May-June 2013

INSIDE THIS
ISSUE:
Nevada Gov.
2
Declares May
MCS Awareness
MCSA NEWS
VOLUME 8
ISSUE 2
MAY-JUNE 2013
May Is
Month
May Toxic Injury 4
& Chemical
Awareness
Month in MI
Rhode Island
5
Declares
Fibromyalgia
Awareness Day
Jennifer Parker
7
Foundation
National
Walk-a-Thon
Toronto Holds
8
ME/CFS, FM,
and MCS
Awareness Mo.
Awareness
10
Month Observed
in Florida
Patient
Support and
Resources
11
Research
Studies
19
National Awareness
Month!
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PAGE
2
News
Nevada Governor Declares May
Multiple Chemical Sensitivity
Awareness Month!
Nevada Governor Brian Sandoval declared May 2013 as Multiple Chemical Sensitivity (MCS)
Awareness Month in Nevada in a proclamation (see next page).
“Sandoval
describes MCS
as a painful
chronic
condition of
hypersensitivity
reactions to the
environment
for which there
is no cure.”
Sandoval describes MCS as a painful chronic condition of hypersensitivity reactions to the environment for which there is no cure. “People of all ages in Nevada and throughout the world have
developed Multiple Chemical Sensitivity (MCS) as a result of global environmental pollution,” says
Sandoval.
Environmental pollution is directly linked to many health conditions in scientific studies. Allergies
and asthma are two of the more common ailments that are linked to exposure to traffic exhaust,
fragrance chemicals, and other pollutants in the environment.
Fragrance chemicals are found in everything from lotion, soap, and other personal care products
to cleaning, freshening, and laundry products. Yet, fragrance is not needed for cleaning and personal care products to do their jobs. I
The combination of many fragranced products used each day by the average person in the average
home combined with formaldehyde out-gassing from furniture and clothing, pesticides, and other
ordinary household items has been shown in scientific studies to create indoor air that is much
more polluted that outdoor air.
In the environmental movement, buildings have become increasingly air tight for the sake of saving
power. However, this has led to increased illness and what is known as “sick building syndrome”,
the result of toxic buildup in a building. Ventilating the home with open windows goes a long way
to reducing household exposure to these toxic chemicals, thus should conceivably help to reduce
asthma, allergies, and the risk of developing them.
Often the fragrance industry will launch attack against individuals and employment policies, such as
the World Health Organization’s fragrance free workplace policy, when they enact fragrance free
policies in the workplace to protect the health of their employees. These attacks make it sound
ludicrous when they erroneously assume that no fragrance means no cleaning and no deodorant.
In fact, nothing is further from the truth. There are many fragrance free cleaning products, personal care products, and yes, even deodorants. Choose fragrance free versions whenever possible. May is a good time to remember that hygiene is about bathing regularly and cleaning regularly,
not fragrance. If a man does not bathe regularly, putting on cologne will only make him smell
more nauseating. Scent should be reserved for special occasions.
On a final note, people who develop MCS, asthma, and allergies never had them before. The combination of exposures over time can lead to new onset illness in anyone, so not suffering any
symptoms around fragrance and other chemicals now does guarantee health or safety.
Thank you Governor Sandoval for bringing awareness to this important health issue!
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4
News
Michigan Governor Declares May
Toxic Injury & Chemical
Awareness Month!
“Snyder
Michigan Governor Rick Snyder declared May 2013 as Toxic Injury and Chemical
Awareness Month.
encourages
residents to learn
more about
chemicals they
may encounter
in their homes,
schools and work
places to
prevent
toxic injury.”
MCSA
“Each and every day, Michiganders encounter chemicals and potential toxic injury
as a result of exposure to pollution, household cleaning products, mold and other
pollutants found in homes, work places and schools,” says Snyder, “Injury incurred by exposure to toxins and chemicals may include multiple, sometimes disabling, illnesses and could become life threatening;.”
Snyder encourages residents to learn more about chemicals they may encounter
in their homes, schools and work places to prevent toxic injury.
Toxic substances that people commonly are exposed to include pesticides, secondhand smoke, alcohol, fresh paint, scented products and perfumes, candles, fragrances, food preservatives, flavor enhancers, aerosols, tap water, cosmetics, personal care products, new carpets, petroleum products, formaldehyde, outdoor
pollutants, newspaper ink, cleaning compounds, printing and office products, and
other synthetically derived chemicals.
Chemicals are linked to cancer, autism, hormone disruption, reproductive problems, asthma, allergies, multiple chemical sensitivity, and many other health problems.
NEWS
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5
News
Rhode Island Governor Declares
Fibromyalgia Awareness Day!
Rhode Island Governor Lincoln Chafee declared May 12, 2013 as Fibromyalgia
Awareness Day. (see next page)
“Fibromyalgia
is the
“An estimated 10 million people in the United States, 3 to 4 percent of the population of our country, have been diagnosed with fibromyalgia, a disease for which
there is no known cause or cure,” says Chafee. “Fibromyalgia is a chronic illness
that causes fatigue and debilitating pain in women, men, and children of all ethnicities.”
2nd
most common
The National Fibromyalgia and Chronic Pain Association was acknowledged for
their work promoting awareness and improving education, diagnosis, research and
treatment.
disorder
seen by
rheumatologists.”
Fibromyalgia is a disease process characterized by chronic widespread musculoskeletal pain, non-restorative sleep, fatigue, headache, morning stiffness, poor
memory, difficulty concentrating, paresthesias (numbness and tingling) and overall
impaired functioning in both social and occupational settings. The severity of the
pain is typically more constant than other forms of pain and may come and go
rapidly, move around to various parts of the body, and worsen with touch. For
example, some fibromyalgia patients find their own clothing against their skin painful, particularly if it is tight clothing.
Fibromyalgia is the 2nd most common disorder seen by rheumatologists. Prevalence increases with age and diagnosis is most common in people aged 60 and 79
years. Prevalence is higher in families, with relatives of patients suffering from fibromyalgia having an 8.5 fold higher risk of developing the disease. Family members are also more likely to have other pain syndromes and tender points when
compared to non-family members, suggesting an environmental or genetic component.
The cause of fibromyalgia is not fully understood yet, though it may involve abnormalities in peripheral and central sensory processing, which may be triggered by
viral infections, Lyme disease, hepatitis C, hormonal and endocrine changes, drugs,
vaccines, and physical trauma.
People with fibromyalgia need our understanding and more research into the
causes and potential treatments that may reduce the impact of this disease.
MCSA
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News
Jennifer Parker Foundation
Nationwide Walk-A-Thon for
Multiple Chemical Sensitivity
“The Jennifer
Parker
Foundation is
a non-profit
foundation
committed to
help improve
the lives of
those suffering
from
Environmental
Illness.”
The Jennifer Parker Foundation organized a nationwide Wallk-a-Thon on May
5th for MCS Awareness month 2013.
Multiple Chemical Sensitivity is “a diagnostic label for people who suffer multisystem illnesses as a result of contact with, or proximity to, a variety of airborne agents and other substances." (EPA). Information and brochures were
available at many sights including:
Kenilworth, NJ
Northfield NJ
Sarasota, FL
Chicago,. IL
Portland, ME
Phila, PA
Staten Island, NY
Green Bay, WI
Frostburg, MD
Detroit, MI
Prescott, AZ
Tucson AZ
Madison, WI
Louisville KY
Pittsburgh KS
Washington, DC
Carthage, MI
Charlottesville, VA
Susanville, CA
The Jennifer Parker Foundation is a non-profit foundation committed to help
improve the lives of those suffering from Environmental Illness (EI), including
Chemical Sensitivity (CS), Electrical Sensitivity (ES) & Sick building Syndrome
(SBS) .
For more information, visit http://www.jenniferparkerfoundation.org/.
MCSA
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8
News
Toronto Mayor Proclaims May 12 Myalgic
Encephalomyelitis/Chronic Fatigue Syndrome,
Fibromyalgia, and Multiple Chemical
Sensitivities Awareness Day
Toronto Mayor Rob Ford proclaimed May 12, 2013 myalgic encephalomyelitis/
chronic fatigue syndrome, fibromyalgia, and multiple chemical sensitivities awareness day. (see next page)
"An
estimated 568,000
men, women, and
children in
On May 12, communities across Ontario joined the Myalgic Encephalomyelitis Association of Ontario and raised public awareness, educated the medical profession,
and raised funds for the necessary services for patients to end the stigma and discrimination that frequently accompanies theses diseases that prevent individuals
from working and engaging in physical activity.
Ontario live with
Myalgic
encephalomyelitis/
Chronic Fatigue
Syndrome,
Ford says, "An estimated 568,000 men, women, and children in Ontario live with
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, Fibromyalgia, or Multiple
Chemical Sensitivities."
The Myalgic Encephalomyelitis Association of Ontario was founded in 1990 when
a group of concerned citizens realized that there was no support for those afflicted with M.E./ CFS. Their mission is:
•
Fibromyalgia,
or Multiple
•
Chemical
•
Sensitivities."
•
To ensure that people living with M.E./CFS, wherever they live in Ontario,
have the information, support and referrals they need to obtain the best possible care, and to ensure that all those affected are educated about new guidelines to protect their health.
To encourage a strong provincial network of services for M.E./CFS, including a
provincial help line, support groups and other services.
To provide education, support and assistance to partners, family members,
teachers, co-workers and friends of people living with M.E./CFS.
To educate health care providers and institutions, the educational system, government agencies, disability and insurance providers, employers, the media and
the general public about the facts of Myalgic Encephalomyelitis and the needs
of those living with the illness.
For more information: http://meao.ca/
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MCSA
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News
Observance of MCS/EMS
Awareness Month May 2013
in Florida, USA
Christiane Tourtet, B.A., Founder and President of International MCS/EMS Awareness, presents her MCS/EMS Awareness Month Display at The Dr. B. L. Perry, Jr.
Public Branch Library, Tallahassee, Florida
MCSA
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Resources
Patient Support & Resources
MCS America Forums
Support Forums Outside the
MCS America Network
MCSA Public
http://health.groups.yahoo.com/group/mcsa-public/
4Mom
Open to the general public to discuss MCS, support, ideas, informahttp://groups.yahoo.com/group/4MOM/
tion, announcements, news and activism.
According to Mt. Sinai Medical School, there are many illness'
caused by toxic substances such as pesticides. They are studying the
MCSA Feeds
role other toxins play on the new childhood diseases triggered by
http://health.groups.yahoo.com/group/mcsafeeds
environmental factors. They call this the new epidemic. Mothers of
The purpose of this public access group is to receive daily distribuMany is for all parents with children who are ill and are affected by
tion of news and research studies on multiple chemical sensitivity,
toxic chemicals such as Attention Deficit Disorder, Asthma, Cancer,
chemical injury, environmental concerns, and other related environAutism, Tourettes Syndrome, Multiple Chemicals Sensitivities
mental illnesses and disorders. Anyone can join without an applica(MCS), Parkinson's, and any other condition affected.
tion. Only the moderator posts to this group. This is not a discussion group. This group distributes about 5 - 10 articles on average
Bay Area MCS
each day.
http://health.groups.yahoo.com/group/bayareamcslist/
Classified ads and notices for people with MCS (Multiple Chemical
MCS Salvage and Share
Sensitivity) in the San Francisco Bay Area.
http://health.groups.yahoo.com/group/MCSA-safer-salvage-and-share
A public access group similar to Freecycle, except it's a free recyCFS CFIDS ME
cling program for safer reusable's geared towards individuals with
http://health.groups.yahoo.com/group/CFS_CFIDS_ME/
MCS, CFS, FM, and other related disabilities correlated with the
This Group is to promote friendly discussion about places where
environment. The purpose of this program is to find, give, and recypeople have gone and feel more or less recovered from CFS/ME/
cle needed "safe" or "safer" items. All items are exchanged for free.
CFIDS.
Shipping cost are arranged between donor and recipient. Anyone
can join without an application.
CMCS-EI Christian MCS, CFS, FM, and EI Group
http://health.groups.yahoo.com/group/CMCS-EI/
Multiple Chemical Sensitivities and Toxic Injury
We are a Christian group who have invisible illnesses.
http://groups.google.com/group/mcs-ti
This is a small non-Yahoo based group open to the general public to
discuss MCS, support, ideas, information, announcements, news and
activism.
MCS Hawaii
http://health.groups.yahoo.com/group/mcs-hawaii
Open to the general public residing in Hawaii to discuss support,
ideas, information, announcements, and/or share personal activism. No application is required. This group is currently recipient to
all the news feeds (see MCSA Feeds above). This list is operated in
part by a state subsidiary volunteer who resides in the state.
MCS Nebraska
http://health.groups.yahoo.com/group/MCS-Nebraska
Open to the general public residing in Nebraska to discuss support,
ideas, information, announcements, and/or share personal activism. No application is required. This list is operated in part by a
state subsidiary volunteer who resides in the state.
or subscribe at:
MCS Michigan
http://health.groups.yahoo.com/group/mcs-michigan
Open to the general public residing in Michigan to discuss support,
ideas, information, announcements, and/or share personal activism. No application is required. This list is operated in part by a
state subsidiary volunteer who resides in the state.
MCSA
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12
Detox
MCS Canada
http://health.groups.yahoo.com/group/detox/
http://health.groups.yahoo.com/group/MCS-Canada/
"Detox" is a group to serve chemically injured, environmentally ill, This group was formed to assist patients and concerned parties from
multiple chemical sensitivity, and related illness such as chronic fa- all nationalities learn to cope with environmental injury, including
tigue, candidiasis, hypoglycemia, lupus, and others.
disorders such as MCS,ME, CFS, FM, Lyme, Lupus, GWS, PPS, as
well as related and associated illnesses.
Disinissues
http://groups.yahoo.com/group/Disinissues/
MCS Canadian Sources
The purpose of Disinissues is to share experience and advice about http://groups.yahoo.com/group/MCS-CanadianSources
the processes of obtaining and maintaining Social Security Disability MCS Canadian Sources is a support, information and resource exInsurance (SSDI), Supplemental Security Income (SSI), and long-term change for those living and coping with Multiple Chemical Sensitivity
disability insurance. The group is targeted mainly towards those with (MCS), Environmental Illness (EI), or Chemical Injury (CI).
invisible disabilities, such as CFIDS and other conditions not on Social Security's Listing of Impairments.
MCS Photography
http://health.groups.yahoo.com/group/MCSphotography/
EMF Refugee
MCS Photography is for those with multiple chemical sensitivity who
capture and share the world and their life through photography.
http://health.groups.yahoo.com/group/emfrefugee/
This ML has been created with the intent of bringing refugees together in countries around the world to form their own EMF-free MCS Recycle
communities in natural environments where they can heal and create http://groups.yahoo.com/group/MCSRecycle/
The objective of this group is to be able to share with each other
healing environments for the Earth and others.
items that are chemical free and have been used in a non-toxic environment. This group is planet-wide.
Environmental Illness 001
http://health.groups.yahoo.com/group/environmental_illness001/
This group is dedicated to curing / resolving all issues related to MCS Safe Shelter USA
Environmental Illness, including but not limited to: Multiple Chemical http://health.groups.yahoo.com/group/mcssafeshelterusa/
Sensitivity (MCS), Multiple Food Allergy, Leaky Gut Syndrome, Can- Short-term and long-term housing for people with MCS (Multiple
dida, Epstein Barr Virus, Chronic Fatigue, Fibromyalgia, Heavy Metal Chemical Sensitivity). Check our database for listings by state. Find
Poisoning, Porphyria, endocrine system dysregulation, etc.
rentals, hotels, and housing to purchase.
eSens - Electrical Sensitivity
http://health.groups.yahoo.com/group/eSens/
Do you feel ill when you're near computers, cell phones, fluorescent
lights, or wireless internet? If so, you may have "electrical sensitivity".
MCS Singles
http://groups.yahoo.com/group/mcs-singles
Addresses the unique challenges of living alone without help as a
single with MCS. Examines solutions, provides a place for general
discussion, and is a resource for peer support.
Green Canary
http://groups.yahoo.com/group/GreenCanary
MCS Toxic Injuries
This list is dedicated to a life free from toxic chemicals, and the http://health.groups.yahoo.com/group/MCS-Toxic-Injuries/
health problems that they can cause.
MCS-Toxic-Injuries is a self-moderated, secular, apolitical newsgroup
for toxically-injured environmentally sensitive people to support one
Immune
another and exchange coping methods, treatments and experiences.
http://immuneweb.org/lists/immune.html
This is the list for support and information about multiple chemical MCS Village
sensitivities, chronic fatigue syndrome, fibromyalgia, lupus, multiple http://health.groups.yahoo.com/group/MCSVillage/
sclerosis, porphyria, allergies, asthma, and other immune-related The purpose of this group is to discuss the feasibility of building a
ailments.
village(s) or community in which MCS/EI patients can live safely, and
Immune Parenting
to provide a forum to discuss the legal, medical, geographic, archihttp://groups.yahoo.com/group/immune-parenting/
tectural, social and funding issues.
This list is for both men and women who have Multiple Chemical
Sensitivity, Chronic Fatigue Syndrome, Fibromyalgia, autoimmune
disorders, or other immune system medical issues--or their partners--who are parents, pregnant, trying to conceive, or who are
thinking about parenthood.
Live Chat at the Health and Environment Resource Center
http://www.herc.org/chat
This chat room is not associated with any group. It is unmoderated
and no password is required. Chat Times: Saturday - 7 pm ET, 6 pm
CT, 5 pm Mtn, 4 pm Pac; Monday - 9 pm ET, 8 pm CT, 7 pm Mtn, 6
pm Pac; Wednesday - 8 pm ET, 7 pm CT, 6 pm Mtn, 5 pm Pac.
MCSA
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MCS Writers Group
http://health.groups.yahoo.com/group/mcswritersgroup/
A place for writers who have chemical sensitivities (or chemical
injury) to share their stories and articles, work on and develop public writing skills, exchange editing skills and perspective, and develop
ideas in order to bring awareness and education to the published
world about what it is like to live with MCS/ES/CI/EI.
The Sanctuary
http://www.mcs-international.org/phpBB3/
MCS-International.Org's Holistic Support Forums For sufferers of
Multiple Chemical Sensitivity and Environmental Illness.
Old Dominion MCS-FMS_CFIDS Support Group — A Virginia Fibro MCS CFIDS Lyme Group
Physician & Dentist Referral Lists
Toxics Discussion
http://groups.yahoo.com/group/ToxicsDiscussion/
If you're keen on a toxics-safe future for the planet, then this is the
Midwest Oasis MCS E-mail Support
discussion group for you. Toxics are defined here as naturally occurhttp://health.groups.yahoo.com/group/MO-MCS/
ring or man-made chemicals (elements/compounds/mixtures) that
Midwest Oasis MCS E-mail Support is the e-mail arm of the Midwest have a toxic effect.
Oasis MCS Support Group. Although people from all geographical
areas are welcome to join, a partial focus of this list will be discus- WSMCSN (Washington State MCS Network)
sion of regional issues affecting MCS (Multiple Chemical Sensitivity) http://groups.yahoo.com/group/WSMCSN
in Missouri and other Midwestern states.
WSMCSN is a decentralized network of groups and individuals in
Washington State who share information about the issues of MultiMultiple Chemical Sensitivity (Chemical Sensitivity, Porphy- ple Chemical Sensitivity.
rin & CO)
http://health.groups.yahoo.com/group/MultipleChemicalSensitivity/
Additional Forum Listing Webpage
Discussion group where people afflicted with Chemical Sensitivity, http://mcs-america.org/index_files/forums.htm
Chronic Carbon Monoxide Poisoning &/or Disorders of Porphyrin
Metabolism can talk about their illness, inquire with others on avoidance, methods of cleaning & products one can use for necessary
hygiene.
http://health.groups.yahoo.com/group/OldDominionMCS-FMS-CFIDS-Lymesupportgroup/
Too many people in Va. have Fibromyalgia, Myofascial Pain Syndrome, CFIDS, Gulf War Syndrome (GWS), ES, and Multiple Chemical Sensitivity. The group owner wanted to create an informative,
supportive group for Virginians, and others.
Sick Buildings
http://health.groups.yahoo.com/group/sickbuildings/
Toxic molds are running rampant in our homes, offices and schools.
Exposure to mycotoxins has been linked to the death of infants, as
well as immune-compromised adults. Despite increasing reports of
mold-induced illness and health problems associated with mold exposure, our public health agencies offer little, if any support or funding for research into this growing problem.
Sprayno
http://groups.yahoo.com/group/sprayno/
This is a list to exchange information regarding environmental issues
in the northern suburbs and NY metro area focusing especially on
encouraging activism in this area and educating the public about toxic
effects of pesticide/herbicide usage.
Tenth Paradigm Society
http://health.groups.yahoo.com/group/TenthParadigmSociety/
The Tenth Paradigm Society mailing list is for the dissemination and
discussion of information concerning the NO/ONOO- cycle mechanism, a new paradigm of human disease, proposed by Martin L. Pall,
Ph.D. Dr. Pall adopted the term "Multisystem Illness" to describe
those diseases that fall under the tenth paradigm. They include:
Chronic Fatigue Syndrome (CFS/CFIDS/M.E.), Multiple Chemical
Sensitivity (MCS), Fibromyalgia (FM/FMS), Post-Traumatic Stress
Disorder (PTSD), and Gulf War Syndrome (GWS).
MCSA
Physician Referral List by State
http://www.aaemonline.org/Referable_Physicians.html
Some of the physicians on this list specialize in MCS, others in FM
and CFS. It is recommended that patients and doctors consult with
one another prior to beginning any treatment to ensure understanding of the patient’s needs and compatibility of patient and physician.
Dentist Referral List by State
http://mcs-america.org/index_files/DentalCareandAmalgams.htm
Some of the dentists on this list are specifically familiar with MCS,
others are not. It is recommended that patients and dentists consult
with one another prior to beginning any treatment to ensure understanding of the patient’s needs and compatibility of patient and dentist.
Air Quality Reports
Air Now Air Quality Reports
http://www.airnow.gov/
EPA State and Regional Indoor Environments Contact Information
http://www.epa.gov/iaq/whereyoulive.html
The National Association of Clean Air Agencies 4 Cleaner
Air http://www.4cleanair.org/
NEWS
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Current Local & National Allergy Levels
http://pollen.com/Pollen.com.asp
Scorecard: Pollution Index by Area
http://www.scorecard.org/
ILRU: Understanding & Accommodating People with MCS
in Everyday Living
http://mcs-america.org/ilru.pdf
Indoor Air Chemistry
http://mcs-america.org/indoorair.pdf
Toxmap Hazardous Waste Site Locations
http://toxmap.nlm.nih.gov/toxmap/main/index.jsp
Interior Design and MCS
http://mcs-america.org/interior.pdf
USA Smoke/Fire Pollution Map
http://www.firedetect.noaa.gov/viewer.htm
Jill Mellum: Breathe Easier, Hold the Fragrances Brochure
http://mcs-america.org/fragrancefacts.pdf
MCS Homebuyer’s Questionnaire
http://mcs-america.org/Homebuyer'sQuestionnaire.pdf
Antenna Search (USA)
http://www.antennasearch.com/
EPA Safe Drinking Water Information by State
http://www.epa.gov/safewater/dwinfo/
MCS Task Force of New Mexico Brochure
http://mcs-america.org/newmexico.pdf
MCS Public Accommodations
http://www.nettally.com/prusty/PUBLIC%
20ACCOMMODATIONS.pdf
EPA Radon Zone Map
http://www.epa.gov/radon/zonemap.html
MCS Statistics
http://www.mcs-america.org/MCSStatistics.pdf
Brochures
No Scents Makes Sense Brochure
http://www.nb.lung.ca/pdf/NoScentsMakeSense.pdf
Air Fresheners & Plug-Ins
http://mcs-america.org/airfresh.pdf
Chemical in Air Fresheners Reduces Lung Function
http://mcs-america.org/lung.pdf
Consequences of Childhood Chemical Injury Poster By
Margaret S. O’Nan
http://mcs-america.org/onan.pdf
Electrosensitivity Brochure by Kato Yasuko
http://mcs-america.org/KatoYasukoElectrosensitivityBrochure.doc
Fabric Softener
http://mcs-america.org/fabricsoftener.pdf
Theory on the Cause of MCS: Peroxynitrite and Nitric Oxide
http://www.mcs-america.org/cause.pdf
Understanding Multiple Chemical Sensitivity
http://www.mcs-america.org/understanding.pdf
Use of Baking Soda as a Fungicide
http://mcs-america.org/fungicide.pdf
Vaccine Poster - Are We Poisoning Our Children?
http://njvaccinationchoice.org/docs/genrescue.pdf
Visiting a Person with MCS
http://mcs-america.org/visiting.pdf
Fragrances
http://mcs-america.org/fragrances.pdf
Grandma’s Cupboard: General Cleaning Solutions
http://www.mcs-america.org/general.pdf
What you should know before visiting a person who has
NRLA and/or MCS
http://mcs-america.org/VisitingNRLA-MCS.pdf
Grandma’s Cupboard: Kitchen Cleaning
http://www.mcs-america.org/kitchen.pdf
Grandma’s Cupboard: Personal Care
http://www.mcs-america.org/personal.pdf
Signs
Grandma’s Cupboard: Laundry
http://www.mcs-america.org/laundry.pdf
Acute Toxic Effects of Fragrances Business Card
http://mcs-america.org/acutetoxiceffectsoffragrancescard.pdf
Household Mold brochure from Quebec government
Chemical Awareness Ribbon
http://mcs-america.org/ribbon.gif
http://publications.msss.gouv.qc.ca/acrobat/f/documentation/2002/02-214-01A.pdf
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Electrosensitivity Sign - Please Turn Off Your Cell Phone
http://mcs-america.org/
KatoYasukoElectrosensitivtySignTurnOffYourCellPhone.pdf
No Scents Makes Sense Sign
http://mcs-america.org/scentssign.pdf
No Latex Sign by Jane Sagmoe
http://mcs-america.org/nolatex.JPG
Public Service Announcement #1
Air fresheners have been pulled off thousands of shelves
nation-wide!
http://www.mcs-america.org/AirFreshenerPSA1.pdf
Public Service Announcement #2
When you use fragranced products, did you know you are
wearing toxic chemicals!?
http://www.mcs-america.org/
WhenYouUseFragrancedProductsPSA2.pdf
You Could Be Next Sign
http://mcs-america.org/nextsign.pdf
Want to Put Your Friends and Family in Jail?
http://mcs-america.org/jail.pdf
Wood Smoke Trespass Flyer 8 1/2 x 11
http://mcs-america.org/woodsmokeflyer.pdf
Activist Materials
Fragrances on Mail and/or Catalogs
http://mcs-america.org/
FragrancedMailCatalogBillsLetterforActivists.doc
Air Freshener Use
http://www.mcs-america.org/customairfreshenerletter.doc
Use of Fragrance, Cologne, and Perfume
http://mcs-america.org/UseofFragranceLetterforActivists.doc
Fabric Softener Emissions
http://www.mcs-america.org/LetterAboutFabricSoftener.doc
Letter to State Representatives to Ban Woodsmoke
http://mcs-america.org/woodsmoke.doc
Letter to Doctors and Medical Boards Supporting MCS as a
biological Illness (fully cited and scientifically supported)
http://mcs-america.org/index_files/MCSPositionStatement.htm
Request for Accommodations Under the Americans with
Disabilities Act
http://www.mcs-america.org/RequestforAccomodation.doc
MCSA
Public Service Announcements
Public Service Announcement #3
Secondhand Fragrances are Like Secondhand Smoke!
http://www.mcs-america.org/SecondHandFragrancesPSA3.pdf
Public Service Announcement #4
Scented laundry detergents and fabric softeners pollute
indoor and outdoor air!
http://www.mcs-america.org/ScentedLaundryDetergentsPSA4.pdf
Public Service Announcement #4 (SPANISH)
Scented laundry detergents and fabric softeners pollute
indoor and outdoor air!
http://mcs-america.org/ScentedLaundryDetergentsPSA4Spanish.pdf
Public Service Announcement #5
Wood Smoke... The Other Secondhand Smoke!
http://www.mcs-america.org/WoodSmokePSA5BurningIssues.pdf
Public Service Announcement #6
Fragrances undermine public health!
http://www.mcs-america.org/FragrancesPSA6.pdf
Public Service Announcement #7
Fragranced Laundry Products Pollute Our Air
http://mcs-america.org/PSA7FragrancedLaundry.pdf
Clothing & Novelties for Activism
MCS America Store for the Environment
http://www.mcs-america.org/MCSstore..htm
Zona’s T-Shirts and Stuff Zone
http://members.shaw.ca/zonaszone/shop/tshirts.html
NEWS
Copyrighted © 2013 MCS America
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16
Virtual & Work-at-Home Jobs
Virtual Assistant,Virtual Office Temps
http://virtualassistantjobs.com/
Agent, Staffing at Home
http://www.staffingathome.com/
Writer, Associated Content
http://www.associatedcontent.com/
Agent, West at Home
http://www.westathome.com/
Writer, MyEssays.com
http://www.myessays.com/sell.php
Agent, Working Solutions
http://www.workingsol.com/home.htm
National Telecommuting Institute, Inc.
http://www.nticentral.org/
Call Center Representative, Accolade Support
http://www.accoladesupport.com/
Chef Instructor, Chefs Line
http://www.chefsline.com/
Customer Care,VIP Desk
http://www.vipdesk.com/info/default.asp
Editor, EditFast.com
http://www.editfast.com/
Expert, JustAnswer Corp
http://www.justanswer.com/expert/credential/become_an_expert.aspx
Freelancer,Team Double-Click
http://www.teamdoubleclick.com/freelance.html
Guide, About .com
http://beaguide.about.com/
Guide, ChaCha
http://www.chacha.com/
Home Agent, Convergys
http://www.convergysworkathome.com/
Independent Call Center Agent, LiveOps
http://tinyurl.com/5xfv7n
Telemarketing, Intrep Sales Partners
http://www.intrep.com/
Online Juror, eJury.com
http://www.ejury.com/
Online Juror, OnlineVerdict.com
http://onlineverdict.com/
Online Juror,Trial Practice Inc.
http://trialpractice.com/
Third Party Verifier, BSG Payments LLC
http://tinyurl.com/4vcldx
MCSA
NEWS
Copyrighted © 2013 MCS America
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17
Environmentally Safer Housing
Safer Building & Regulations
Barrhaven Non-Profit Housing Inc.
Environmental Sensitivity Units
Steepleview Crossing,
3001 Jockvale Road, Nepean, Ontario, K2J 4E4
(613) 823-6230
Fax: (613) 825-7724
http://ehaontario.ca/barrhaven-housing.htm
Alliance for Healthy Homes
http://www.afhh.org/
Canada-wide Housing Connection
1-613-278-0463
http://ehaontario.ca/interview.htm
Architectural House Plans Healthy Homes Construction
Guidelines
Information: http://tinyurl.com/6dteuz
Booklet: http://www.architecturalhouseplans.com/products/
Assessment of the Indoor Air Quality of a Suite for an Environmentally Hypersensitive Occupant
http://mcs-america.org/IAQforanEIOccupant.pdf
Ecology House, San Rafael, California (built in 1994)
375 Catalina Blvd
San Rafael, CA 94901
(415) 456-4453
http://www.tikvah.com/cc/eh
eh@ecologyhouse.net
Escalante House
P.O. Box 652
Escalante UT 84726
Phone/Fax: (435) 826-4778
toripat@color-country.net
Considerations For Safer Construction And Renovation By
Preston Sturgis
http://www.environmentalhealth.ca/w9394safer.html
Dr. Grace Ziem’s Environmental Control Plan for MCS
Patients
http://www.mcsrr.org/resources/articles/S3.html
The Eco Building Guild
http://www.ecobuilding.org/
The Effect of Housing on Individuals with Multiple Chemical Sensitivities
http://tinyurl.com/6gor7u
Green Homes for Sale
http://greenhomesforsale.com/
Quail Haven - MCS Housing
Just North of Tucson, AZ
Call Diane Ensign for details:
May through January call: (406) 586-3658 (Montana).
January through May call: (520) 825-7276 (Tucson).
http://madelinx.tripod.com/
Building for Health Materials Center
http://www.buildingforhealth.com/
Seagoville Ecology Housing
15126 Beckett Road
Seagoville, Texas 75159
(972) 287-2059
Fax: (972) 287-7682
http://www.ehcd.com/resources/ecologyhousing.html
The Natural Place Environmental Residence and Hotel
1962 NE 5th St.
Deerfield Beach, FL 33441
954-428-5438
http://www.thenaturalplace.com/default.htm
MCSA
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Copyrighted © 2013 MCS America
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18
Heal Your Home Center
http://tinyurl.com/6dteuz
International Institute for Building Biology and Ecology
http://www.buildingbiology.net/
The Medical Perspective on Environmental Sensitivities:
Building codes, regulations and guidelines
http://tinyurl.com/6ztmqh
Moving House - Things To Look For If You Suffer From
MCS
http://www.drmyhill.co.uk/article.cfm?id=147
Multiple Chemical Sensitivity (MCS): The Controversy and
Relation to Interior Design
http://www.idec.org/publication/JIDarticleMCS.pdf
Optimum Environments for Optimum Health &Creativity:
Designing and Building a Healthy Home or Office, William
J. Rea, M.D.
http://www.ehcd.com/books/home_building_designing.html
Recommended Architectural Features for Multi-Family
Housing to Better Accommodate Chemical and Electrical
Sensitivities, Susan Molloy, M.A,
http://www.ctaz.com/~bhima/recommcshous.htm
Builders and Building Material
Suppliers
Heating and Cooling Options for the Environmentally Sensitive
http://eiwellspring.org/HeatingAndCooling.htm
Resources for the Chemically Injured: Building Materials
http://www.lassentech.com/eibuld.html
Tad Taylor’s Healthy Homes, LLC
http://www.healthy-homes.com/
Other Housing Resources
Ontario Human Rights Code: Policy and Guidelines on Disability and the Duty to Accommodate Non-Evident Disabilities
http://tinyurl.com/6ejep8
Residential Rehabilitation Assistance Program for Persons
with Disabilities (Canada).
http://www.cmhc-schl.gc.ca/en/co/prfinas/prfinas_003.cfm
Research House for the Environmentally Hypersensitive
http://tinyurl.com/5prrv3
Understanding & Accommodating People with Multiple
Chemical Sensitivity in Independent Living, Chapter 4, The
Housing Challenge in MCS
http://www.ilru.org/html/publications/bookshelf/MCS.html#chapter4
U.S. Department of Housing and Urban Development National Healthy Homes Conference
http://www.hud.gov/offices/lead/2008NHHC.cfm
U.S. Department of Housing and Urban Development
Healthy Housing Reference Manual
http://www.hud.gov/offices/lead/library/hhi/HealthyHousingReferenceManual.pdf
Disclaimer
This data is for informational purposes and is not intended to replace the examination, diagnosis and treatment of a licensed physician and no such claims are inferred. MCS America will not be responsible for misuse of this information or
the misuse of any information provided by it’s member organizations. Articles, citations, links and information are not necessarily the opinion of MCS America and printing does not constitute MCS America’s endorsement.
MCSA
NEWS
Copyrighted © 2013 MCS America
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19
Featured Research Studies
Safety Survey of Intranasal Glutathione.
Mischley LK, Vespignani MF, Finnell JS. J Altern Complement Med. 2012 Dec 16. [Epub ahead of print]
Source
Bastyr University Research Institute , Kenmore, WA.
Abstract
Abstract Purpose: Glutathione depletion has been documented in several disease states, and exogenous
administration has been hypothesized to have therapeutic potential for some conditions. In an effort to
reach target tissues of the sinuses and central nervous system (CNS), glutathione is being prescribed as
an intranasal spray, although no literature exists to support this mode of administration. The objective
of this study was to describe patient-reported outcomes in a population of individuals who have been
prescribed intranasal reduced glutathione, (in)GSH. Methods: A survey was designed to assess individuals' perception of tolerability, adverse events, and health benefits associated with (in)GSH use. Using a
pharmacy database, 300 individuals were randomly selected to receive a survey; any individual who had
received one or more prescriptions for (in)GSH between March 2009 and March 2011 was eligible for
participation. Results: Seventy (70) individuals returned the survey (23.3% response rate) from 20 different states. Reported indications for (in)GSH prescriptions were multiple
chemical sensitivity (MCS) (n=29), allergies/sinusitis (n=25), Parkinson disease (PD) (n=7), Lyme disease (n=3), fatigue (n=2), and other (n=10). Of
the respondents, 78.8% (n=52) reported an overall positive experience
with (in)GSH, 12.1% (n=8) reported having experienced adverse effects,
and 62.1% (n=41) reported having experienced health benefits attributable to (in)GSH use. Over 86% of respondents considered the nasal spray
to be comfortable and easy to administer. Conclusions: This is the first
study to evaluate patient-reported outcomes among individuals across the
country who have been prescribed (in)GSH. The majority of survey respondents considered (in)GSH to be effective and without significant adverse effects. (in)GSH should be further evaluated as a method of treating
respiratory and CNS diseases where free-radical burden is a suspected
contributor to disease progression.
PMID: 23240940 [PubMed - as supplied by publisher]
MCSA
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Tools and perspectives for assessing chemical mixtures and multiple stressors.
http://www.ncbi.nlm.nih.gov/pubmed/23238274
Løkke H, Ragas AM, Holmstrup M. Toxicology. 2012 Dec 10. pii: S0300-483X(12)
00406-4. doi: 10.1016/j.tox.2012.11.009. [Epub ahead of print]
Source
Aarhus University, Department of Bioscience, Vejlsøvej 25, P.O. Box 314, DK-8600
Silkeborg, Denmark. Electronic address: hans.lokke@c.dk.
Abstract
The present paper summarizes the most important insights and findings of the EU
NoMiracle project with a focus on (1) risk assessment of chemical mixtures, (2) combinations of chemical and natural stressors, and (3) the receptor-oriented approach in cumulative risk assessment. The project aimed at integration of methods for human and
ecological risk assessment. A mechanistically based model, considering uptake and toxicity as a processes in time, has demonstrated considerable potential for predicting mixture effects
in ecotoxicology, but requires the measurement of
toxicity endpoints at different moments in time.
Within a novel framework for risk assessment of
chemical mixtures, the importance of environmental factors on toxicokinetic processes is highlighted. A new paradigm for applying personal
characteristics that determine individual exposure
and sensitivity in human risk assessment is suggested. The results are discussed in the light of recent developments in risk assessment of mixtures
and multiple stressors.
PMID: 23238274 [PubMed - as supplied by publisher]
MCSA
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Copyrighted © 2013 MCS America
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Repressive authenticity in the quest for legitimacy: surveillance and the contested illness lawsuit.
Phillips T. Soc Sci Med. 2012 Nov;75(10):1762-8. doi: 10.1016/j.socscimed.2012.07.026. Epub 2012
Aug 5.
Source
Legal Studies Program, School of Social Sciences, La Trobe University, Bundoora, VIC 3086, Australia. tarryn.phillips@latrobe.edu.au
Abstract
When seeking compensation for workplace injury, workers predictably face examination over the legitimacy of their condition from employers and medical and legal professionals. When the alleged injury is a contested environmental illness, the suspicion aroused and the scrutiny faced by workers is
much more acute. In this paper, I analyse the medico-legal experiences of eight chemically sensitive
claimants in Australia to reveal the nature and extent of the surveillance they are subjected to in their
quest to prove the legitimacy of their disease. Four forms of surveillance are identified: medical scrutiny; legal surveillance, insurer investigation, and self-regulation. Advancing the Foucauldian concept
of self-surveillance, I demonstrate that this latter form of regulation has the most deleterious impact on
the claimants. The result of this scrutiny is a 'repressive authenticity' (Wolfe, 1999), where the chemically sensitive are expected to adhere to a particular normative ideal of sickness, which becomes
therapeutically counterproductive.
PMID: 22901667 [PubMed - indexed for MEDLINE]
This newsletter is for informational purposes and is not intended to replace the examination, diagnosis and treatment of a
licensed physician and no such claims are inferred. Articles are not necessarily the opinion of MCS America and printing
of others’ opinions does not constitute endorsement. MCS America, Lourdes Salvador, Directors, and associate members
of MCS America will not be responsible for misuse of this information. We welcome appropriate submissions for articles,
letters-to-the-editor, poetry, artwork, jokes, cartoons, photos, and whatever else is physically printable. Submissions may
be sent to publisher@mcs-america.org. We attempt to publish bi-monthly.
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MCSA
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Copyrighted © 2013 MCS America