Patient guide - Kneesworth House, Easy Read

Patient
Information
Booklet
What you need to know
Kneesworth House Hospital
Learning Disability Services
Mental
Illness
Personality
Disorder
Learning
Disability
Autism
Spectrum
Disorder
Brain
Injury
Contents
About Partnerships in Care
4
Hospital introduction
5
Environment
7
Hospital specific information
8
Sample activity timetable
11
My Shared Pathway
- rehabilitation in the community
12
13
EVOS - Employment and Vocational opportunities
14
Sports and well-being
15
Education centre
- ASDAN accredited
16
18
Real work opportunities
19
Arts and culture
21
Facilities
22
Patient involvement
- community meeting
- patient representative council
- peer+
- recovery and outcomes group
22
23
24
24
24
Why are you here?
- your clinical team
25
25
Working with other healthcare professionals
- your physical health
- adult safeguarding
- patient advocates /independent mental health advocates
27
27
28
29
2
Mental
Illness
Personality
Disorder
Learning
Disability
Autism
Spectrum
Disorder
Brain
Injury
Contents
Information about your care and recovery
- your legal rights
- what do we expect from you?
30
30
33
Data protection
35
About my stay
- how can I receive money/my benefits?
- what can I keep?
- my bedroom
- faith
- can I smoke at the hospital?
- food
- Care Programme Approach (CPA) meetings
- patient (community) meetings
- visiting arrangements
- complaints
- keeping you safe
37
37
38
39
39
40
41
41
42
43
44
Glossary of terms
45
Useful contacts & links
46
3
Mental
Illness
Personality
Disorder
Learning
Disability
Autism
Spectrum
Disorder
Brain
Injury
About Partnerships in Care
Partnerships in Care (PiC) has over 30 years of experience of
specialist provision in mental health, learning disability, personality
disorders, acquired brain injury and neuro-rehabilitation.
Medium
secure
Risk reduction
Low
secure
Safety management
Locked
rehabilitation
Social integration
Open and
community
rehabilitation
service
Life skills
Cognitive skills
National care pathways with Partnerships in Care
4
Hospital introduction
Kneesworth House
Kneesworth House is an independent hospital for
adults located 40 miles from London and 15 miles from
Cambridge.
There are different levels of security at Kneesworth
House. There are medium secure, low secure, locked
rehabilitation and open rehabilitation wards. There is also
an acute ward.
Icknield is a medium secure ward for adults with a
learning disability and mental health problems.
• Icknield is a medium secure unit with 19 beds.
• Bungalow is an open rehabilitation bungalow with 4
beds.
5
Hospital introduction
Kneesworth House
Where we are
Kneesworth House hospital is on the border of
Hertfordshire and Cambridgeshire, close to the town
of Royston.
The address is:
Kneesworth House
Bassingbourn-cum-Kneesworth
Royston
Hertfordshire
SG8 5JP
The telephone number is 01763 255 700.
6
Environment
Kneesworth House
Icknield ward is divided into two sections: an upper
floor area where the bedrooms are located and the
lower floor where our therapeutic activities take place.
The lower floor includes the games room, TV lounge
and activity room. The dining room is also located on
the lower floor.
We have a large garden area which patients access
for fresh air, gardening and other recreational activities.
7
Hospital specific information
Kneesworth House
Peer Plus
Patient representative
Drama and music groups
Gardening
Animal care
Art and craft
8
Hospital specific information
Kneesworth House
New 2 you
Library assistant
Cooking
Walks in the grounds
Community activities
Charity events
Swimming
…and many more
9
Hospital specific information
Kneesworth House
The social club is also located within the hospital
and host a number of patient events such as …
Breakfast sessions
Movies nights
Disco nights
Concerts
General social activities e.g. pool, board games,
table tennis, Xbox and Wii.
10
“
There’s a lot to do here,
OT do a lot and it’s
actually quite fun. I have
more independence and
have been able to make
more decisions
Sample activity programme
11
My Shared Pathway
Kneesworth House
My Shared Pathway is a way to plan and follow your own
treatment.
You will be able to manage your goals. We will work with
you to meet your goals.
You will have work books. In these work books you will
write down how you are getting along. You can write down
things about your treatment, your health and what your plan
to do when you leave.
Your named nurse will help you with your ‘My Shared
Pathway’.
12
Rehabilitation in the community
Kneesworth House
You can go out into the community as part of your
rehabilitation programme.
We will help you learn to do things outside of the hospital.
You will learn skills like catching the bus or shopping so you
can practise those skills before you leave the hospital.
You could go to college to continue with your education in
subjects like maths or English.
Or you could go to college to learn new skills which you could
use to get a job.
13
Employment and Vocational
Opportunities
Kneesworth House
The Employment and Vocational Opportunities Service offers
patients activities and work opportunities. You will hear this
called EVOS.
This means that there is a range of programmes and activities
that you can do. These will help you learn skills to get a job.
Or you can just take part in hobbies that interest you.
There are a range of programmes. These include;
The Adult Recreational Centre. You will hear this called the
ARC. At the ARC there are occupational therapy sessions,
coffee mornings and a range of things to do during the week
and weekends.
You can help look after some of the animals such as pigs,
chickens, rabbits, guinea pigs and chinchillas.
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Employment and Vocational
Opportunities
Kneesworth House
We have a wood work room where you take part in wood
work projects.
We have a patient run shop called New to You. Here you can
buy second hand clothes.
The Patient Magazine. This is a magazine written by the
patients for the patients.
15
Sports and well-being
Kneesworth House
There are lots of sports and activities that you can do. These
include:
Golf
Fitness
Yoga
Dance
And many others like cricket, volleyball, tennis and basketball.
16
Education Centre
Kneesworth House
The education centre is run by two qualified teachers. The
teachers work with the Occupational Therapists.
At the education centre you can do courses in subjects like
English or maths. You could also do some creative writing or
join an evening class in a subject that you like.
This will help you learn new skills which will help you apply for
work in the future.
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ASDAN accredited
Kneesworth House
The Education Centre is ASDAN accredited which
means that you can work towards a qualification in a
range of subjects. These subjects can be educational
such as Maths or English. Other subjects will help you
with your social skills such as coping with others.
Patients complete workbooks on a range of subjects.
These will meet your individual needs.
All patients are encouraged to participate in educational
programmes. This will help you gain skills that you
could use in the work environment.
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Real Work Opportunities
Kneesworth House
The Real Work Opportunities programme helps you to prepare to go to work.
There are a range of jobs that you can do at the hospital.
You can be an animal care assistant
A library assistant
An administration assistant
Or a gardener
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Real Work Opportunities
Kneesworth House
There are lots of jobs you could volunteer to do in the community. These are
Working at the local charity shop
Cleaning the local church or at nearby Wimpole Hall
Gardener at Wimpole Hall
20
Arts and Culture
Kneesworth House
There are a range of arts and culture programmes. These include:
Photography
Flower arranging
Trips to the theatre or museums
Be in the band
…and many more
21
Facilities
Kneesworth House
At Kneesworth House there is a shop where you can
buy sweets and drinks, new clothes, magazines and
cigarettes.
Patient involvement
We will help you to be involved in planning your
treatment. You will be encouraged to chair your own
Care Programme Approach (CPA) meeting.
You will be encouraged to take part in education
programmes or work experience.
22
“
As ward rep I go to the
Patient Forum meeting
where we talk about what we
want to do and if we want to
change anything
Patient involvement
Community meetings
The community meeting is a patient meeting. At this meeting
you can talk about your stay at the hospital.
A patient will chair the meeting and another patient will
take notes. A patient will take those notes to the patient
representative council to talk about.
Patient representative council
The patients representative council is made up of patients.
One patient from each ward will go to the meeting.
A senior manager and a member of Re-think Advocacy will
join the meeting.
At this meeting, patients can make suggestions to improve
their stay at the hospital.
23
Patient involvement
Peer+
Peer Plus support workers help new patients on the ward
to settle in. They introduce them to other patients and show
them around.
Peer+ is a voluntary programme. Patients can volunteer to
become a Peer+ support worker.
Anyone wishing to be a Peer+ support worker can apply and
be interviewed. If they are successful, they will be trained for
the role.
Recovery and outcomes group
The recovery and outcomes group is made up of staff and
patients.
The group arrange activities and help patients in the My
Shared Pathway programme.
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Why are you here?
“
Staff treat you like an
adult and I now have
clearer information
about my diagnosis
and why I am in
services
If you have been admitted to Kneesworth House you will be
detained under the Mental Health Act 1983 (as amended 2007).
This is for your own health and safety and for the safety of other
people.
Staff will help you to understand what it means to be detained in
hospital and your rights under the law.
Your clinical team
There are a team of people who are here to help treat you. They all work together to
give you the best care possible. These people are:
Consultant psychiatrist
He or she will look at your medication and treat you for any
mental health problems you may have.
Psychologist
When you first arrive on the ward, a member of the team will
meet with you to give you more information and to talk about
what support you might need.
On Icknield ward, you can access 1:1 and group sessions with
the psychology team, depending on your individual needs.
You may have regular appointments or a one off session. All
of us have felt happy, sad, angry and confused due to various
causes in our lives. We can usually understand why we feel that
way and find ways of managing it. The psychology team can
help to support you if you have difficulty in dealing with your
thoughts, feelings or behaviours.
25
Why are you here?
Social Worker
The social worker will help you with your benefits and any money
worries you may have.
Occupational Therapist
The Occupational Therapist will work with a team of staff to
make sure you take part in activities that you like. These activities
will help you gain skills that you will use when you leave hospital.
The skills will include cooking, cleaning, gardening, socialising.
Nurse
You will have a Primary Nurse who will know all about you. You
can ask them anything you need to know about your treatment.
The team will meet regularly in a meeting called Ward Round.
This is when the team will meet to discuss your treatment and
progress. You will be invited to take part in this meeting. Your
Primary Nurse will be present to help you.
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Working with other healthcare
professionals
Your physical health
We have GP (doctor) and Practice Nurse who will meet with you
when you arrive. They will check your physical health.
You can talk to the Nurse or doctor about your health.
We encourage you to have a regular health check.
We will help you to eat healthily, take exercise and look after
yourself.
We will help you to give up smoking if you wish.
You can go to the dentist if you need to.
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Working with other healthcare
professionals
Adult safeguarding
Kneesworth House does not allow violence, bullying, sexually
inappropriate behaviour or aggression.
If patients are abusive to one another, an adult safeguard
is raised. An adult Safeguard is a report that is sent to the
Cambridgeshire Adult Safeguarding Group and in some cases
the police.
The hospital works closely with the Cambridgeshire Adult
Safeguarding Group and the local police.
The hospital meets with the Cambridgeshire Adult Safeguarding
Group and local police every 3 months to talk about adult
safeguard alerts and investigations.
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Working with other healthcare
professionals
Patient Advocates/Independent Mental Health Advocates
An advocate is an independent person who helps you to
express your views and concerns. The advocate is not part of
the care team.
The advocate will help you to make a complaint, talk to your
solicitor or help you at your CPA meeting.
You can ask your named nurse to set up a meeting with your
advocate.
All detainee patients have the right to see an Independent
Mental Health Advocate. The Independent Mental Health
Advocate can help you understand your rights under the
Mental Health Act.
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Information about your care
and recovery
“
The teams are
amazing and the
doctors are amazing;
I’ve got a lot to
thank them for
You have the right to understand your treatment.
You have the right to understand any risks involved in that
treatment.
You have the right to ask for an explanation about your
treatment in language you understand. You can ask for more
information if you do not understand.
You should be treated and cared for in an environment which
gives you as much freedom as suitable.
Your legal rights
The Mental Health Act is a legal act. It means that you may
be detained or held against your wishes. You may then be
treated in hospital against your wishes.
The Mental Health Act covers your rights whilst you are
detained.
It also covers how you will be discharged from hospital and
treatment you may receive afterwards.
You will be given an information leaflet explaining your rights.
This will be explained to you by your Primary Nurse.
30
Information about your care
and recovery
Whilst detained in hospital you have the following rights
Under the Mental Health Act you have the right to receive
information about the act and how this affects you.
Our ward staff can explain this to you. Or you can see the
Mental Health Act Administrator
You can talk to your Doctor (Psychiatrist) and ask any
questions you might have.
Your Doctor (Psychiatrist) will review your detention and can
discharge you from it when it is the best time for you.
If you are not happy about your detention you have the right
to appeal to the Mental Health Tribunal.
31
Information about your care
and recovery
Whilst detained in hospital you have the following rights
You have the right to legal representation or help from a
solicitor chosen by you.
We can help you make an appointment with your solicitor.
You have the right to make a complaint to the Hospital
Manager about your care and treatment.
You also have the right to make a complaint to the Care
Quality Commission. Contact details for the Care Quality
Commission are at the end of this booklet.
If you wish to make a complaint, your advocate will help
you to do so.
32
Information about your care
and recovery
“
I do find my role
immensely rewarding,
knowing that I’m making
a small contribution
towards another peer’s
journey.
What we expect from you
As you will be living with other patients, we would you like you to behave in an
acceptable manner;
We would encourage you to get along with other patients and
your care team.
You should treat other people as you would like to be treated
yourself.
We will work with you to find new ways to cope with living with
others.
We ask you to respect others and be tolerant of them.
We do not accept any physical violent behaviour such as hitting
or kicking others.
We do not accept any verbally violent behaviour such as
shouting or swearing at others.
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Information about your care
and recovery
What we expect from you
We do not accept any racial abuse towards other patients or
staff.
We do not accept any abuse or damage to property belonging
to other patients and the hospital.
We work closely with the local police. We will contact the police
if any patient or staff behaves in a manner which is against the
law.
34
Data protection
“
If I had stayed in prison
I would probably be
covered in scars or be
dead by now. I have a lot
to thank the teams for
All hospitals keep information about patients. These are known
as clinical records. This helps keep a record about your care
and treatment.
Data is stored electronically on an Electronic Patient Record
system. You may hear this referred to as EPR.
Information will be sent to your Solicitor or Care Manager by
e-mail.
We use a secure e-mail system call NHS.net. This means the
information about you is encrypted or scrambled and is also
protected by a password. This make sure that information
about you is kept private and only seen by your care team.
35
Data protection
You are allowed to look at your clinical records at any time.
You can ask your nurse to help you understand your clinical
records.
You can request to see your clinical notes or you can ask your
solicitor or advocate to ask for you.
Your Solicitor, Care Manager or another doctor may ask to see
your records. We will ask for your permission before showing
them your clinical records.
36
“
It is a clean, quiet,
friendly, homely, relaxing
place to live and is a
stepping stone on the
path to our future
About my stay
How can I receive money/my benefits?
Most patients are given benefits from the government. The
Social Worker will help you claim this.
There may be some delay in getting money to you when
you first come to the hospital. We can provide a temporary
allowance which you will need to pay back. Staff can help
you with this.
What can I keep?
To keep you and other people safe, we limit some items
from the hospital. A member of staff will go through a list of
these items with you when you arrive. These are known as
‘contraband’ items.
Please do not bring any of these items to the hospital.
Please do not ask anyone else to bring those items to the
hospital for you.
If you have any questions about the items on the list, please
speak to a nurse.
37
About my stay
My bedroom
Your own bed bedroom will include:
•
A wardrobe for clothes storage
•
A low level storage facility
•
A bed
•
A mirror
38
About my stay
Faith
The hospital will make sure that your religious and spiritual
needs are met.
There is a multi-faith room that can be used for services,
religious ceremonies or private contemplation.
A Reverend from the local parish visits the hospital
regularly.
Some patients can also access the local church and other
places of worship.
Can I smoke at the hospital?
Partnerships in Care encourages patients not to smoke. If
you would like to give up smoking, please inform a member
of staff who can help you through an Occupational Health
Programme or an NHS Stop Smoking Programme.
There are smoking shelters in the grounds where you can
smoke if you wish.
39
About my stay
Food
The chef and his team provide a balanced menu using fresh
ingredients.
Patients are invited to attend a Menu Planning Meeting where
you can discuss food that you like or dislike with the Chef.
Foods are provided that meet your cultural needs.
Food is provided that meets your health needs such as a
diabetic diet or food that you need to avoid because of your
allergies.
The chef will also work with the patients to arrange activities
such as birthday parties, BBQ’s, Christmas parties etc.
40
About my stay
Care Programme Approach (CPA) meetings
Your care review meetings are called Care Programme
Approach Meetings. You will hear them referred to as your
CPA meeting.
The CPA meeting is an opportunity for you and your clinical
team to talk about your care and treatment.
Your Mental Health Team is invited to the meeting. You are
also able to invite your carers, other professionals and family
to the meeting if you wish. The CPA co-ordinator will speak to
you about who you would like to invite.
You and the team will plan your care and treatment for the
next 6 months. At the end of the meeting you will know what
goals you need to work towards.
Your first CPA meeting will take place 12 weeks after you
arrive and every 6 months after that.
You are encouraged to be as involved in the meeting as much
as you want. You may like to chair the meeting.
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“
I’m learning new skills,
meeting new people and
learning new skills for the
future
About my stay
Patient (community) meetings
The patient (community) meeting is very important at
Kneesworth House.
The patient (community) meeting encourages patients to
meet together or with a senior member of staff to discuss all
matters about their care and treatment.
It is chaired and co-chaired by a patient who is nominated by
the other patients.
Visiting arrangements
We recognise that it is important to you that your friends and
family are able to visit you. We make sure your friends and
family are able to visit.
The Charge Nurse on your ward will contact your visitor and
explain the rules for visiting.
We ask that your friends and family let us know that they wish
to visit. They must let us know 2 days before visiting.
42
About my stay
Visiting arrangements
Your care team will have a list of approved visitors. We will be
unable to let other people in see you unless they are on your
list. Your nurse will speak to you about this.
If you would like a visit from somebody under the age of 18,
please speak to your Nurse who can discuss this with you.
Complaints
If you have any concerns or wish to make a complaint,
please speak to the Nurse in Charge. They will deal with your
complaint immediately.
You may prefer to make a formal complaint. You can do this by
writing to the Complaints Officer at Oaktree Manor. You can ask
a member of staff or an advocate to help you with this.
The Complaints Officer will then look into your complaint. This
may be in the form of an investigation.
You will receive a response from the Complaints Officer within
25 working days.
If you are not satisfied with their decision, you have the
right to complain to the Director of Policy and Regulation at
Partnerships in Care. Your Nurse or advocate can help you with
this.
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About my stay
Keeping you safe
You have the right to be safe in hospital. You have the right to
feel safe in hospital. You must tell the nurse or a member of
staff if you do not feel safe.
Kneesworth House has an adult safeguard policy. If a patient
or a member of staff hurts you, you must tell another member
of staff.
We will take immediate action to keep you safe. We will report
this to the local Adult Safeguard Unit and the Care Quality
Commission. If appropriate, we will tell the Police.
44
Glossary of terms
“
I’ve done DBT and
learnt so much about
self respect, how to
set goals in your life
and how to appreciate
what’s around you. I’ve
been able to be me.
A list of healthcare abbreviations you may MHA – Mental Health Act
hear being used at Kneesworth House.
MHT – Mental Health Tribunal
We recognise that the use of
IMCA – Independent Mental Capacity
abbreviations is used regularly in
Advocate
healthcare settings. Please ask a
member of staff if you do not understand IMHA – Independent Mental Health
Advocate
the terms or language.
RC – Responsible Clinician
MOJ – Ministry of Justice
MDT – Multidisciplinary Team
RMN – Registered Mental Nurse
CPA – Care Programme Approach
OT – Occupational Therapy
CQC – Care Quality Commission
PRN – as required medication
CBT – Cognitive Behavioural Therapy
MVA – Management of Violence and
Aggression
DBT – Dialectical Behavioural Therapy
ECT – Electronic Compulsive Therapy
PiC – Partnerships in Care
EPR – Electronic Patient Records
CQUIN –Commissioning for Quality and
Innovation
45
“
You get loads of
opportunities to do things
like Food Hygiene and
college courses
Useful contacts & links
Partnerships in Care (Head Office)
2 Imperial Place
Maxwell Road
Borehamwood
Herfordshire WD6 1JN
Telephone: 020 8327 1800
Fax:
020 8327 1900
http://www.partnershipsincare.co.uk
The Parliamentary and Health
Service Ombudsman Health Service
Commissioner of England
13th Floor, Millbank Tower
Millbank
London SW1P 4QP
Telephone: 0345 015 4033
http://www.ombudsman.org.uk
Care Quality Commission
CQC Central
Citygate
Gallowgate
Newcastle upon Tyne NE1 4PA
Telephone: 03000 616161
Email:
enquiries@cqc.org.uk
Formal Advocacy Service Rethink
Kneesworth House Hospital
Bassingbourn-cum-Kneesworth
Royston
Hertfordshire SG8 5JP
Telephone: 01284 756791
Mental Health Review Tribunal
5th floor
11Belgrave Road
Victoria
London SW1V 1RS
http://www.MHRT.org.uk
Complaints Officer
Eleanor Moore
Kneesworth House Hospital
Bassingbourn-cum-Kneesworth
Royston
Hertfordshire SG8 5JP
Telephone: 01763 255 700
46
Quotes from patients at
Kneesworth House
“I want to thank all the staff for helping me through
everything. I’ll miss them but it’s time to move on.”
“I enjoy sessions, talking to the staff.”
“It’s been eventful. It’s been good. I’ve done a lot better
here than other places. When I first got here I thought I
was a failure. Look at me now.”
“I feel happy, I feel confident.”
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These are our values. What we believe in.
What you can count on.
Valuing people • Caring safely • Integrity
Working together • Quality