses individuals and families to provide short breaks for children and
young people with disabilities aged 0 to 18 years. The amount of care provided ranges
from one visit to overnight stays, with the project providing appropriate support and
training.
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Taking a Break
ZACHARY MERTON HOSPITAL - RUSTINGTON
01903 858100
Community hospital based at Glenville Road, Rustington BN16 2EB, where patients are
looked after by their GP. Services available include rehabilitation following surgery, care
for non-acute illness, palliative care, pre-terminal admission and respite care. Additional
care includes physiotherapy; occupational therapy; speech and language therapy and
social work. Area(s) covered: Rustington & Littlehampton only
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Transport
TRANSPORT
1ST CLASS TRAVEL WEBSITE
0880 9774392
http://www.1stclasstravel-uk.com/
Hires out executive vehicles and mini-coaches and wheelchair accessible vehicles.
AA DISABILITY HELPLINE
0800 26 20 50
Textphone:0800 328 2810
www.theaa.com
Free helpline for people with disabilities, open to AA members and non-members. Wide
range of information available including free AA Guide for Disabled Travellers.
ADAPTED VEHICLE HIRE
0845 257 1670
www.avhltd.com
Specialist rental of adapted car hire and adapted van hire for disabled drivers in the UK
including wheelchair accessible vans and people carriers with wheelchair access.
ADUR COMMUNITY TRANSPORT
01273 452939 / 440460
Can offer door to door and group journeys such as outings, shopping trips etc. for people
unable to use public transport Mon – Fri. Areas covered are
Shoreham-by-Sea, Lancing, Sompting, Southwick, Worthing
and West Hove.
ARUN CARE
01903 723584
Has a minibus available which can be used by other community organisations. Access to
the minibus is via the Arun Co-ordinated Community Transport Scheme at The Dairy,
number above.
ARUN CO-ORDINATED COMMUNITY TRANSPORT
01903 723584
Has several wheelchair accessible minibuses available, for use by local groups. All
services are available 24 hours a day, seven days a week, subject to availability. There is
also a Social Car Scheme that will undertake journeys to hospital, dentists, doctors or
shopping etc, depending on the resources available.
BLUE BADGE SCHEME
01243 777653
People who are disabled can apply for this badge to use whilst they are the driver or
passenger of a vehicle. It allows free parking in the majority of the UK & Europe. A small
fee is payable and 2 copies of a recent photo are required. The Blue Badge is given on
medical assessment provided by your GP. To obtain an application form contact West
Sussex County Council at County Hall, Chichester on the number shown above
This Transport factsheet is the property of the Carers Support Service, Worthing & District, and may be 101
2012.
Transport
BRITISH RED CROSS TRANSPORT SERVICE
01903 207191
www.redcross.org.uk
Runs transport service for medical appointments for people with disabilities or who are
unable to use public transport. Uses volunteers’ cars only.
CAR TAX EXEMPTION
0300 7906802, minicom 0300 1231279
www.dvla.gov.uk
A person may be eligible for Car Tax Exemption if he/she is in receipt of the higher rate of
the mobility component of Disability Living Allowance, or War Pensioners Mobility
Supplement, or has an invalid carriage.
COMMUNITY MINIBUS ASSOCIATION PULBOROUGH
Regular shopping trips from Pulborough, West Chiltington, Bury & Coldwaltham going to
Chichester, Horsham and Worthing.
• Bury and Coldwaltham tel: 01798 831468
• Pulborough/W Chiltington tel: 01798 872613 or 01798 873008
COMMUNITY MINIBUS ASSOCIATION – STEYNING AREA
01903 812141
For residents of Ashington, Ashurst, Bramber, Beeding, Steyning and Washington who are
not able to use, or have no access to, public transport. Also available for youth and
community groups. Has one 12 seater minibus. Operates regular shopping trips and
outings.
COMMUNITY MINIBUS ASSOCIATION – STORRINGTON,
01903 745902
THAKEHAM, SULLINGTON
Three 10 seater minibuses operate on regular shopping trips (Mon-Fri except Weds), and
trips to places of interest on some Weds in the summer months. On Tuesdays runs a trip
to Worthing and Fridays to Chichester, Shoreham Holmbush Centre and Horsham.
Mondays are a shopping trip to Pulborough. Passengers must be without their own
transport and self supporting away from the minibus.
CONCESSIONARY TRAVEL
For information about concessionary travel schemes for people over 60 or who are
disabled, apply to your local council.
• Adur council, 01273 263399
• Arun council, 01903 737500
• Horsham council, 01403 215100
• Worthing council, 01903 239999
DAY CENTRES
Day Centres can provide transport for people attending the centre. They may also hire out
their transport when it is not in use. Contact the appropriate Day Centre for further
information.
2012.
Transport
DIAL A RIDE
Door to door service for people with either a permanent or temporary disability of any kind
and who are unable to use ordinary buses. The service can be used for journeys to work,
college, shopping or other social activities, but not hospital appointments. A carer or friend
can travel at the same time.
Dial a Ride Adur – covers Shoreham, Lancing, Sompting, Southwick, Worthing & West
Hove. Operates weekdays, 01273 440460
Dial a Ride Arun – operates 24 hours everyday. 01903 713371
Dial a Ride Horsham – operates 9am-5pm weekdays. 01403 754206
Dial-a-Ride Pulborough – 01798 875600
Dial a Ride Steyning – 07891 044886
Dial a Ride Worthing. - 01903 530053.
DISABLED PERSONS
RAILCARD OFFICE
0845 605 0525
Textphone 0845 601 0132
www.disabledpersons-railcard.co.uk
Office deals with issuing and renewing Disabled Persons Railcards.
DOOR TO DOOR DIRECTORY
http://dptac.independent.gov.uk/door-to-door/
WEBSITE
A transport and travel website for disabled and less mobile people.
FRIENDS OF FERRING
01903 243899
Volunteers offer assistance with local shopping, advice, transport, home visits,
correspondence, hospital visits, dentist, hospital and chiropodist.
GUILD CARE TRANSPORT SERVICE
01903 528608
www.guildcare.org
Has several accessible vehicles, all with lifts or ramps, all being suitable for fixed
wheelchairs. Available for hire by local organisations and individuals, trained drivers
available.
HEALTH CENTRE LINK – HENFIELD
01273 492591 or
01273 493172
Provides transport to Henfield Health Centre and local hospitals. Volunteer drivers
welcome.
HORSHAM AREA COMMUNITY CAR SCHEME (HACCS)
01403 250202
Offers affordable transport to people who are unable to use public transport for reasons of
disability or frailty. Transport available Mon - Fri 8.30am - 5.30pm depending on driver
availability. Covers a much wider area than the Dial-A-Ride scheme including out of
county trips. Provides transport for any type of journey eg hospital trips, holidays etc.
2012.
Transport
LITTLEHAMPTON AMBULANCE CAR SERVICE
01903 723704
Provides a car service to and from hospital or clinical appointments using volunteer
drivers. Can transport some people with disabilities except those who require lifting. Can
go out of county.
MOTABILITY
Cars, Scooter, Powered Wheelchair 0845 456 4566
Minicom 0845 675 0009
www.motability.co.uk
Motability is a registered charity which enables disabled people to use the higher rate
mobility component of Disability Living Allowance or War Pensioners Mobility Supplement
to lease or buy a car or buy a powered wheelchair or scooter. Also offers financial
assistance if customers would be otherwise unable to afford the mobility solution they
need. Has online searchable price list with makes and models and their prices listed.
QUEEN ELIZABETH’S FOUNDATION MOBILITY
01372 841100
CENTRE
www.qef.org.uk
Act as an information and assessment service on all aspects of outdoor mobility for
disabled people and elderly people. Services (not free of charge) include driving ability
assessments, car adaptation assessments, passenger consultations, and pavement
vehicle and wheelchair assessments.
RAIL ENQUIRIES
08457 484950
www.nationalrail.co.uk
Operate yearly discount railcard schemes for elderly and disabled people, including
children. Application forms available from most major stations. Visit www.railcard.co.uk for
information about all the available railcards.
SHOPMOBILITY – need to register with services in advance
Horsham –Operates from the car park’s office on Level 2 Swan Walk Car Park,
wheelchairs and scooters for loan between 10am-4pm Monday to Friday and
9am – 4.30pm on Saturdays but not Bank Holidays. Tel 01403 249015.
Littlehampton – open Monday to Friday 10am – 4pm and Saturday 9am –
1pm. Provides manual and powered wheelchairs and scooter. Based at
The Bradbury Centre, 1-5 St Martins Lane, Littlehampton, phone 01903
733004.
Worthing – Offers manual and powered wheelchairs and scooters for
people
with restricted mobility to enable them to access Worthing town centre. Open Monday to
Saturday 10-4pm. Based at 12/14 Liverpool Gardens, Worthing, phone 01903 820980.
STEYNING AND DISTRICT GOOD NEIGHBOURS
01903 816181
ASSOCIATION
A voluntary association covering Steyning and District with the purpose of performing
neighbourly tasks of all kinds for the community. Has volunteers’ cars able to
accommodate folding wheelchairs on request.
2012.
Transport
Will try to provide transport to take people to the health centre, hospital, dentist
or medical appointments within West Sussex. Also shopping trips to the village and
befriending.
ST JOHN AMBULANCE PATIENT TRANSPORT SERVICE
01273 371511
www.sja.org.uk
This private ambulance service is able to provide transfers to and from hospitals and care
homes, long distance transfer of patients and those arriving from overseas and also
discharges and admissions from private care facilities. The vehicles are equipped to care
for a range of dependency levels and the service offers a guaranteed pick-up time.
ST JOHN AMBULANCE SERVICE - SUSSEX
01273 371500
www.sja.org.uk
Contact for all St John Ambulance services in Sussex. St John Ambulance branches
provide a variety of community services. (Different branches offer different services.)
Services include: accessible transport to medical appointments; visiting nursing homes,
hospitals or surgeries, first aid cover and first aid training, medical loan service for
equipment such as commodes and wheelchairs, transport for people with disabilities
needing respite care or holidays.
STORRINGTON HELP SCHEME
01903 742124
Offers help with essential transport of a medical nature, i.e. hospital, doctor, dentist
appointments.
SOUTHEAST COAST AMBULANCE SERVICE (SUSSEX)
01273 489444
Runs the Ambulance Car Service which supplements the ambulance service, to provide
transport for people to attend hospitals and clinics for outpatient appointments. Referrals
must be made via your GP.
TRANSPORT CO-ORDINATION GROUP-WEST
01243 777391
SUSSEX
Based at West Sussex County Council, the Transport Co-ordination Group provides
advice and support to community groups to begin and operate transport schemes. Also
produces an annual community transport directory which contains information about
community transport providers across the county.
TRAVELINE
0871 200 2233
www.traveline.org.uk
National enquiry line for public transport information.
WEST SUSSEX COMMUNITY TRANSPORT DIRECTORY
01243 753530
The West Sussex Community Transport Directory features details of community transport,
dial-a-ride and shopmobility services operating across the county. Also includes
information on a range of other transport services, including bus, rail and wheelchair
accessible taxis.
2012.
Transport
WHEELCHAIR ACCESSIBLE TAXIS, OR THOSE WHO CAN OFFER
A LITTLE EXTRA HELP
Other wheelchair-accessible taxi services may exist – contact ICIS on 0800 859929. Pre
booking is advisable.
Adur
Shoreham Taxis
01273 441010
Adur
T Link
01273 595959
Arun
Castle Cars
01903 889988
Worthing
A2B Cars
01903 232323
Worthing
Dial-a-car
01903 526667
WRVS TRANSPORT SERVICE
01903 851558/854640
Transport service is for people resident in Adur and Worthing areas who are unable to use
public transport. Available for hospital/doctors appointments, lunch clubs, visits, shopping
trips etc. Volunteer drivers using their own cars will transport people and give them up to
90 minutes at their destination. Travel vouchers accepted. For bookings telephone
9.30am-12.30pm Monday- Friday (at least two days notice required). This is not a medical
scheme but will take people to doctor or hospital and on social outings. Charge by
mileage. A registration fee is required on an annual basis, currently £12 per annum.
2012.
Visual Impairment
VISUAL IMPAIRMENT
4SIGHT
01273 454343
www.4sightsussex.co.uk
Provides a wide range of services for people with visual impairment,
including clubs, services, visits, information, guidance, advocacy
and support.
ACTION FOR BLIND
PEOPLE
020 7635 4800
www.actionforblindpeople.org.uk
National charity for visually impaired people providing support on
housing issues, employment, benefits and welfare rights. Grants
scheme available to help with holidays.
BLATCHINGTON
COURT TRUST
01273 727222
www.blatchingtoncourt.org.uk/
The Trust aims to promote the education, including social and
physical training and the employment of visually impaired young
people under the age of 30, mainly, but not exclusively, from
Sussex. Services include counselling, educational advocacy,
funding for educational support aids in the home, such as IT and
sensory equipment (plus ongoing support and training); assistance
providing leisure and social skills, help with transition from school to
college; benefit entitlement advice and appeals; support and
information about local and national services and facilities.
BT
0800 800150 Text 18001 0800 800150
http://www.bt.com/includingyou/
Publishes a free guide to telephone products and services for
elderly and disabled people, available in large print, Braille or via
audio. A free Directory Enquiry Service is available for blind and
disabled customers on 0800 5870195. A large range of equipment
is available for people with disabilities inductive couplers.
This Visual Impairment factsheet is the property of the Carers Support Service, Worthing & District, and 107
Visual Impairment
CLUBS FOR PEOPLE WITH VISUAL IMPAIRMENT
• 4SIGHT Culture Vultures Club - Club for visually impaired
people living in Adur, Worthing, Steyning and Storrington who are
interested in cultural activities such as music, art, literature,
history and theatre. The venue is wheelchair accessible with
accessible toilets, a hearing loop system, help for people with
visual impairments and disabled parking. 2nd Thursday of the
month 2.30-4.30pm. Phone 01273 454343.
• 4SIGHT East Preston and Angmering - Social club for visually
impaired people who live in East Preston and Angmering. Meets
every other Tuesday afternoon at Bradbury Hotel, Station Road,
East Preston. Have outings for tea and day trips. All members
collected and returned to their homes. Phone 01273 454343.
• 4SIGHT Findon - Social club for people with a visual impairment
which meets and provides outings and entertainment. Meets 2nd
Thursday of each month, 10.30am-12noon at the Free Church,
Lime Tree Avenue, Findon Valley. Phone 01273 454343.
• 4SIGHT Henfield Social club for people with a visual impairment
which meets meets on the last Thursday of each month between
10.30am and 12noon at the Henfield Day Centre, Hewitts,
Henfield. Phone 01273 454343.
• 4SIGHT Lancing - Coffee mornings held at Shadwells Court
Community Hall, Lancing on the 1st and 3rd Mondays of every
month between 10am and 12noon. Transport can be arranged.
Building on ground level, with wide doors, wheelchair access and
parking facilities available. Phone 01273 454343.
• 4SIGHT Lancing Self-Help Group for the Blind and Partially
Sighted which provides social and creative activities, and outings
for visually impaired people. Club meets on Thursdays 10am –
3pm. Phone 01273 454343.
Visual Impairment
• 4SIGHT Rustington Activity Club for people with a
visual impairment which meets on the 4th Tuesday each month
between 2.30pm and 4.30pm at Claigmar Road, Rustington.
Phone 01273 454343.
• 4SIGHT Rustington Self Help Group for people with a visual
impairement meets every Thursday between 11am and 4pm at
Guildford Road, Rustington. Phone 01273 454343.
• Ferring – Companions Twilight Club for visually impaired
people of all ages, which meets at the Ferring Retirement Club,
Greystoke Road, Ferring, fortnightly on Wednesdays at 2pm.
Accessible transport is available if needed. The club can
accommodate people with visual impairments who may also
have other disabilities and the venue is wheelchair accessible.
Phone 01903 241029.
• Littlehampton and District Visually Impaired Self Help Group
Social club for people who are registered blind or partially
sighted. All transport provided. A meeting is held on a Thursday
fortnightly at Woking Court, Rustington and on alternate weeks
there is a trip out for a pub lunch. Offers befriending, society,
lunches and outings. Phone 01903 739469.
• 4SIGHT Southwick - Coffee morning for people with visual
impairment. Meets at Marsh House, Park Lane, Southwick, on
the 1st and 3rd Tuesdays of the month. Marsh House is
wheelchair accessible throughout. Phone 01273 454343.
• 4SIGHT Storrington - Recreational activities, tea provided, talks,
outings, and summer outings to garden parties etc. for people
who are visually impaired. Covers Pulborough, West Chiltington,
Ashington, Storrington and Thakeham Transport usually
available, but cannot be promised. Second Wednesday of each
month 2pm – 4pm Phone 01273 454343.
Visual Impairment
DEAFBLIND UK
0800 132 320
www.deafblind.org.uk
Works with people who have a dual sensory loss in West Sussex
and provides support, a visiting service, information about services
and promotes awareness of deafblindness.
INTERNATIONAL
GLAUCOMA
ASSOCIATION
Sightline: 01233 648170
Mon – Fri 9.30-am – 5pm
www.glaucoma-association.com
The International Glaucoma Association (GLA) offers support and
advice to glaucoma sufferers and their families.
LOOK SUSSEX
01293 454454
www.looksussex.co.uk
Look Sussex is a local charity supporting families in East and West
Sussex who have a child with a visual impairment.
MACULAR DISEASE SOCIETY WORTHING
01903 243516
www.maculardisease.org
Support for people with Macular Degeneration in the Worthing area.
Support Group meets on the 1st Friday of the month 10am to
11.45am. Carers are also welcome.
MOON LITERACY WEBSITE
www.moonliteracy.org.uk
Moon allows people who are blind or partially sighted to read by
touch. It is particularly suitable for people who lose their sight later
in life, or for people who may have a less keen sense of touch as
the characters are fairly large and over half the letters bear a strong
resemblance to the print equivalent.
Visual Impairment
OPTICIAN - EYES AT HOME
0800 3457509
www.eyesathome.co.uk
Home visiting optician covering the whole of West Sussex. Offers
NHS and private eyecare for people who cannot attend an optician
unaccompanied due to age, illness or disability. Tests to screen for
glaucoma, macular degeneration and cataracts included. Specialist
tests for diabetic eye disease also undertaken.
PARTIALLY SIGHTED SOCIETY
0844 477 4966
www.partsight.org.uk
This organisation aims to help people with a visual impairment by
providing information, advice and useful equipment.
ROYAL LONDON SOCIETY FOR THE
01732 592500
BLIND – ADULT SUPPORT SERVICES
www.rlsb.org.uk
RLSB is a national provider of education, training and employment
for people who are blind or partially sighted. Services include a
family support service and a purpose built pre-school, and RLSB
Employment Services for adults who are blind or partially sighted
provides vocational and employment services.
RNIB – ROYAL NATIONAL
INSTITUTE FOR THE BLIND
Helpline 0303 123 9999
www.rnib.org.uk
Give practical support and advice to anyone with a sight problem.
Provide information and a range of services including talking books,
schools, colleges, computer training, rehabilitation training, a range
of journals and holiday guides. Vacation scheme for children and
young people. Information available in large print, Braille and audio.
Visual Impairment
ROUNDABOUT TALKING NEWSPAPER FOR
THE BLIND
01403 891306
Roundabout Talking Newspaper is a free weekly local news and
magazine service for people with visual impairments in Horsham,
Pulborough, Billingshurst, and Storrington areas. Includes items
from West Sussex County Times and magazine items which are
recorded on to memory sticks or cassette tapes. Speaker systems
can be provided if necessary.
SEEABILITY LOOK UP
01372 755066
WEBSITE
www.lookupinfo.org
Look Up is an information service about eye care and vision for
people with learning disabilities.
SENSE
Voice 0845 127 0060
Textphone 0845 127 0062
www.sense.org.uk
Offers advice, help and information; supports families through a
national network and local branches; runs a holiday programme;
education, residential, respite and day services; communicator
guides and one-to-one intervenor support; training and consultancy.
WEST SUSSEX COMMUNITY EQUIPMENT
0845 1272931
SERVICE
A service provided by Nottingham Rehab Supplies National Care on
behalf of West Sussex County Council and NHS West Sussex. The
service offers deliveries, collections, maintenance, repair and fitting
of equipment by qualified staff. Does not accept requests directly
from service users . Access by on-line referral through health or
social service professionals. Equipment provided includes
equipment for people with sensory impairments (e.g. blind, partially
sighted, deaf, deafened or hard of hearing).
Visual Impairment
WEST SUSSEX COUNTY COUNCIL
(SENSORY SERVICES TEAM)
01243 642555
Central office for provision of services for adults with sensory
impairments in West Sussex. Telephone for general enquiries about
the services, or issues relating to hearing, visual impairment, or
dual sensory loss.
WORTHING SOCIETY FOR
THE BLIND
01903 235782
www.wsftb.org.uk
Aims to help, advise and improve the quality of life for people with
significant sight loss within the Borough of Worthing. Is the contact
for the Active Vision Group, a club for slightly more active members,
and has a full weekly calendar of regular activities. Transport to
and from classes can be arranged. Home visiting service and a
weekly ‘phone pals’ scheme offers support and friendship to people
with a visual impairment.
Areas covered: Worthing only.
WSCC Adults and Childrens Services
WEST SUSSEX COUNTY COUNCIL ADULTS’ AND CHILDREN’S SERVICES
WSCC Adults’ and Children’s Services are responsible for organising and providing a wide
range of services, with the emphasis on supporting people in their own homes, and on
supporting their carers. The services include:
• Advice and support from social workers and occupational therapists on all aspects of
physical disability or physical frailty, dementia or acquired brain injury
• Day care
• Help with personal aids and equipment for the home and adaptations to your home
• Home care
• Short Breaks for carers
• Residential and nursing home care (that is not self funded) in conjunction with the
independent sector
WSCC must assess the needs of the person being cared for before they can provide any
services except in urgent situations. You can contact them direct, or referrals can come
from GPs, District Nurse or a relative.
County Hall - The Grange, Tower Street, Chichester PO19 1QT. Tel: 01243 777100
Out of hours service - Tel: 01903 694422
Website: www.westsussex.gov.uk
•
•
•
Adur Office - Glebelands, Middle Road, Shoreham by Sea, 01273 268800
Horsham Office – County Hall North, Chart Way, Horsham , 01243 642555
Worthing/East Arun Office - Centenary House, Durrington Lane, Worthing, 01903
839100
ASSESSMENTS
Assessments are conducted in order to determine a person’s need, and to decide what
services can be provided. When you contact the Help Desk, you will be asked to assess
your needs, with assistance if necessary, to find out if you meet the eligibility criteria.
These are used to decide who is most in need so it is important that when you first contact
the Help Desk you do not minimise any difficulties you are experiencing, or feel
embarrassed to describe your situation fully. In order to make their decision about the
services they provide, the Help Desk will probably only have the information that you give
them about yourself and the person you care for. After the initial assessment further
information may be needed to look at your requirements in more detail. This will be
completed with a member of staff, and again, it is important to describe your difficulties as
fully as possible.
The assessment of the person you care for will often be very important to you, as the
services they receive may affect how well you cope. The person you care for may want to
involve you in their own assessment, and this can be helpful, particularly if they find it
difficult to express their needs.
This WSCC Adults and Childrens Services factsheet is the property of the Carers Support Service,
114
There is a charge for most services provided by Adults’ Services. Where
charges apply, a Financial Assessment will also be carried out. Finally it is important to
remember that if your situation or that of the person you care for becomes more difficult,
then you should ask for a Reassessment of both your needs, so that WSCC can look
again at the services they are able to provide. WSCC publish several leaflets on
Assessments - contact CSS, Worthing & District or the Help Desk for copies.
CARERS ASSESSMENTS
You are entitled to ask for a Carers Assessment in your own right, if you are providing
‘regular and substantial care’. If the person you are caring for is refusing to have an
assessment, you can still ask for a Carers Assessment on its own. It will at least give you
the opportunity for a confidential talk. A Carers Assessment is for two purposes:
• Firstly, it takes into account your needs when WSCC decide what services to provide for
the person you care for. So, for example, a Carer’s Assessment could highlight your
need for a regular break from caring, and therefore result in respite provision for the
cared-for person. Or a Carers Assessment could show your difficulties with helping the
cared-for person have a bath, and result in bathing aids being provided.
• The second purpose of a Carers Assessment is to determine your own need for
services.
CARERS SERVICES
West Sussex County Council has a policy to enable carers to arrange and purchase the
services they need to support them in their caring role and maintain their own health. This
will mean that subject to a Carers Assessment, carers may be able to receive a payment
from the County Council and pay for the service themselves; alternatively the service could
be arranged for them. The intention is to make services that support carers more flexible
and give carers a greater say in the type of help that they require. Under this policy carers
can receive a one – off discretionary payment towards a specific service in a year. This
could be towards a particular item or time limited service. Following consultation with
carers, specific examples of carer services have been suggested including; gardening
blitzes, help with tasks around the home, funding towards leisure/adult education classes,
assistance with travel, complementary therapies or help towards domestic equipment.
Particular areas where carer services would be considered as a priority:
• Where the cared for person refuses a community care assessment and /or services
• Where a carer cannot access short breaks / respite services
• Where there is real risk to the sustainability of the caring role or to the carer’s general
health
The County Council is funding this initiative from the Carers Special Grant to pilot this
policy and support the implementation of the Carers (Equal Opportunities) Act 2004.
Under the policy carers will not be charged for carer services and so no financial
assessment is required. An important exception is that a Direct Payment cannot be given
under this policy to a carer to pay for a service provided to the cared for person. For more
information, contact your Help Desk.
115
CHILD DISABILITY TEAMS (NORTH and
Single ‘Children’s Access Point’
SOUTH)
01403 229900
Teams set up by West Sussex County Council (Children and Young People’s Services) to
meet the needs of severely disabled children and their families. Includes a sitting service
for children with disabilities in their own home, providing a break for parents and carers.
DAY CARE SERVICES
See the entry in the ‘Taking a Break’ factsheet.
HOME CARE
This is care provided in a person’s home, usually by a Home Care Assistant, following an
assessment of the cared-for person’s needs. Care is targeted at people with more
complex needs, and there is a charge for home care and day care services based on the
financial position of the person receiving the services. Leaflets explaining the charges are
available from your local Help Desk, ICIS or CSS, Worthing & District, as are details of
private agencies providing private home care services.
HOSPITAL SOCIAL WORKERS
There are agreed procedures between hospitals and WSCC. These make sure that
anyone who may require support services or equipment on leaving hospital is entitled to
have their needs assessed and an appropriate care package arranged before being
discharged. Carers should be involved in this process. Social workers based at hospitals
can offer assistance with non-medical problems or queries, and can advise the patient and
carer on how to obtain more help in the home. If you are unsure about any aspect of how
you will cope when the person being cared for comes home, do ask to see the hospital
social worker.
OCCUPATIONAL THERAPY (OT Connect)
01903 839100
Occupational Therapists provide assessment and advice on all aspects of managing a
disability. They can arrange to visit you at home, talk through and assess what is needed
and arrange, following an assessment, for the provision of any necessary equipment for
the home. An occupational therapist will also advise on adaptations to the home and
sources of funding.
REGAINING INDEPENDENCE SUPPORT SERVICE
Short-term rehabilitation service to help people regain independence with everyday tasks
at home. Support is provided for six weeks whilst longer term arrangements can be put in
place if needed. Available to anyone living in their own home experiencing difficulties with
daily living activities, whether they have just left hospital or have not been coping as well
as they would like. A benefits advisor will visit to determine if the client should contribute
financially and how much they should pay. An occupational therapist will complete an
assessment and discuss what support and equipment could be provided which might help
to achieve independence. A social worker will discuss what options there are when the
scheme finishes. If support is still required it may be possible to have a personal budget
giving choice and control over what is provided. One of the criteria for access to this
service is that it must be possible for persons receiving such support to regain their
independence.
116
SAFEGUARDING ADULTS
If you suspect an adult is being abused and think the danger is immediate ring the police
on 999. If it is less urgent, please contact your local WSCC office during office hours
(9am-5pm). Tell them it is an adult protection referral and ask to speak to the Adults
Help Desk. At all other times, including nights, weekends and bank holidays, contact
Sussex Police, who will either act themselves or contact WSCC for you. Alternatively
contact WSCC 'out of hours' service on 01903 694422.
SELF DIRECTED SUPPORT
West Sussex County Council is committed to increasing independence and choice for
people who are assessed as needing support. Self Directed Support is the name given to
a variety of ways in which people can control their own funding for social care and can
choose their own support e.g. Personal Budgets where a sum is allocated to meet a
person’s support needs and they can spend it in the way that best meets those needs.
This could include a Direct Payment to pay for the employment of a Personal Assistant or
to buy care from an agency. Some people choose to spend the money on domestic
support so that their carer can concentrate on personal care. Others prefer their social
worker to make arrangements for them. Contact your locality office for information and to
request an assessment.
117
Young Carers
YOUNG PEOPLE WITH CARING RESPONSIBILITIES (YOUNG CARERS)
A young person with caring responsibilities is someone under the age of 18 who
takes some or all the responsibility for the care of someone, usually a member of
their family. This may be a parent, brother, sister or other relative who has a
long term illness or disability. Many services will want to know what kind of
help is needed and therefore it may be useful to talk through your situation
first with someone you know and trust (e.g. teacher, school nurse, doctor
or Youth Worker); someone who will support you in talking to the person
you care for and to any services or organisations you contact.
CARERS SUPPORT SERVICE, WORTHING & DISTRICT
01903 536378
CSS, Worthing & District works closely with West Sussex Young Carers Project.
CHILDREN OF ADDICTED PARENTS AND PEOPLE
0207 7636270
(COAP)
www.coap.co.uk
Website for young people with concerns and fears about a person who is abusing drugs
and alcohol, or is addicted to some form of behaviour.
INFORMATION SHOP FOR YOUNG PEOPLE
Free, confidential information and advice for young people aged 13 – 25 years, on a
variety of issues including housing, benefits, legal rights, health, unemployment etc.
General counselling is also available, along with help with CVs, job applications, internet
access, and sexual health service including pregnancy testing.
• Horsham, 16 East Street, 01403 270345
• Littlehampton, Project 82, 82 Wick Street, 01903 739250 also offers clubs & activities
• Shoreham, 20 High Street, 01273 452462
• Worthing, Colonnade House, Warwick Street, 01903 210315
OFFINGTON COUNSELLING SERVICE
01903 212275
An independent charity, offering counselling for personal, marital and family problems.
Cost negotiable to means of client. Also offers the 1-2-1 counselling service for young
people aged 14-18 years.
SCHOOL
School staff may be able to offer help or information, particularly if caring is making it
difficult for you to attend school or to keep up with your school work.
SIBS
01535 645453
www.sibs.org.uk
SIBS is for people who grow up with a brother or sister with a disability or chronic illness,
and amongst other services, they provide a helpline.
This Young Carers factsheet is the property of the Carers Support Service, Worthing & District, and may118
July 2012.
Young Carers
ST LAWRENCE YOUNG PEOPLE'S HEALTH SERVICE
01903 222900
Open to all 13 - 19 year olds who live in the Worthing area (you do not need to be
registered with the St Lawrence surgery). This is a free confidential service for all young
people's health issues, including alcohol, drugs, stress, smoking, sex and contraception,
HIV, school, family and social problems. Open every Wednesday 3.30pm to 4.30pm, no
appointment necessary. Based at St Lawrence Avenue Surgery, 79 St Lawrence Avenue,
Worthing.
WEST SUSSEX CARERS ONLINE WEBSITE
This comprehensive website for carers in West Sussex is managed by ICIS and aims to
help put carers in touch with local support and services, direct carers to national
information which may be useful and give support in every way it can. There is a specific
section for young people with caring responsibilities.
WEST SUSSEX YOUNG CARERS PROJECT / YOUNG CARERS
01903 270300
WORKSHOPS
Support for children and young people with caring responsibilities, up to age 18. Runs
Young Carers Workshops for ages 10-16, full-day activities during each school holiday.
Funding may also be available to enable children with caring responsibilities to take part in
local interest groups such as sports, drama clubs, guides and scouts or to have a day out
with their family.
YOUNG CARERS NET WEBSITE
www.youngcarers.net
Operated by Carers Trust, this website provides information for young people with caring
responsibilities and a supportive, online community of young carers for discussion or for
advice from qualified youth workers.
This Young Carers factsheet is the property of the Carers Support Service, Worthing & District, and may119
July 2012.

West Sussex Carers Information Pack Adur, East Arun, Worthing

Transcription

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